Posted 7/12/2012 5:27 PM (GMT 0)
I was diagnosed with UC in 1995. I was started on Asacol and only had to take it for 4 months until I went into remission. I usually would go into a flare every two years, they would begin with urgency, diarrhea, sometimes blood, fatigue, and abdominal discomfort. I've had about 6 to 8 colonoscopies since that time. I was seeing a GI doctor at UPMC in Pittsburgh that is a total by the book doctor, he would tell me stress has nothing to do with a flare. Anyhow, I have been in remission for two years until the beginning of May when I started to have abdominal discomfort, pain in the right lower quadrent, loose stools, and urgency, the difference this time which I have never had before was nausea, every time I ate I felt sick to my stomach and then it became that I felt nausea all the time. I decided it was time to go to the big time so I made an appointment with a GI doctor at the Cleveland Clinic, I was lucky they had a cancellation and was able to go on May 30th. I was really impressed with the doctor. What scared the living out of me is that he told me I may have been misdiagnosed with UC and actually have Crohn's because of my description of pain in my right lower quadrant, he said that's where Crohn's likes to hang out. I am totally freaking out now. I am going back on July 19th for a colonoscopy and EGD. In the meantime I had to get Asacol from my PCP that I just started a week ago. I started bleeding about two weeks ago. The nausea has subsided but that's about all. I found this site and wanted to see if anyone here has advice or a similar story. No one except others that suffer with this plague is able to understand what we go through. I'm a nurse in an ICU and even my co-workers don't understand, not that I really talk about it though. I'm just getting to my wits end with this.