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Posted 8/8/2012 2:39 PM (GMT 0)
So my UP is apparently better after this colonoscopy as compared to the one 2 years ago.

My symptoms were less, too...but the one thing that has me stumped is the rectal pressure/ pain. The urgency, is mild, but the pain lingers for a while.

I have been using Canana supps 3 X day for about a 5 weeks. Originally, I was using Rowasa at night, and supps 2 X day. The problem with that was that the mornings are usually the worst for me. And I found that after the Rowasa, I would have more liquid coming out of me before my actual BM. The liquid was kind of uncomfortable, so I stopped them and started 3 X week supps.

They are OK, but I find that the mornings are still not easy.

I start with a small amount of liquid, some cramping, I put in the Canasa, then about 15 min later, a formed BM with s stain of blood comes out.

I usually have rectal pressure for about 2 hours after all that ( and I do use another canasa if i go so quickly after I put it in)

I tried the rowasa again last night, and this morning was horrible. Cramping, urgency, liquid mush ( mostly white as if it's the enema) 3 times, before the formed bm, but because of the straining, and liquid etc...had a little more bleeding and continue to have the rectal pressure/ pain this morning.

I used another canasa, and held it in, but I'm just waiting for this pain to go away?

Other than that, I am usually fine...once or twice a week , I will have that feeling to go mid day, and a little liquid mush comes out, but then it's done until the morning, So I am aware that I don't have severe symptoms, but they are just annoying and painful...

What do you all think?

I have an appt with GI on the 20 th to discuss...

I just don't know if I should do the Canasa 3 X a day and leave it alone? I would excpet that i just feel like it's not getting healed as quickly as I think it should.

It's not getting worse with the 3 X day, but I still have this spot of blood every morning. ?

Could the rowasa be making things worse?

The last time I was on them it wasn't like this?

I almost want to put myself on a week of prednisone just to heal fast, and then start  and continue with the cansasa???

Sorry for the long and confusing post...

Thanks as usual for always having the best advice.

j

Posted 8/8/2012 2:44 PM (GMT 0)
The pressure sounds like tenesmus to me, which is a pretty classic UP symptom. I definitely think the Rowasa could be making it worse -- some people are allergic/sensitive to the sulfate preservative in them. You could ask about the sulfate-free Rowasa. Or, it might be worth adding either a steroid enema (not sure if any of these are sulfate free, though) or a steroid suppository. I'd try steroid rectal meds before pred, to be honest.
Posted 8/8/2012 2:45 PM (GMT 0)
Hi...you've definitely given the Canasa a fair trial. What oral 5ASA are you using?

How many times a day are you having bms?

Could you possibly have a hemorrhoid or fissure?

Maybe consider a steroid rectal med for a while to try instead of wanting pred.

q
Posted 8/8/2012 2:55 PM (GMT 0)
I am not on any oral meds...BM's are only once a day, in the morning only, then just a little squirt, maybe once or twice a week mid day.

I guess I could have a hemorrhoid?

I don't think I'm allergic, as I used this many times before? Can you develope an allergy?

I just feel better when I do the canasa supps, but it's like there's this nagging inflammation most likely very low rectally, that is taking a long time to heal. Again, the blood is very little, about a quarter size at best, not bright red, kind of maroon.

Nothing like the bad flare that I had 2 years ago.

And with that one, I took pred for about a week, then maintained with supps for 9 months. Healed within a week or 2...

What steroid rectal meds would you recommend? Cortienema?

 

Posted 8/8/2012 3:10 PM (GMT 0)
There are a few, but I'd suggest either the liquid or foam which can go higher into the sigmoid.

You can use that in conjunction with the canasa...enema at night, supp in the morning/day.

The once a day is good, but definitely seems to signal that it's limited.

It's good you see the GI soon...ask him to take a look-see as to what's going on.

Are you on any antispasmodics?

