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ulcerative colitis please help 1st time relapse

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Ulcerative Colitis
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Posted 6/26/2012 9:07 PM (GMT 0)

i have had left side moderate ulcerative colitis since last may 2011. i was 28yrs old.  once i got pass the symptoms after a few months i was fine. i stayed on a great diet of salad and chicken, eating fast food once in a while only, drank maybe 2 a month, am a active person that goes to gym 5 days a week and also plays hockey. the doc even lowered my asacol 400mg to 2 pills 3x a day instead of 4 and canasa 1000 mg every other day. out of the blue in march 2012 i get a replapse and i am still in it now. . lost 35 lbs became fatigue and weak doctor kicked pills back up to normal dosage which is asacol 400mg 4 pills 3x daily, canasa 1000mg every night and put me on predisone from 40mg and reduced as weeks gone by i was almost using the bathroom only 1 to 2 x a day and stool was forming . starting to excercise using resistance bands and slow jogging, feeling healthly again about 5 days left of predisone ,symptoms started again runny stool, what ever i ate ran through me and weight loss again 10 more lbs . i saw doc he put me back on predisone 20mg 1 week, 15 mg 1week 10mg 2 weeks and now i just started 5mg for 2 weeks today , then 5mg every other day for 2 weeks my symptoms really didnt change to this day, still runny stool, but urge is more sudden and less controlable, Even eating like rice and soft foods no change. drink isopure protein drink to keep protein up doc approved it as long as vanilla, boost and ensure was making me sick from the sugars doc said. sometimes leg and muscle cramps, and now i am experencing adominal pain in the right side now instead of left and fatique . in fact majority of the pain is the right side towards top of ab. only time left side acts up is when using or have to use bathroom, or after when both sides of adominal cramps.. HAS ANYONE GONE THROUGH THIS WITH PREDISONE WITH THE SYMPTOMS COMING BACK AND CYCLING ? IS THIS NORMAL FOR A RELAPSE TO BE THIS LONG? AM I DOING SOMETHING WRONG? DOES ANYONE KNOW IF FISH OIL WORKS, someone told me to try that?

PLEASE HELP

THANKS HAVE A GREAT DAY

CURRENTLY

asacol 400mg 4 pills 3x a day

canasa 1000mg 1 supp every night

predisone cycling down 5mg 2 weeks

multi vitiamin 1 pill 1x daily

isopure 1 30g shake 1 x daily for now till stool forms

Posted 6/26/2012 9:24 PM (GMT 0)
In my experience prednisone cannot be scheduled independent of your response to it. Most people take a 40 mg/day dose until their symptoms are gone. Then they start tapering off.

You should consider replacing the canasa with a retention enema. That will give you better treatment of the rectum and sigmoid colon.
Posted 6/26/2012 9:31 PM (GMT 0)
I agree an enema would be better than a suppository. You could even use the enema at night and the canasa during the day. The last few times I was on pred I was on it awhile and really hope to avoid that again. And tapering down does seem to bring back symptoms. Just keep up with the rectal meds.
Posted 6/27/2012 1:31 AM (GMT 0)
I have left sided also and Rowasa makes a big difference for me. You may want talk to your GI about a slower pred taper. For example, 20 to 15, if symptoms start to come back, go up to 17.5 for a day, then down to 15, then 12.5, etc, etc.
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