Is anyone else caught in the in-between?

What did you include which may have caused the blood?

Do you keep a food journal?

To be honest if I was you and SCD worked so well for me, I would go back to it. I've been on it since February and I didn't have as good results in months than you.

I dont record what I ate through food diaries, but I do supplement and am still taking asacol. It's a hit and a miss sometimes. I'll be good for three days, then the next, its like this little sick feeling in my stomach (like an almost migraine -leave me alone im in a bad mood) type of feeling. And then bowels will not be perfect. No urgency, but I am haunted about those 10 days of hell during pre-diagnosis with non-stop blood & pain, I have to remind myself I am helping myself and getting help more than I was back then, but I still get nervous sometimes.

Here I am venting, when yes I should be going back to the SCD diet or another diet, but man that was easy. Always hungry, not enough calories, and the feeling of living life inside a glass window.

Andrina, i'm not sure what could be causing blood, probably sugar. My doc said its #1 inflammatory ingredient/food, makes sense. =/

Lodi, I pretty much stuck to the same exact meals I was eating on SCD, except for allowing more foods/snacks/drinks inbetween (Pre-marinated fish/chicken, then starches potatoes and then sugar (bakery food like bagels and donuts) eh. =/ Not the best move, but this was nearing graduation a month ago and earlier.

Does anyone else have a pattern of inflammation like this? I obviously have to make some more dietary changes..

You've had great progress in a short time. What else are you doing along with SCD? Mesalamine enema or suppositories? They will help healing too. Probiotics? Good also.

You didn't get sick overnight (I'm guessing) so not reasonable to get better that quickly but you are on the right track obviously.
My diet mod. had some fast parts and then long stretches of being plateaued. I'm still finding tweaks to make it even better. I eliminated more fiber since I was eating too much almond flour as well as actual nuts, fewer BM's as a result. But that's me, your colon may be different.

I've put yogurt in and out of my diet about 4 times in 2 years (currently in). Coffee the same thing, in-out. Tryouts and testing, my mind is always trying to talk me into things that my colon pays the price for. Slowly though everything is getting back to normal pre-UC status.
Be patient.

Try to substitute sugar with honey and see if the bleeding subsides.

stereo, if you had good results with SCD I would go back to it for longer... the SCD book recommends two *years* of compliance for UC before trying non-SCD foods. Ultimately it's your body and your life and you have to decide where your priorities lie. As far as not having enough food/calories, I think a lot of people have a mental block about eating bigger portions of meat/fish and fat (if you can tolerate high fat) but it makes a big difference. You can wrap a chicken breast or a burger patty in foil and carry it with you for a snack, even. I've done it :)

Colitis has a strong hold on Stereo.

You go SCD...no gut problems but feeling weak, hungry,

You don't go on SCD, gut problems but feeling better.

So, using this above in the equation, there's 3 solutions.

1. They find the cure and you can resume eating a normal diet. ( highly unlikely in this time)

2. You go on the diet indefinetly to control your symptoms at the expense of weight/feeling unsatisfied/whatever else.

3. You have surgery, you can resume eating what you want but with the sacrifice of your colon and some day to day changes to bowel habits.

I propose, no.1 lol

imagardener2, right now i'm doing Vit. D, multivitamin, VSL#3 probiotics (3 caps daily), liquid fish oil, L-Glutamine, just ordered some L-Threonine, still doing herbs: slippery elm/marshmallow/licorice & peppermint/chamomile, and strictly the most strict gluten free diet (no deli meats with gluten, no suspicious ingredients (natural flavors, corn starch/modified) unless specified gluten free. The SCD diet was great, but yes I felt very limited, I ate alot of protein but it never seemed to make me 'feel' full, only carbs truly do that for me i've found. I still stick to most meals that I included when on the SCD diet, but now I allow myself a larger variety of foods, since living at home.

I guess you could say I cheated when starting the SCD, because I followed the diet to a T, but did not do it in the order of steps, by introducing certain foods, I just allowed myself whatever was included in that list. I gotta stop complaining though, if the diet is what worked, I can sure as hell go without grains for a bit...

Somedude, I fully agree!!! Hahaha #1 is my favorite ;) This is why i'm going for these gut function/immune tests/adrenal function tests right now, to see if there is any other way I can connect the dots with this disease! =/

Quincy, I dunno about enemas, you the know the deal I'm working with a naturopathic doctor and although he can prescribe some meds, I'm trying every other option out before that, it is an option though... I'd really like to get off asacol first, maybe switch the two..

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I think what I find odd about the pattern of inflammation is that I only go to the bathroom 1-2 times a day, but bowels can be formed to unformed, clearly inflamed.

Post Edited (stereofidelic89) : 6/6/2012 6:32:54 PM (GMT-6)

There is blood on the stool for the past 3 days, this comes and goes though for the past month and a half. Finishing this cycle, I can have perfectly formed bowels with no blood. But I still find it odd that I can stay at exactly 1-2 bowels a day, and not be set back into a full blown flare, I think that is what is haunting me the most right now.