Posted 8/11/2012 5:48 PM (GMT 0)
Sorry I just need to vent. I'm so fed up and stressed out with being sick. I'm starting remicade as soon as I can get an appointment booked on Monday. And I'm only going on it so I can (hopefully) get out of this flare up and get off prednisone. I'm at 35 mg now and tapering 5 mg a week. The pred is making me crazy! I almost broke my coffee table last week and the doors have taken a few kicks as well. I think going to the bathroom 10-15 times a day will put anyone in a bad mood!
I don't sleep much since I'm up in the bathroom all night, I go to bed around 10 then by 1 am I'm up and in the bathroom till 3. Then I sleep for a couple hours and am up again. It's not fun since I have a one year old to take care of. I usually nap in the afternoon when she does just so I can catch up on the sleep I lose during the night. I can't wait to sleep through the night again!
I am ready to have surgery and just be done with this stupid disease. My GI told me at my appointment last week that if remicade doesn't work it's surgery next. I should have got him to do the referral to the surgeon then! I'm going to get him to do it when I see him in 3 weeks, regardless if remicade is working or not. That isn't something I want to be on long term.
Sorry for complaining, I just need to get this off my chest.