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Ulcerative Colitis
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Posted 6/29/2012 9:45 PM (GMT 0)
I cannot seem to shake this feeling of absolute tiredness... and I cannot seem to shake this feeling of "not quite being right"... When I say that I mean, I am not so much dizzy, but I am very close to it and it hangs over me all day long.

I am going for some bloodwork this weekend to test things ( iron levels I would imagine )... but I felt the same way prior to previous blood tests and my blood work was fine, including my iron levels.

I broke down and had my first cup of coffee in a LONG time today and it really did nothing.

I realize that this disease zaps you of your energy, but this is ridiculous. I don't even have the energy to get mad about it... :)

Any hints , tips or advice on this would be greatly appreciated...

Thanks - All this typing and now I am REALLY knackered

    

Posted 6/29/2012 10:09 PM (GMT 0)
What are your U.C. symptoms like at the moment? Severe flares can make you feel very ill and sap your energy. If your fatigue is caused by colitis, you need to get the inflammation under control before you will feel better.

BTW I used to live in a city called Coquitlam in BC. Is that where you are from?
Posted 6/29/2012 10:11 PM (GMT 0)
Any chance you get to rest, do it. That's the only advice I can give you. I'm trying to stop a flare that I've had since May. It sucks. I get tired too (normally I am energetic) so whenever I can rest, that's what I do. I keep as much stress out of my life that I can. I don't know if you are into herbs, but if you are, try some Ginseng.
Posted 6/29/2012 10:25 PM (GMT 0)
To CGK

I am fairly new to this ( diagnosed in October ) and I am not sure what constitutes a severe flair up... I have been in the same boat since my diagnosis ( more or less ).

Daily routine, wake up once or twice in the early hours and have minor bowel movements... then between 6 and 7 I have a major movement and THAT really takes a lot out of me ( in more ways than one ). AFTER this movement my lower stomach is quite sore and I usually go back to bed and put the heating pad on my lower tummy.

Then between 8 and 9 am I take my meds ( 2 Mezavant ) , eat a small breakfast and then, for the most part my BM issues are done for the rest of the morning... I snack at work ( healthy of course ) and then when I go home for lunch ( live very close to my office... ) I usually have another BM or two...

I MIGHT have another movement or two in the evenings, but this is the standard day.

I take some Metamusil at night to help things along and I only take the Mezavant for colitis... I have also tried doing the Salofalk injections you know where, but have had limited success with that... Bottom line, many times it doesn't stay in there very long... LOL. I am sure that will help with the inflammation, but it has to be there for a while before it can help, I'm sure.      

For the past couple of weeks, I have felt this feeling of dizzyness and extreme tiredness... and I felt this same way about 2 months ago... This part of my routine seems to come and go despite my bathroom colitis issues not changing drastically.

Thanks for your reply

Yes, I am in Coquitlam...  :)              

Posted 6/29/2012 10:30 PM (GMT 0)
Hi Michele,

Thanks for your reply too... I will try more rest, but it really is hard to do... Yesterday I was supposed to go and play golf and I decided to give it a miss ( and I took the day off to play ). It was really hard to NOT play and I really feel that sitting around is just as hurtful as moving around...

Strangely, I AM sleeping a bit better these days and that's the weird part... I used to get way less sleep than I do now and I am STILL dog tired by 2pm every day.

PS - why is it that so many people in here have such a long laundry list of meds and I don't...  mad  hahaha...  I take a couple of mezavant a day, some metamucil and I TRY to administer Salofalk... aside from that I don't take much else... Is my Dr not telling me everything I need to know or should I be seeing someone else.   

Posted 6/29/2012 10:49 PM (GMT 0)

Coquitlamguy said...



PS - why is it that so many people in here have such a long laundry list of meds and I don't...

They are drug addicts ...

Some of them do LDN..thats some powerful chit, homes!!!

One of them is hooked up on Paleo...that's mega chit bro...you be flying sky high....word.
Posted 6/29/2012 11:27 PM (GMT 0)
Are you having D? Blood? Mucus?
Posted 6/29/2012 11:39 PM (GMT 0)
Hi CGK,

Not really D... fairly solidish... small amounts of B and M... but not the same as pre Mezavant.

Very glad to hear you are doing better... I am seeing my specialist in mid August and will talk to him about alternate meds or additional meds. Just thought there might be something I could do in the meantime to shake off this extreme draggyness...

Cheers
Posted 6/29/2012 11:59 PM (GMT 0)
When you have your bloodwork done also have your vitamin D checked. Mine was super low and since I started to supplement with Vitamin D3 it has come up and I do have more energy than before which is a major thing for me. I finally have the energy to exercise and that in turn gives me more energy and helps me sleep a little better than before. My GI didn't check for the Vitamin D my GYN doctor did so you may have to ask for it. My iron levels are only bad when I'm flaring.

You may also want to supplement with a good probiotic.
Posted 6/30/2012 1:38 PM (GMT 0)
Try taking a B-complex vitamin. It has helped me tremendously to get my energy back. Also be sure to drink LOTS of water or liquids. Even if you not having pure D, any kind of soft bm's make you lose water stores.
Posted 6/30/2012 4:15 PM (GMT 0)
Is it possible that you are depressed?
Posted 7/1/2012 2:25 AM (GMT 0)
Who is your Doc BTW? When I lived in Van I used Dr. Chatur at VGH. She is the best GI Doc I have ever used by far. She is open minded about trying things in creative ways, plus she is a master when it comes to procedures such as colonoscopies and such.
Posted 7/2/2012 7:09 PM (GMT 0)
I had that incredible fatigue that you describe. I tried all kinds of things and nothing worked... a friend of mine who has a different autoimmune disorder kept telling me that my body is telling me I need rest and not to fight it. I didn't believe her and kept fighting it. Finally I gave up, gave in, and just rested/slept the whole day away. I didn't care anymore. I got out of bed in the morning, parked myself on the sofa all day long, only getting up to get food occasionally, go to the bathroom as needed (lots!), do the bare minimum around the house like laundry... until it was time to go to bed again. And I think that inordinate amount of rest is what contributed to my recovery.

Now I see from your post that you are working so obviously you cannot do what I did. But I do urge you to give in and rest whenever you can.

BTW, CGK, I also live in Coquitlam! Small world.
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