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Posted 12/4/2012 5:37 PM (GMT 0)
I'm glad to say I've been finally been able to regain some of the weight that I lost for the 1st time since getting uc. A month ago, I was down to 128.5 pounds which is the lowest I've weighed since high school and my family and friends were saying I was looking very frail and acting kinda weak. Since getting uc, I had lost just over 30 pounds, and I was loosing weight at a rate of about 1/2 a pound each and every week.

I'm now back up to 136 pounds, back at the gym regularly, and feeling much healthier overall. Now the trick is to cut back on the extra calories I've been consuming each day and see if I can stabilize here at this weight *fingers crossed*. So, if you're currently flaring or just diagnosed with uc, know you can and will regain the weight you lost. It just took me a heck of a lot longer than I might've liked...
Posted 12/4/2012 5:50 PM (GMT 0)
I went from 155 to 130 in 6 weeks during my flare, since going on pred I was back at 150 in 2 weeks. Of course my body looks a lot worse now than it did at 155. Sucks because I was in great shape when all this happened.

I'm wondering if I'll drop some lbs. after I taper off the prednisone, I do feel a little bloated, but I think the weight gain was mainly from easing massive amounts of food after not being able to eat anything at all for a month and a half.
Posted 12/4/2012 5:53 PM (GMT 0)
Mattcs, prednisone causes weight-gain and if it isn't uniform (or where you want it) then working out should take care of it.
Posted 12/4/2012 5:55 PM (GMT 0)
it's definitely hard to gain weight during a flare so good for you. my first bad flare, i went from 130 to 92 lbs. i was able to get up to 115 lbs after that but then again, another flare, and down to 84 lbs. i don't look my age at all anymore- my roommate in the hospital last week thought i was 13!
Posted 12/4/2012 7:24 PM (GMT 0)
It's hard to gain weight in a flare so good for you! :) At my sickest I got down to 97lbs, I'm small boned 5'6" but even on me I looked like a skeleton. Can you believe that people actually thought I was anorexic???? I'm now at 145lbs and I have never looked healthier :)
Posted 12/4/2012 7:30 PM (GMT 0)
red, i can't even count how many times my dad called me anorexic. it hurt my feelings a lot- i heard it from my GI doctor and his nutritionist, too. totally rude and uncalled for. aren't they supposed to be the ones who understand the weight loss??
Posted 12/4/2012 8:31 PM (GMT 0)
Yeah, that's sad Joanna :( I've always had a fast metabolism so even before I got sick people wouldn't really comment on my 100lb weight because they knew I was thin all my life. But after I had my kids, gained a little weight, flared and lost it all those same people then started wondering if I was anorexic. People just don't understand but that's disappointing to hear your GI say that! Geez
Posted 12/4/2012 8:45 PM (GMT 0)
Ive got about 9 of the 11 kilos ive lost during hospital visit as well. Though not very uniform. Huge prednisone belly :)
Posted 12/4/2012 9:10 PM (GMT 0)
I agree; that's pretty weak for Joanna's GI and dad to call her anorexic. As a flare hits us all hard both physically and emotionally as it is, so there's no need to add insult to injury.

Based on what everyone said, we are cumulatively averaging 31.2 pounds of weight loss during a flare. Talk about a serious hit to our systems. Haha maybe I should bulk up just a little more, in preparation for the next inevitable flare. As it's not a matter of 'if' rather it's a matter of 'when' the next one will occur...
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