scared to wean off rowasa

i_love_coffee

Veteran Member

Joined : May 2010

Posts : 637

Posted 7/27/2012 3:43 PM (GMT 0)

think i'm headed into remission after a 4 year flare up, thanks to imuran. I am still on daily rowasa. Every time i was close to remission and tried to taper the rowasa i started flaring again, of course i wasnt on imuran then, so maybe things are different now?

anyway, i think its been about a week since i saw blood, and that was only a small amount, as i came off pred. imuran was upped to 100 mg last week and have not had blood since.

so, whats everybodies experience with tapering? gonna keep it in the rotation maybe 2x a week but how to safely get there?

fruitgirl

Veteran Member

Joined : Feb 2009

Posts : 7164

Posted 7/27/2012 3:50 PM (GMT 0)

I had been in remission (ie, off pred and ZERO symptoms) for about a month (I think, but I know it was a while) before I started to taper the enemas. IMO, it's foolish to rush it. I then dropped to every other night for two to three weeks, and when that went well, to twice weekly, which is where I've stayed.

quincy

Elite Member

Joined : May 2003

Posts : 33769

Posted 7/27/2012 4:59 PM (GMT 0)

Since you saw blood a week ago, I'd suggest you stay on them nightly till maybe Wednesday. Then go every second night for at least 3 weeks. See how you do then.

If all is fine, then go to every third night for at least 3 weeks to a month...if all is good, do the twice a week and stay there.

Good to hear you're doing so much better. It's been a long haul for you.
q

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