The maroon colour would be from the blood and Canasa mixed.

q
Posted 8/8/2012 3:37 PM (GMT 0)
Yeah, I think I'm going to do that.

I called my Internal MD, and will see him on Monday to get the script for the Cortenema. This way I can start it before I see the GI and if it's not working we can move on to something else.

I agree with enema at night and supp during the day. I  just feel like there is this little area that is stubborn and needs something other than the Canasa to help it heal.

 I wonder if my stomach bug 2 weeks ago caused things to get so out of whack? Right after the colonoscopy I was doing to 2 X supps and things were good. No blood at all, formed and feeling pretty good. Then I got this horrble stomach pain / bloating like I have never had in my life, with 3-4 times day diarrhea for 2 days, that stopped and the stomach pain lingered for about 3 more days My stomach just was not right for about a week. That is gone, thankfully, but I wonder if the acute episode of all that diarrhea and straining caused the alreasy friable rectum to open up??

Just my crazy thinking I'm sure...

Now you see why I need to leave the thinking to you guys and the doctors!!!

I'm also going to grab some probiotics today, and maybe look in to some homeopathic stuff. I'm kind of getting tired of this last area that is causing me discomfort. Plus I really don't want it to get worse, that's really what I 'm afraid of.

 

Posted 8/8/2012 3:46 PM (GMT 0)
A tummy bug can absolutely stir things up! I mean, when you get a tummy bug that causes diarrhea, you have "colitis," as your colon most definitely is inflamed. That's why you get the diarrhea -- water isn't being absorbed properly through an inflamed colon. And I've heard that it can take UCers longer to bounce back from a tummy bug (ie, it takes the colon longer to calm down) and that a tummy bug can stir up a bit of a flare.

However, the tummy bug also could have caused a hemmie that's causing the discomfort and bleeding or a fissure. So I think a visit to your GI is in order so he can do a look-see. Your Internal Med doc might also take a look if you request it.
Posted 8/8/2012 3:58 PM (GMT 0)
Interesting....As I was writing about the stomach bug, I realized that may have caused some havoc.

Really? UC er's have a longer time healing from that stuff? Well then ,that would make sense, because things were going along well, until that happened...I was having nice formed BM's, no blood, etc...then after that issue, things kind of went backwards..

So do you still think I should try a rectal enema, or just wait out with the Canasa supps?

 

Posted 8/9/2012 7:04 AM (GMT 0)
I'd use the enema and the supps. The switch just might kick start a positive improvement.

Why aren't you on any oral 5ASA?

When was your last c-scope again?, sorry..don't remember.

You need probiotics bigtime, and should have started them at first symptoms of the gastro virus you believe you had.

Yes, it can trigger a flare, but it can also mimic a flare and happen at the same time.

Stool samples are a good thing to have done regardless...unless you had them done and all was clear.

probiotics...good ones.

q
Posted 8/9/2012 8:50 AM (GMT 0)
duodenum: fragments of duodenal mucosa w no specific path findings
villous architecture is preserved, no evidence of blunting or atrophy
no lymphocytosis, or microorganism, neg for malignancy
 
Term Ilieum: small bowel mucosa with lyphoid aggregate
neg for atypia and malignancy
 
rectum: colonic mucosa with lymphoid aggregate neg atypia and malignancy.


That's basically the colonoscopy/ endoscopy from last month. Very different from the previous one which showed severe proctitis.
Also, he mentioned that it was 18 cm and this one was more like 12-15 cm, so improved for sure.

I'm not on any oral meds, never have been. SInce this all statred in 2006 I have only used canasa and rowasa and that's usually just during the 2 major flares that I have had.

The first time I used the supps for almost a year, every day, hen tapered weekly etc...the second time for about 9 months. that was in 2010.

So this flare, which is nothing near as bad as that second one, started in about march, very mildy, then got to annoying in June, had the colonoscopy, started the canasa 2-3 times/ 2 times rowasa, for about 2 weeks, then rowasa only at night, then stopped and only did canasa...was just about healed...then got that stomach bug and all you know what broke loose.

