Gastrocrom (Sodium Cromolyn)

Just thought I'd post this, been meaning to find somewhere to share. I have had UC since 1992 with my first pregnancy. I had pan-colitis in 2006 and from then to 2011 I was hospitalized on 7 different occasion for 5-14 days. I cannot take the 5ASAs and have tried natural therapies, SCD, food combining, herbal remedies anti-narcotic meds (can't recall the name right now) and then onto Remicade, Humira and most recently suggested Cimzia. These biologics have caused permanent nerve damage in my body because I mounted an immune response to them. When I called in my last reaction to Humira into the pharmacy that dispensed it I spoke with the pharmacist that filled out the information to report my reaction. We got to chatting and I shared my story of how I did not want surgery and that was seeming like my only option. She asked if I ever tried Gastrocrom. I never even heard of it but researched it and found 1 study in the early 1970's. Long story short I went into another flair, my doctor agreed to try the oral solution. It took 4 months to stop bleeding but only because the UC in my rectum wouldn't heal without steriod enemas which after an 10 week course healed and I have been free from bleeding for over 2 months now. I am healthier than I have been in years and this benign medication really works. Its intended for another disesase but in the study in the 1970s with UC there was over 95% success of remission in those taking it. Unheard of but given my results I believe it to be true.
If you are struggling I strongly urge you to give this medication a try. The hardest thing is structuring your eating so you can take it on an empty stomach 4 times a day but you can do it and the results are short of miraculous. I started out with 800 mg and now take 1600 mg/day. There is a formula that you can do to see what your maximum dose could be. I am still at only 60% of my maximum allowable daily dose. This stuff really works and for those of you still suffering I highly recommend it. There are little if any side effects and only 1% of your dosage is absorbed out of your colon so the medicine stays where it is needed and the rest of your body doesn't not get affected. I hope this helps those of you facing surgery and still fighting!

This is a mast cell stablilizer, old tech from years ago,cheap.
Biologics are all the rage,perhaps many younger docs never heard of it.
New is not always better.
Old Mike

Cromolyn is used in an asthma inhaler (preventer) and in eye drops to help prevent inflammation/reactions.
My eyes got worse on it, and I didn't feel good on the asthma inhaler.

But definitely worth a shot with the oral if it's available.

Welcome to the forum .

q

Probiotic, I read that article and I'm not convinced the study was well designed. They used an oral delivery of 800 mg, because that's what an earlier study found to be effective for use as an enema. However, another earlier study, which also showed a positive effect, used 2g for the oral route and treated for 6 months instead of just four weeks in this study.