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So am I going back into a flare....AGAIN???

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Ulcerative Colitis
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Posted 11/16/2012 2:52 AM (GMT 0)
So ever since the weekend when I had some horrible emotional stress, my BMs have been watery.  Each day I was going about 2-4 times a day, although today I've only went once (just now) and it wasn't too much.  Plus now I feel constipated even though my BM still wasn't really formed.

I've been following a low-fiber diet since Saturday.  I am not seeing any blood but am having alot of rumbling and gas in my intestines (although I always have alot of gas).  Before last weekend, I had completely formed stool.  I have been feeling nauseas on and off some days although today I didn't seem to have that problem.  I do have left-sided lower abdomen pain but it isn't very consistent it seems.  I don't have any joint pains like I usually would and don't feel tired all the time either. But I am getting upper abdomen/stomach cramps about once a day and I take hycosamine to help with that.

I should also mention I really didn't eat anything last weekend other than a little soup and 2 pieces of toast the whole weekend.

I was just about to get off the Prednisone, could this be another flare or is my body still trying to recover from what I went through last weekend?  Tomorrow is Friday and I'm trying to decide if I call the doctor or not or if I wait till Monday to see what happens.  I'm sure he will be none too happy to hear from me as I've had to call alot over the past 10 months of trying to get better. It sucks that I'm afraid to call the doctor's office, I wish it wasn't that way.  They seem annoyed when I call now!  I also don't really want to go back up on the Prednisone. Tapering it has really made my hair fall out, its getting so thing I can see my scalp :(

Posted 11/16/2012 3:27 AM (GMT 0)
I am very sorry you're stressed. I am feeling a little off lately too, maybe it's the weather change? Try to stay positive. If you're on 2.5mg of pred, it is a common time to have problems. I reflared when I was practically off pred but it doesn't mean it's going to happen to you. Stay strong, stay on 2.5 a little longer if it enables you to stay flare free. Are you still doing 2 enemas a day? Woud you consider steroid enemas? That may help you to taper off. I doesn't sound like you're doing badly, just a little rocky, you may just be in an adjustment and things will level out.
Posted 11/16/2012 3:57 AM (GMT 0)
Well, my boyfriend of over 6 years broke up with me last Friday, or said he needed 'time away' which pretty much seemed like a break up either way.  So that is what caused the UC to act up. That and not really eating or drinking for 2 days.  I was almost 99% positive I was going into remission last week. I was going to go off the Prednisone this week but decided to stay on it after what happened.  Now almost a week later and things still aren't getting back to what they were a week ago.  I'm wondering if its just IBS or if I have to give in and admit I am flaring again.

I've asked my GI for the steroid enemas, but he just said that is 'just replacing one steroid (prednisone) for another' and didn't want to give them to me.  I know he'll suggest I go on Methotrexate now, but I'm confident I was finally getting into remission by slowing my taper on Prednisone as I was fine until all this happened last Friday.  I've been on the 2.5mg for over 3 weeks now so my body has definitely adjusted to that dose.  I just was so close to being better, if only this hadn't happened (for many reasons) I'd probably be back to 'normal' and off the Prednisone right now. 

Posted 11/16/2012 4:33 AM (GMT 0)
Why metho and not 6mp or imuran? I don't think methotrexate has a great track record for treating UC. My GI was open to letting me try it but it didn't sound like a good possibility it would help.

I am sorry to hear about your break up too. What a terrible time to go through that :(
Posted 11/16/2012 4:45 AM (GMT 0)
I tried Imuran over the summer and it seemed to cause issues with my pancreas. GI said methotrexate has worked for a lot of patients who can't take Imuran/6mp. I just didnt want to go on it before trying a slower taper of Prednisone which seemed to be working.
Posted 11/16/2012 5:16 PM (GMT 0)
So this morning I've felt horribly sick. I've went to the bathroom 3 times already just since I got up.  In fact I got woken up at 6:30am because I had to go to the bathroom and that never happens to me.  I finally caved in and left a message for my GI.  As usual, the secretary sounded completely annoyed and left me no faith they will call me back.  I'm almost positive I won't hear from them and then I'll have to go through the weekend being sick, until I can call them back Monday. 

I am sooooo tired now too, I'm sure after going to the bathroom 3 times this is normal.  I still don't see blood though.  Am I going to have to go back up on the Prednisone again?  At this point I guess I just want to get better. My hair is falling out at an astronomical rate, my gut always rumbles and aches and I feel so tired.  I was working out at the gym everyday last week, I just want to get back to that so it will take my mind off of things. I guess that's one thing about getting sicker, there gets to a point where you don't care what you have to take to just get better!

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