That's when the blood ( spotting and some dripping again ) started.

It didn't worsen, but i just was feeling like I was close to healing, but just needed a little boost.
That;s when I started rowasa, and that;s where I am ...

So I used canasa 3 times yesterday and no rowasa..and I didn't have the urgency and pressure this morning like I did yesterday so That is a plus.

I made an appt with a rectal surgeon for today. I had seen him last year for what I thought was a hemmorrhoid. He did some scope , not a sig, but some thing, and looked in there and said that last may 2011 he saw no signs of the proctitis.

I just can't wait until the 20th to see the GI.


So what do you think?
Posted 8/9/2012 3:18 PM (GMT 0)
Here's what I'm thinking....since you do have some inflammation in the terminal ileum...don't see anything from the cecum, however...but some inflammation changes there, you should be on some kind of oral med.

I believe that any areas of inflammation should be treated. That could be one reason why it's difficult to get the rectum under control.

I would suggest maybe Pentasa which releases at the start of the ileum. That should cover the terminal ileum ....start low dosage and see how it goes.

Good you're experimenting. It could be something in the Rowasa...maybe the preservative. You could ask the doc for the Sulphite free one (prescription)..

I hope it's a hemmie too..

And you've had stool samples done?

Start on the probiotic...

One positive is that you know things do heal...but I think that the upper area should be dealt with regardless...just because.

Are you on fibre supplements as well?
Let me know how the appt with the rectal surgeon goes
q
Posted 8/9/2012 9:15 PM (GMT 0)
ok so i LOVE the rectal surgeon...he's so different from my GI who just kind of leaves me to figure all this out on my own.

SO he did a scope, saw mild-moderate proctitis, he was able to see a clear area, but said it was higher than the 12-15 cm, that the GI thought.

Kind of red and swollen, which explains the rectal pain/pressure.

SO the plan is hydrocortisone enema X 2 weeks - was going to be 10 days but he's going away, so he extended it.

Then it that doesn't work, try Pentasa.

Ordered my probiotics and hopefully will be able to start the enema tonight.

I was kind of thinking I should use a foam steroid...does it come in a foam? SOmething tells me the liquid from this , like the liquid from the rowasa will cause me to have issues??
It's from the liquid I think? It causes me to have frequent stools in the morning before my somewhat normal one. Is that a side effects??

Any thoughts on this?

And yes, I have a tbs of ground flax every morning...it saves me...plus, while I was having the major diarrhea, I was taking calcium tablets, three times a day. It has helped me in the past to absorb the water associated with the diarrhea.
Posted 8/10/2012 6:28 AM (GMT 0)
Pentasa liquid or oral?
There's more liquid in the Pentasa (100ml) compared to Rowasa (60ml). I believe its dosage of mesalamine are 1g, 2g, 4g.
So if the liquid amount is the problem, then that might not be an option.

If the doc puts you on the steroid enema and it doesn't work...then stops it and puts you on oral Pentasa...doesn't make sense. Both together should be the thing to do.

I think it's worth to try the liquid first anyway to see if that's an issue for you....there's always the foam to try or add when he gets back. At least you have a follow-up.

Maybe consider fibre supplements throughout the day in conjunction with your flax. what do you eat it on?

The calcium is good for calming the colon, but I don't know if it absorbs any water associated with diarrhea. The fibre supplements will help better with that.

The probiotics...what did you order?

It's disappointing to hear your GI leaves stuff up to you.

Who did the c-scope?

q
Posted 8/10/2012 9:23 AM (GMT 0)
From what I understood, "if" the steroid enema didn't work after 2 weeks, then he would add a pill, and he mentioned Pentasa?

Well, I can say that I didn't have an issue with the steroid last night. Didn't cause me cramping, and this morning I haven't had to run to the bathroom with the crazy urgency that I did with the ROwasa. So far, at least I know I can handle it...still don't know if it works.

