mixed signals

I'm sure not getting clear messages from my body, what's going on?

Overall I'm feeling way better than I did just over a week ago when I was doing 25+ poops a day.

I started tapering my prednisone yesterday. So I am at 35 mg.

I have retained a half a salofalk enema four nights in a row. Still a lot of breathing and nausea with those.

I'm having urgency that wakes me up now but the frequency is way down. When I'm home I know the sign to get myself to the bathroom ( nausea and sometimes a cramp) so I'm not having as many accidents as I was when I was just having sharty squirts. The accidents are more problematic though as there is much more volume. (My pads aren't enough)

There is a lot less blood and much more formed poop.

When I do have some form to my poop, I feel so sick when I pass them.

It seems I'm experiencing a cycle of one good energetic day, one mediocre day and one day when I need to nap before I go for a walk with my dog. I'm lucky that I can nap in afternoon and after supper

On the days when I'm not feeling so great (every third day or so) and sometimes on the mediocre day, when I eat, I get very cold and very tired.

Today I joined the "I pooped my pants when I wasn't at home club"
I lost control trying to get to my pail in the van...at least it wasn't in the store.

Thanks gary, that's the message I got earlier from my questions. I am following my GPs instructions, not my GI (I can't get a hold of him) My GP did give me some leeway as far as saying if I get worse during my taper I can stand at the dose.

What I'm struggling with is that some of it is way better. Your saying stay till its all much better.

Any harm in going back to 40 mg of prednisone? I don't think I'm going to go lower at the moment anyways. I hate it (resent it) that I get to play doctor but maybe that's just the way it is. They don't really know either.

Thanks for your input