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Thinking it is UC...

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Ulcerative Colitis
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Posted 11/4/2012 6:48 PM (GMT 0)
Hello everyone,


I am new here.

I started having bleeding with mucus on October 1. Family doctor referred me for a Colonoscopy on October 27.

The surgeon told me in the Recovery Room that my colon has a "very bad rash" and inflammation.

I have been prescribed Anusol-HC (hydrocortisone) suppositories 10 mg. (They are not doing much so far.)

Next, I am being sent to an Internal Medicine doctor next week.

The Colonoscopy Clinic ordered the usual tests for UC, including: CBC, ESR, CRP, etc. as well as the Colonoscopy tissue biopsy.

I will learn those results in 2-3 weeks, I am told.

For over 10 years, I have been dealing with a triad of hot flashes (flushing), racing heart and diarrhea. At one point, I was referred to an Endocrinologist for Carcinoid Syndrome tests. They were negative. (Thank goodness.) Menopause tests are negative, too.

In 1998, I took Accutane. I have read that there has been an association between Accutane usage and the development of UC. Starting to wonder now.

Not happy to likely have this condition, but the blood finally showing up seems to tie up many loose ends and create a clearer picture of what is causing my triad of miserable symptoms.
Posted 11/4/2012 8:20 PM (GMT 0)
If it is UC from Accutane you may be able to join some kind of litigation or start some on your own.
Posted 11/5/2012 4:11 AM (GMT 0)
I am sorry you might have UC but I understand being happy about finally getting a diagnosis after struggling with symptoms for so long. Hopefully it's a bacteria and you can get it under control with antibiotics but whatever happens, we are here for you.
Posted 11/5/2012 2:14 PM (GMT 0)
emmalee,

Welcome to the forum.

I am so sorry for your recent diagnosis, and your years of suffering.

Gary is right, there are lawsuits out there for those who took accutane and developed UC.

Do you have a good GI?

Different drugs work differently for some than others and is not a guarantee of success. You may have to try different one to find the ones that work best for you.

Regular meds, including prednisone failed me. And then when my doc gave me a choice of remicade or colon removal, I said no to both.

What I found helped me most was: diet modification as in going gluten and dairy free (doing the Paleo diet), certain supplements like probiotics, slippery elm powder, and L-Glutamine, and LDN - low dose naltrexone.

There are things IMO that you can control, which will have a direct impact on your disease, the symptoms you experience and their severity.

I was able to control my UC into remission through various supplements, probiotics, diet modification, and LDN , low dose naltrexone.

 

For more info on the protocol which has put me into remission, please go to this link: https://www.healingwell.com/community/default.aspx?f=38&m=1666318 , and look at the 11th post.

I hope you feel better and let us know how we can help you.

Posted 11/6/2012 1:18 PM (GMT 0)
How can u prove accutane contributed when they can blame anything on the cause
Posted 11/6/2012 1:18 PM (GMT 0)
Such as smoking?
Posted 11/6/2012 1:20 PM (GMT 0)
Mind you I was also on roaccitane but many here weren't.. Sorry just wondering the grounds for lawsuit..
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