The flax that I use is ground flax and usually I put it in oatmel and eat it that way.

What fibre supp during the day ? What is the benefit of that?
It's interesting that you say that because it's mid day and late afternoon that when I'm in a flare, I have that urgency/ and small amount of air and blood. Only once , but it's usually when I have the biggest issue ( I say that lighlty as I know my issues are nothing compared to what I know they can be!!)

I ordered VSL. I know it's expensive, but I am just doin git for 1 month to get things started. WHen this originally happened to em in 2006, I did it and felt really good.
I'm going to see if my insurance will pay for VSL DS...I think I heard that sometimes they do.
If not, after the month, I will be looking for another one.
I just don't want to start too many new things this month, then I won't know what is causing me the issue, if I have any?


The GI did the scope. He has done them since 2006...I really like him, but if I didn't call him, and suggest things to him, I would never hear from him. And when I do call him,i usually suggest meds, etc..and he's always like " yeah that sounds good"...

This MD sat, listened, looked at the past 3 colonoscopies, listened again, went in, spoke to me about everything he saw, then showed me a picture of what mine looked like.

Had a plan for me, and most importanly a FOLLOW UP!!! I made an appt for september...so he can look again to see if there is improvement.
Posted 8/10/2012 5:21 PM (GMT 0)
woohoo! a good morning for you is worth the change. hard to say what the situation was regarding the Rowasa...but I think it would be worth trying them again, let's say during the taper of the steroid enemas, etc...

It's possible that your breakfast is causing some of your gas, oatmeal would do it bigtime for me.
Can you change to maybe an egg, toast and whatever else? just to see if that will help.

Looking forward to hearing how tonight goes for you...

Again, I encourage to ask for the Pentasa regardless (oral)..low dosage to start to deal with the upper inflammation. I hope you understand my logic on this.

It's nice to have options, and a doctor who will listen and offer them to you. It's so good to hear.

have a feeling better day!
q
Posted 8/10/2012 5:48 PM (GMT 0)
Thanks Quincy!!

I will certainly ask him when I see him for my f/u...I think that's a good idea. I'm kind of worried about the ilieum ulcer, too. Even though it was only one, still bothers me.

I didn't ask him if I should be continuing with the Canasa while doing the steroid enema?

He's on vacation

Any thoughts on this?

I used the steroid last night and today I had no liquid at all, only formed with streaks of blood on them ,not on the TP!! Still pain but after I went, nothing..I usually have urgency and pain for hours after.

Just had very mild urgency today...not ANYTHING close to the past few days.

I did use the canasa this morning, because I think I should?

Plus, this time I am staying on some maintenance...I'm not listening to my GI...if I can get past this flare, I'm going to continue canasa every night forever!!!

Thank you again for your feedback...I'm so lost with this, but hopefully I have found a doctor who will at least follow up with me!!

Posted 8/11/2012 3:28 AM (GMT 0)
Hi...yes, I'd stick with the Canasa daily and the steroid enema nightly.

My thoughts are pretty strong on an oral 5ASA for you...low dosage, yes because of what's going on in the ileum.

It's interesting you had much less reaction with the steroid enema than the Rowasa. So, volume isn't the issue.

I didn't answer you about the fibre supplements. I use them with my meals. The reason is to keep my colon "functioning" well, to even out peristalsis and to keep me regular. As well, it helps to sweep out any "invaders" and helps the probiotic to work more efficiently. I don't eat high fibre/whole fibre breads except on occasion.

I've never used VSL...but many do with much success. Worth a try regarding insurance. I think that's with a doctor's prescription.

I tried a few different probiotics. All seemed to agree with me. I don't usually take a powder one, and wouldn't take them during the day because of the gas. I occasionally take a powder one when I get really bad stomach pains that aren't associated or helped by acid relievers or bentylol.

