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Ulcerative Colitis
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Posted 9/29/2012 1:50 AM (GMT 0)
Just so fed up guys. May have a bowel infection which is why ivig didn't work. Starting Humira on Tuesday. Really sad today.
Posted 9/29/2012 2:00 AM (GMT 0)
Yeah, I was fed up a month after being diagnosed. So yeah, you should be fed up.
Posted 9/29/2012 2:14 AM (GMT 0)
Sorry to hear you are in the hospital.
Posted 9/29/2012 5:07 PM (GMT 0)
Sorry . I hope u get some relief soon. It will get better
Posted 9/29/2012 5:34 PM (GMT 0)
Thank you. Still here. Antibiotics seem to be working as I haven't bee to the bathroom for 3 whole hours!! Silly buggers gave me chili for lunch!
I feel awful though. Very weak. Heart racing. It's good to be in isolation though with my own room/ bathroom but I'm so restless with feeling so poorly. Don't know what I'm going to do about work on Monday.
Posted 9/29/2012 5:47 PM (GMT 0)
Yikes...chili!!, lol.

Do you know what type of infection bug you have?

Hope the meds get you stable before the Humira...

Feel better soon,
q
Posted 9/29/2012 5:59 PM (GMT 0)
Thanks Quincy. Chili!! Couldn't believe it. Came with a side of mandarin oranges soaked in liquid sugar. Needless to say I haven't touched it.

They suspect an infection but still waiting the results of the cultures. It's possible I had an infection with the flare, went for ivig which made things worse. I don't understand that logic since antibodies are supposed to help fight infections. Anyway I'm on flagyl & ceftriaxine (sp?) which is helping with the d. Still feel pretty awful.

I don't know how I drove home from work yesterday. Was in tears because I felt so bad. I actually thought to myself " if this is what death feels like then just end it now God." Dropped my car off and took a cab to hospital.
Posted 9/29/2012 6:10 PM (GMT 0)
Wow...sounds as though it was the best decision. I take it you're hooked up to an IV? Maybe someone you know can bring you something basic to eat like an egg and plain toast...just to keep up your strength?
But it's good you have a bit of a toilet break.

IvIg isn't an antibiotic, and i would assume if you already had a bowel infection, it would continue regardless. I hope the results come back soon from the samples.

What are all the other meds you're taking?

q
Posted 9/29/2012 6:50 PM (GMT 0)
Q: I'm in isolation so no visitors. Very bored.

Ivig is antibodies so I thought it would ward off an infection.

I was on asacol 800mg x 4 but for that last 2 weeks its been going through me whole. As using corifoam enema at night. Immidium/ fiber when needed. And of course ivig which was best thing until recently. I have ordered mutaflor probiotic. Am very concerned about starting Humira when so weak.
Posted 9/29/2012 7:10 PM (GMT 0)
Why mutaflor? Have you been on other probiotics before? if yes...which ones?

Has your doc had you on other 5ASA oral meds?

Sucks you're in isolation, but better that you are.

q
Posted 9/29/2012 7:13 PM (GMT 0)
I've tried various probiotics over the years. Stumbled across an article on mutaflor and thought I'd try it.

I believe I've tried other Asa's throughout the years too
Posted 9/29/2012 7:27 PM (GMT 0)
I'm sorry, but Chili??? Wow. I hope you can order your own food soon?

I can understand your concern about starting Humira while so weak. Have you brought up your concerns with your doctors? Whenever I've had some sort of concern like that and asked, they explained their logic and it made me feel sooo much better. There's sometimes alot that go into their decisions that they just don't think or have time to share unless you ask.

Glad you are doing better though! Hopefully Humira will work even more! Go go Humira power!
Posted 9/29/2012 8:09 PM (GMT 0)
ActiveUCer: thanks for the wishes. My GI isn't at this hospital so I can't share my concerns yet. Hopefully I can reach him on Monday... If I ever get out of here! I seriously feel awful though. Very anxious as well. Can't even watch tv.

I did just go after 6 hrs ( whoo hoo!) but I just passed gas and a little stuff came out. Nothing formed. What do u think this means? Is it because I've barely eaten in 2 days? Is it a sign things are improving just by slowing down?
Posted 9/29/2012 8:21 PM (GMT 0)
I think if you haven't even passed blood and mucous for six hours, then that's definitely a good thing! When I was really bad and even NPO, I was still going every 30 minutes with just blood and mucous. So if that stuff as improved, then think you are slowing down.

Plus, as you pointed out, not eating in 2 days will also help you not pass anything but I still think you are improving.
Posted 9/29/2012 8:37 PM (GMT 0)
Ok. Thanks. Was thinking the same , but of course second guessing myself. Must stop doing that !
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