Remicade + 6mp = major heat intolerance!

I was away this weekend and it was pretty warm here in MI (even in the northern part of the state - 90 degrees). I have never felt this sort of heat intolerance before I started on Remicade. I had some minor heat intolerance with 6mp but it was tolerable. This is the first summer for me while being on Remicade but now it doesn't seem like I might enjoy it! I LOVE LOVE heat...I must've been a lizard in my previous life or something! lol I can not stand to be in the sun for very long now - it makes me feel faint and extremely weak. Almost nauseous in a way. I've been drinking lots of water so it's not dehydration. This is kind of bumming me out :( I LIVE for the summer! We only get about 3-4 months of nice weather so I want to enjoy it when I can.

Has anyone else had this with Remicade?

It may not be entirely due to Remicade. Many of us UCers taking 5-ASAs have trouble dealing with heat & humidity and have posted about it in past threads. I think the main problem is that our immune systems are what the researchers call "dysregulated"-- so that they get our bodies all revved up & reacting to sudden environmental changes that sail by people with normal immune response. The overreaction then wears us out so we feel tired and/or weak. It's very frustrating. Where I live we just had 4 gorgeous sunny days in a row with the bluest blue skies that, alas, raised the pollen level to "high"-- so I got a strong allergic attack with chills in addition to the sneezing, runny nose, burning throat, itchy palate keeping me mostly awake at night. I never had this before UC!!!!! Grrrrrrr! TG my UC med is protecting me from a flare in ye olde colon-- because my upper respiratory parts totally caved to the attack. Sometimes it seems like we need to live in a bubble to avoid irritants! / Old Hat (31 yrs with left-sided UC; presently in remission taking brandname Colazal)

Red! The exact same thing is happening to me! I've been on Imuran for 7 years but just added remi in November. I live in NC and it has been an extremely hot and humid spring. The remi nurse thinks it is the imuran. My primary thinks it is a combo of both.

I'm also burning like crazy. Even w/ spf 50 on. Pool is going to be interesting w/ my little one this summer!

Uh-oh....perhaps I should change my sunscreen to SPF50 or higher? I just picked up a 30SPF. I didn't think much about it but back in March we had a string of warm days - very unusual temps for us; I was out in the sun and I got a sunburn in about 30 minutes.

Ever since I got UC I've had alot of problems tolerating the heat too. I just thought it was because I was chubby and getting old. Apparently not because I'm less chubby now and I'm even more tired than before and feel woozy if out in the sun for long.

Yeah, I know only too well the sun sensitivity of Sulfsalazine! lol I was on it years ago, before I developed my allergy, and I remember burning severely in the sun....it wasn't pretty! lol

Sherry, 60 would be better. Maybe higher, if you can find it. I talked with my GP and he suggested 60 spf. Reapply at least once an hour, I find that helps.

I'm the same way with the heat, but I've been like that since I was a kid. The heat just does me in.


Before the fatigue sets in, you should stay in the shade and put a damp towel either around your neck, on your stomach or head. That seems like help me cool down a bit.