I still urge you to try a different breakfast, one with protein and good nutrients...I always suggest a boiled egg..lol.. The oatmeal you can add as a snack if you're hungry whenever. I'm curious if you're not using it if it'll help some of your gas/discomfort.

The foam enemas compared to the liquid...I think the foams are lighter. There's a proctofoam which doesn't go into the sigmoid (from what I read), so that might be an option sometimes for you...as well as maybe a steroid suppository instead or with the Canasa if you're only inflamed low enough.

I think you're doing well...one day feeling better is like being 50% better..lol. It's like a breather. You'll find out soon enough if the steroid is working. as well..you'll find out if you can take the Rowasa again.

ah, it's a cluster of frustrations trying to figure it all out. But the options of the basics is where to start. Then branch out from there.

You're welcome, and I'm glad you posted here.

q
Posted 8/11/2012 10:34 AM (GMT 0)
Quincy,

thank you for repsonding to all of my craziness!! This disease is so scary and frustrating...!

So, the enemas seem to be helping with the blood for sure. Day 2 and no blood, and this morning was all formed stool, no liquid. Many formed stool, but better than some formed and some liquid.

I wonder if I was just in a flare and couldn't tolerate the rowasa? I don't know but I am going to give it another try after this is done.

Still some rectal pressure right after I go. I am now realizing that the times I have that RP are immediatly after, and mid afternoon, which prior to this flare would be another normal times for me to go.

Yesterday was great until about mid afternoon, evening. I had mild RP, no appetite and terrible bloating. I started the VSL, took 4 and I'm thinking that could have been the issue.

Plannng to take 2 this am and 2 at night instead.


I also used another canasa late afternoon as well. I think I want to keep enema at night X 14 days, canasa twice daily.

He didn't tell me to taper the enema, so guess I stop at 14 days?

Origanlly he said 10 days, then after my face looked worried, he upped it to 14. Maybe I do daily for 10 days, then every other night until the 14 dasy supply?

I keep reading about all these tapers and I'm concerned. He's away of course, so I can't ask him.


AS for the fiber..you have really peaked my interest with this,

I told you that when I was first dx the first GI told me to use citrucel powder which I did, plus the VSL, plus canasa and that seemed to be what worked.

I'm thinking that I need to up my fiber as my isses start mid afternoon, so maybe I need to take something then to help move things along?

You take Metamucil, tabs right? I think I need to start experimenting today.


I hear you on the oral ASA. it's something that has bothered me from the begining of this. WHy my GI never put me on any.? I even asked him the last time to start Lialda, and he said, " lets wait as the inflammation is only rectal".. he only did a sig flex at that time so maybe there was the one ileal ulcer but he never sae it.

So at my follow up after this round of eds, I;m going to mention it to the rectal surgeon . Anything to help this !!!

ANd the breakfast...hmmmm..i'm worried about the eggs, they don't always feel good when I'm flaring. But now you have be thinking that maybe my stomach issues mid afternoon are from the oatmeal?
I think I need to think of a good protein breakfast while flaring. I just don't know if I can tolerate eggs right now?

It sounds like you have your routine all set!!! Have you had this for a while? And was it a trial and error type thing for you too??
Posted 8/11/2012 8:43 PM (GMT 0)
Yes, trial and error regarding some food, but I was without diagnosis for almost 3 years and focused on only food.  That was until the bleeding started.

I even kept good intake/output diaries for 2 years...I happily got my husband to burn them after diagnosis..lol.

After diagnosis and on meds, my food intake was based on comfort. I had to eat because I had lost so much weight. I always have an appetite, and made my eating fairly simple and mostly for gut comfort (but I'm a meat and potatoes type person, need protein, so that was with pretty much every meal, well cooked veggies, no whole wheat/grain stuff, salads with supper only in smaller amounts). I never did liquid diet. I did take good vitamins from the start...most of which I still use.

The weight gaining stuff was in the evening around 10 pm and that included home made waffles or french toast..lol.

