Food Q!

Anyone get full remission for a long period of time with diet alone?

I'm still working on it but I've seen improvment while being on the diet.

I hope that someone will write here who achieved remission through diet.

Yes, some have gotten to remission just on diet alone. That is to say, they were on prescription meds for a few years without improvement but as soon as they started altering their diet, they got into remission.

I personally believe if I weren't on the healthy diet I am currently on, my UC/Crohns would be far worse.

Hehe I love to hear that :) I am starting scd again and so far it is helping :) I am excited to do it now whereas before I was always pissed because I wanted junk food. But I am hoping it will put me in remission!

ChrissySoul said...
Hehe I love to hear that :) I am starting scd again and so far it is helping :) I am excited to do it now whereas before I was always pissed because I wanted junk food. But I am hoping it will put me in remission!

You'd be surprised the junk food you can 'imitate' whilst on SCD. I made myself a hamburger today because I was watching Man vs Food on YouTube and saw all the sandwiches/hamburgers he was eating and got jealous.

I made myself almond flour bread and added some turkey patty (with a bunch of spices), lettuce, pickles, tomato, fried onions and a fried egg. Added some SCD friendly ketchup too. Yummy.

I think that before you focus on the food remission idea, you get stabilised with the meds.
Stick to the food diet you're interested in, but don't believe that you're doing something WRONG.

The more you punish yourself or have a goal that's not even in the ballpark of what you're going thorugh will only confuse you more.

You have a lot on your emotional and physical plate. Hard to keep them all separate without mushing in with each other.

q

But you have to understand the realities. Gluten foods and gluten in beauty products are a different scenario.

It's not going to enter your digestive tract through your hands....be realistic in your thinking. You're thinking from fear mongering of info that's out there and advertising. It's all hype and bullcrap.

You'll keep yourself in a flare perpetually unless you lighten up on something. You have choice in what you believe, and little bits of information to pad a fear won't help you see clearly.
q

Like I mentioned before, you need to get a BS filter in place. Fear is normal when having a new disease, especially like UC when it's easily thought that food will control everything.

The detox wouldn't have caused your UC, but what symptoms were you having before seeing the toxicologist?

Oh, and I forgot to add....you might have had leaky gut syndrome of the colon because of inflammation......some permiability of larger molecules of gluten type foods may have caused you some reaction.  But that doesn't mean you necessarily have an allergy to gluten.  It means that you had a not normal reaction to something that was foreign. 

As you heal, the leaky gut should go away as would your reactions.

q

Well, you need to let yourself off the hook....do like I do and blame my parents based on inherted illness..sadly true.

It sounds as though you were already having some symptoms of mild inflammation anyway. It can take years to actually be obvious. But, we can have IBS as well...and with distress/anxiety...diarrhea can be one of the symptoms.

It's normal for many people to have lactose intolerance...especially with inflammation or a touchy gut. NORMAL!!! So you have it....that you can control with food intake. It's separate from UC.

Your job...maybe you can work on your own being mobile? you can pick your products.

You are who you are Chrissy. You're dealing with a difficult disease that can interfere with every aspect of life. But you need to make some agreements with yourself that it's not your fault.

Many of us think in an all or nothing way....but with what's going on with you....you have to give in to some things. Make a decision and stick with one thing. To me, your main goal at this point is to get off presnisone.

I also think you should seek counselling to have someone face to face who can support YOU.

q

Anxiety meds can help symptoms...but it won't help the why. You need to be heard and to have the tools to deal.

Take a day at a time and try not to seek out too many solutions. I found less is best and build from there. If you start out with too much then one cannot make decisions.

This is something I've learned from the Dog Whisperer. He said that if the mind is an anxiety or fearful state, the information that should be coming in as to what's actually going on is blocked. WE cannot make a decision for a solution that way...we just react, which can end up more times than not making the situation worse.

So, step back. Allow yourself a breather and make one decision regarding food. If you want to give the SCD, ...stick to it for a while and see how you feel on it. It's an experiment and a choice. If it doesn't make a difference, add to it or eliminate some things. You can always adjust. And, my opinion....remove from your thoughts the word illegal.

q

It's all a learning process, and in truth....most of us go through what you are. I did. But I had a few years previous with severe weight loss and I had no choice but to eat. I did stay away from some stuff to help some symptoms. Once I was diagnosed, it was a relief.

You're welcome Chrissy....this is a huge learning curve that needs your attention consciously. You can't do everything and expect a result. It all takes time. So, that's why I say stick to one thing diet-wise. Work on the prednisone taper. Request the rectal meds...and if the doc won't give them to you now, ask for them when you're maybe around 5mg.
Consider the alternating taper or ask the doc if you can taper in smaller incriments.

Do something nice for yourself as well...maybe get a foot massage. That always feels good.

q

Nice Chrissy ! Massage will be nice. Enjoy!!!!

That's my profession! I know it will help:)