Who here is taking Remicaide and happy with it?

Im on it and not happy. In fact, I wouldn't be happy on any medication.

I take max dose 10mg/kg every 6-8 weeks. It gives me light to moderate joint pains every time. It's annoying. It doesn't even work that well for me. It might be doing something, can't really be sure what does what.

so far so good for me.  Sulfasalazine gave me kidney disease, imuran made my liver levels high.....  I am glad I took the plunge!

I have been on Remicade for about 3-4 years now. When I started I was on asacol and prednisone. Remicade treatments were every 8 weeks. I was also put on 6mp. My bleeding would start back up after about six weeks since the last treatment. So we changed to treatment every six weeks. After things got better I was taken off everything but Remicade. I haven't really had any kind of reaction until recently. Now for a short time during the infusion I get a tightness in my chest and it is difficult to take a deep breath. This may last for about 5 mins and then go away. I haven't had any other symptoms

I've been on it for a year. It has been a godsend for me! After years of mildly to moderately flaring and having no meds work for me, Remicade has given me my life back.

I have to pre-medicate in order to stem any reactions and so far it seems to work. When I started, I didn't pre-medicate and my hands swelled horribly. Now they give me IV Solumedrol and Benedryl a half an hour before the infusion. I get mild leg cramps, mild stomach pain and headaches the day of the infusion but the next day I'm right as rain again.

I do notice that around the 7 week mark, my symptoms start to come back tho (I go every 8 weeks).

I have been on it for almost two years. I'm not happy being on this medication because I don't like the idea of supressing my immune system... However I did'nt really get any bad reaction from it. Recently I was diagnosed with chronic sinus infection, wich is not life treathning, but very annoying (headache, lightheadness, post nasal drip, fatigue), and the doctor said it's likely caused by the remicade. I'm am very thankful for that drug because I was in such bad shape when I started that it really did savec my colon, but I would like to find another solution in the long term.