I wasn't working full time, I did hair on my own time and was at classes twice a week evenings. My main meals were breakfast/supper and then later evening after class and then the weight gaining stuff.

Once I started full-time classes, I ate 3 times a day, started gaining weight somewhat, the huge late eating stopped and I just had a snack.


I've not used citrucel, I use the Metamucil capsules for convenience and not having to mix.

Are you using the VSL capsules or the sachets?

yes, it all takes time....which sucks because life happens along the way.

q

Posted 8/11/2012 8:54 PM (GMT 0)
forgot to mention that I saw my GI often with a series of symptoms and why, why's. He answered all, going through the process of healing, etc. Reflaring, symptoms, med increases, changes, blah, blah, blah....until I was given the go ahead to self-medicate with the enemas. Then I understood the symptoms a lot faster, the tapering I tried many different ways....but my life had many crisis events, surgeries, professional adjustments, illness, depression, etc....therapy helped.

The consistency of the meds was easy..but flaring became very inconvenient and I just treated as quickly as possible.

On here, fruitgirl was the one who enforced the twice a week enemas...that's what I maintain (actually every third night is easier, unless I choose to miss one, then I fall into the twice a week category).

The probiotics, I started because of being on antibiotics. It was enforced as a good thing on here, so I continue. The fibre supplements, I started when flaring as a means to help the diarrhea (my GP suggested the metamucil smooth), it helped...eventually I continued because of suggestions on here and my own research as to preferences, etc.

Pretty simple....but it works.

I must admit that the one thing I'm a tad lax about is the fissure and external hemmies. It may very well bite me in the butt because of that...and I know better.

q
Posted 8/12/2012 10:52 AM (GMT 0)
LOVE the comment.." life happens along the way"!! I say that all the time, so true!

I'm kind of glad I have kids/ work/ husband etc...because it takes my mind off of this annoying UP and it's s/s.

Wow, 3 years without a diagnosis? That must have been scary...
and frustrating after all the food diary stuff.

I actually did a diary the last time I had the bad flare. I was training for the NYC marathon and had 2 months until the race with what has been so far the worst flare. Running 20-30 miles a week to train with RP/ urgency does not mix...
But it was the only thing that kept me sane because I could actually see the changes and improvements after I went back to read them. They are so subtle sometimes, it's easy to think you aren't getting better when you are.

Plus I could see exactly what I did to get in to a remission.

I'm doing it again this time and I can actually see where I messed up with not taking the right meds when I had a change in symptoms etc..

I'm using the VSL tablets...but after this month I'm switching, because they are quite expensive.
I'm going to look in to if my insurance will pay? I have been reading that some people have said that their insurance pays for DS?

If I can't, I'm going to be int he market for some suggestions...

As for the Citrucel, vs MEtamucil, do you know the difference ? Or is it just trial and error?
And is there a difference to using powder vs pills? ( besides convenience?)

I saw what you wrote about fruitgirl suggesting the enema for maintenance...so is that all that you do? Three times a week??

I already began the search for a new GI last week, so I will be armed with all sorts of questions for him. I do love the rectal surgeon and will continue with him, but I think I need a good GI...in addtion to the surgeon.


Fissure and hemmies too?? Do they bother you??
Posted 8/12/2012 9:19 PM (GMT 0)
Hi....extreme sports can definitely ramp stuff up to the point where your body will take over and say enough. I would assume there are some personalities that have a difficult time to decrease activity allowing the breathing room to process how to heal.

Yeah, the "life happens along the way" or my favourite "life gets in the way" (aka crap happens) are what's the continual and I wish it would stop sometimes. There's no best time for anything, only opportunity to do what's best at the time or for the long-time.

The almost 3 years without a diagnosis is where I lost 17 pounds over 3 weeks initially. on a 5'8 frame...not so pretty.
My "then" doc didn't do stool samples. I wish she did. That's why I always suggest them to anyone. I didn't know what to eat because I had lots of diarrhea almost consistently. Obvioudly, inflammation was already happening. Only when I got blood, did she do more tests (barium enema...bwahahahahaaaaaaaaaaaaa showed squat), told me how lucky I was to not have UC...but she did send me to my GI, thankfully.

