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Ulcerative Colitis
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Posted 10/17/2012 3:47 PM (GMT 0)
I am in a flare-up right now, taking salofalk at night and cortifoam in the morning (i'm supposed to do it daily, but i do Salofalk 3-4 times a week and cortifoam every day). My inflammation is not too bad about 16 cm inflamed in the lower part. it usually takes about a month until it goes away and another month until remission. Very little to no blood lost now. Going to the washroom with a lot less pain and less frequent that in remission.

One of the things i am feeling more than anything right now is extreme tiredness (worse than any other time i have ever had). I'm still pushing myself to be active, but waking up is really hard and I am exhausted during the day.. My question is, does anyone take any pills or foods that help out with this?
Posted 10/17/2012 3:55 PM (GMT 0)
Not sure about certain foods, or pills, but I've noticed the fatigue as well. This is my first flare, and I was stubborn in the beginning. I didn't want to use this as an excuse on why I couldn't be active. Well, I pushed myself to hard, and hit a wall a few weeks back. After a much needed rest week from my workouts, I've slowly started adding it back in. I allow myself more rest days, but am almost back to where I was. So my advice is allow yourself extra rest when you can, while in this flare, you may just have to scale back, and then get back to normal once its under control.

I would like to hear what others have done, in regards to foods. I have no interest in taking any more meds :)

- Adam
Posted 10/17/2012 4:47 PM (GMT 0)
UC is an autoimmune disease where your immune system is out of wack and overworks. Not only is your immune system attacking your colon but it is also trying to heal your colon at the same time. This increased activity, which never seems to stop, causes you to be tired. The answer is to fix your UC. Easier said than done.
Posted 10/17/2012 4:58 PM (GMT 0)
I had a really bad flare a few years ago and have been in remission ever since, but my B12 levels went unchecked the entire time. I'd always felt like I didn't have as much energy as I should, so I asked my doctor to check my B12 (unbelievably he never thought to do it himself, even though I had lost so much blood during my flare). My levels were very low, and I had a bunch of shots to get my levels up. You absolutely should have your level checked. An untreated B12 deficiency can do irreversible damage to your nervous system. I was beginning to have numbness in my hands and feet and was told I may never get rid of it. Thankfully my treatment made it go away. Don't wait!
Posted 10/17/2012 5:17 PM (GMT 0)
thanks Kiss520, I'm actually getting numbness in my fingers a lot quicker (kind of like it falls asleep). I'll get that checked out. I feel like right now, i can barely keep my eyes open.
Posted 10/17/2012 5:41 PM (GMT 0)
That's exactly how I felt - like my hands and feet were asleep. And I was so tired I couldn't find the motivation to do anything. Do get it checked. If you don't like needles, they can do under-the-tongue supplements that are effective, too.
Posted 10/19/2012 6:00 PM (GMT 0)
I've been dealing with a lot of fatigue all year during my persistent flare-up (long story short, insurance wouldn't cover any meds for a while), but usually, the only debilitating fatigue I get while on my meds is RIGHT before I drastically improve and feel great. However, it's been about a month since I had that drastic improvement, and while I'm still getting better and better each day, I'm still feeling exhausted all the time. I'm having trouble waking up earlier than absolutely necessary to get to work; I'm still very tired by the time I go to bed; and I spent a lot of time at work just staring at the computer, not able to get a lot of work done. I thought it might be the Asacol (I'm on a very high dose), but I'm definitely going to look into B12 deficiency. That actually might explain it!
Posted 10/28/2012 9:27 PM (GMT 0)
Interestingly enough, my blood work came back and I do have a B12 deficiency. Which explains why i am tired and my hands and legs are falling asleep quickly.

I started taking pills and I go back soon to see if i need an injection.

How much B12 do you take?
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