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I'm Tired of Being Tired

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Ulcerative Colitis
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Posted 8/14/2012 11:53 PM (GMT 0)
I just gotta say that I am tired of being tired ... with this latest flare, I get the joyous body aches and pain and low stamina. I crave naps and I sleep like the dead (at least lately since I kicked the gas in the middle of the night). I went from 45 minutes of full out cardio on the elliptical to 15-20 minutes of steady repetitions. I cannot do my peak fitness deal (learned from Dr. Mercola and helped me lose 15 pounds before). I can only do 1 round of circuit training instead of my normal 3-4 and for some reason, my shoulders are greatly affected so I am limited in my upper body exercises.

I guess I should be thankful that I can even work out! I wish I can afford Sven the giant Swede for daily massages as that is the only thing that I think would help! I recruit my 13 year old son who has narrow feet with bony heels to stomp on my back and dig his heels into the tight muscles in my back (actually feels sort of good but he doesn't last long).

This post really has no point so feel free to rant about your aches and pains too ...
Posted 8/15/2012 12:01 AM (GMT 0)
Hear hear!! Or is it here here? I just took a day of sleep, sleep, and more sleep. And had just done this on Sunday! Saturday I wanted to go out and do something "fun" and wore myself out for Sunday. I took a nap from 6 to 8pm then slept from 10:00pm to 10:00 am, ate breakfast, slept from like 11:00 - 3:00pm, went to bed at a normal time and slept all night. Last night I slept just fine (8 or 9 hours?) but when I woke up this morning I just had to go back to bed after eating breakfast. I slept for another couple of hours, woke up ate lunch, then went BACK to sleep for another hour. I don't understand how I can be on so much Prednisone (40mgs) and STILL need so much sleep! I had a CBC done recently and my RBC was fine. I'm guessing it's just the fun fun UC.
Posted 8/15/2012 1:37 AM (GMT 0)
I used to be extremely fatigued but I started taking a B-complex and I have been feeling a ton better.

Are you flaring? If so, this can affect the joints. Once a flare is settled down, the joint pains should lessen.
Posted 8/15/2012 2:29 AM (GMT 0)
Texas Girl keep up the good work outs, the circulatory system will get rid of toxins quicker and keep things moving for you.

I really recommend buying little Emergen-C packets of ELECTROLYTES!! These saved me quite a bit from feeling bleh, worn out, fatigued, and dizzy (before & after workouts).

B vitamins as well. :)
Posted 8/15/2012 6:42 PM (GMT 0)
I will certainly look into the B vitamins and the Emergen-C electrolyte packets. I am flaring but this time more with proctitis than colitis. I hurt a LOT more now with this flare than I did with my major flare a few years ago.

IBD just sucks ...

I have discovered that the more I bake outside in the natural sunshine, the better I feel. However, I can only stand it so long in this Texas humidity.
Posted 8/15/2012 9:20 PM (GMT 0)
Just been feeling exhausted myself lately. Like there isn't such a thing as enough sleep. My work is suffering as i have no energy, my workouts at the gym are blaise but I still go everyday so I'm trying. For the most part my diets been great (except last night, what was I thinking eating tacos.... they wer ehomemade organic tacos but still not a good choice....) anyway, I think I will also try the B vitamins might help :)
Posted 8/15/2012 9:59 PM (GMT 0)
I just bought some "Stress B Complex" vitamins. So all of the B's as well as some C, E, and some others. I'm hoping this helps some of the fatigue!
Posted 8/16/2012 12:02 AM (GMT 0)
wow I am not alone then!
I've been on Remicade for the lasts 20 months but for the last few I have been noticing the effects wearing off quickly as well as I started to get joint pain in just one side of my body ( leg and wrist/arm) on top of that all of a sudden I am exhausted! I need to nap daily and get up to 12 hours of sleep daily and still I am forever exhausted.
During my first few flare ups I didn't find I had these symptoms so this is a first and had be a little alarmed but seeing things on here, they seem normal?

I am hoping after my next colonoscopy we can sort out everything and get it under control and hopefully these symptoms will go away.
Posted 8/16/2012 12:13 AM (GMT 0)
I'm tired all the time. I need to look into a B vitamin.
Posted 8/16/2012 12:34 AM (GMT 0)
I would bring new symptoms up with your doctor...but I think tiredness is just standard UC. Whenever my tiredness level increases though, I tend to request a blood test to see if I'm anemic.

I've never heard of pain on one side of the body before though. I've heard random parts either alone or symmetrical (both knees only, both ankles only, one knee, one ankle, two shoulders) but never one side. Sounds uncomfortable. I hope you can get it straightened out.
Posted 8/16/2012 8:30 PM (GMT 0)
I think the tiredness for me stems from two things: #1) food does not stay in me long enough to get all the nutrients I need out of it, I do my best but there is only so much I can do, and #2) I am awoken two to three times a night with urgency and have to go to the bathroom so my sleep is interrupted as well. If I could get my symptoms under control I think that would eliminate both of those things and my energy levels would return. Not rocket science but doesn't mean that it doesn't still suck
Posted 8/16/2012 8:49 PM (GMT 0)
The naturopathic doc gave me B vitamin shots.
Posted 8/17/2012 12:01 AM (GMT 0)
I love my b12 and B complex I wish they'd last longer so I
Wouldn't feel back to my tired "poopy" self HA

Anemia very well could play a role. I can't get mine up fast enough...
Posted 8/17/2012 12:29 AM (GMT 0)
Hi , I haven't been on the forum for a while but my TIREDNESS made me come back for more info. I used to work out a lot , but recently I am feeling so tired, I can sleep 15 hours and still want to nap. I dont know what to do anymore. I am not on a flare, been steady on remicade for years now... Thanks for your suggestions I will look for vit B and more more more electrolytes. Any other thing I should check out? I ran 7.5 k yesterday and today I couldn't get out of bed!!! I'm taking vit d, magnesium and omega-3 oh and a lil bit of paxil (10 mg)....


Thanks in advance for your help!!!!
E

Post Edited (PinkPaperclip) : 8/16/2012 6:34:03 PM (GMT-6)

Posted 8/17/2012 4:04 AM (GMT 0)
Just always be on the lookout for anemia.
Posted 8/17/2012 12:32 PM (GMT 0)
If anyone is feeling extreme fatigue, please go see your doc for a simple blood test. They can check your B's along with your iron count. Oral supplements are good but it depends on how low the counts are. If they are TOO low, it can be dangerous because you will need something a bit stronger (such as shots or infusions).
Posted 8/17/2012 3:50 PM (GMT 0)
I do have to say that I have had recent blood work done. Everything was considered normal, according to lab standards. I don't have the numbers with me but iron and Bs were on the low side of their normal scale.

Oh and I don't know what I did last night but I slept funny because that nerve that runs down the right butt cheek? It is so painful today and I have to walk slowly and deliberately so as to not aggravate it. It was a lot of fun this morning when I had to get to the bathroom fast but I couldn't run to it. I barely made it.
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