I've not used Citrucel probably because I started with Metamucil. Citrucel is methylcellulose, supposed to be hypoallergenic (some people are allergic to psyllium, so it's a good alternative).
It mentions on their site that insoluble fibre doesn't absorb water...that's not true...think wood/vermiculite.
They both serve good/necessary purpose in the digestive system.

I use the capsules because I don't normally drink "drinks" except for water and coffee. I take them after/with meals, so adding more liquid over and above the normal coffee I like to drink would be UGH!.
It's also convenient to take when I eat out...which I do fairly often.

Try one, try the other...see how you do on them.

I'm in Canada, don't know about the VSL/insurance there....hope you can get it covered. Put out a separate question thread and you'll get responses on what others do.

Since you've had good feedback regarding med/food/symptom the diary....it's a good idea to continue it.

The fissure/external hemmie. They bother me sometimes. I do rip open the fissure often when wiping. The external hemmie...when it's flared, omg...the pain can radiate down along my butt/leg and up to my sacro region. Hard to ignore and worse than UC flaring to me except the white-knuckling bms...different and equally horrible..lol.

I have external/internal proctocedyl and use them when I think about it. But the supps aren't my friend if I have any gas and expel it, only to be reminded that I have to be careful except when on the toilet. Not used to them is more like it...

q
Posted 8/13/2012 9:30 AM (GMT 0)
Yes the marathon and triathalons have been great mentally, and phyiscally for me, but the UP doesn't seem to like them at all. It's always a stress for me when I flare around races...but I manage.

I figure I'm the not the first nor will I be the last person with UP to try to continue with a crazy exercise program.

I'm going to suggest stool samples when I see the CR surgeon in 2 weeks. The GI reports on my colonoscopy said : rule out chron's ( bec of he 1 ilieal ulcer) and rule out celiac for something in my stomach. WHen I asked him about both he was it was fine?

I'm pursuing both those issues, plus stool samples...He is just not dotting all the i's and crossing all the t's as far as Im concerned.

Wow, the hemmies and fissure sounds really painful...I'm sorry you have that, in addition to the UC. Must be horrible during a flare?

I've only had hemmies, and only right after the births of my children...but even for that short time, it was such PAIN!!!

But you haven't flared recently right? You're pretty stable with your maintenance / remission?
Posted 8/13/2012 4:29 PM (GMT 0)
Yes, I'd say stable in remission, but still continue the every 3 nights. This has been a tough year for me regarding deaths and emotional stuff. Let alone the summer...I HATE SUMMER...especially the hot humid stinky days..and we've had many this year. But, totay is a "heather" day...out to do a few things.

And I'd love to know why people have the need to light a freaking fire every night in their back yard and sit around, poisoning the air for anyone else to enjoy. My anger fumes about that crap, and the environmentalists worry about cow farts...give me a break.

ok, i'm off for the day...to report back later..lol.

q
Posted 8/13/2012 4:33 PM (GMT 0)

quincy said...
Yes, I'd say stable in remission, but still continue the every 3 nights. This has been a tough year for me regarding deaths and emotional stuff. Let alone the summer...I HATE SUMMER...especially the hot humid stinky days..and we've had many this year. But, totay is a "heather" day...out to do a few things.

And I'd love to know why people have the need to light a freaking fire every night in their back yard and sit around, poisoning the air for anyone else to enjoy. My anger fumes about that crap, and the environmentalists worry about cow farts...give me a break.

ok, i'm off for the day...to report back later..lol.

q

Don't mean to hijack the thread. But as far as burning fires you are completely right. It's one of those things that people just assume is OK. And they get emotional about it quickly! The evidence proves how harmful fireplaces are to air quality - http://www.samharris.org/blog/item/the-fireplace-delusion/
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