Advice needed on whether to go for Colectomy

All,

I am a new member here. Thank you everyone and the moderators for the excellent resources available. My wife is having UC and was diagnosed as such in the year 2006. 6 to 7 stools per day.Initial colonoscopy done in Aug 2006( and biopsy ) graded as active phase lesion and negative for dysplasia. Started with Asacol 2400 mg with 40 mg of prednisolone tapered over a period of three months and was just on Asacol alone. No flare ups for next two years and hence we stopped Asacol for some time. Started it again on second flare up ( Jan 2009) and continuing it from then. We had a second child in Feb 2012 and she had a flare up again in July 2012 went back on Steroids ( 40 MG).

We did a second colonoscopy couple of days back and are awaitng biopsy results , wioll post it once available.

Colonoscopy results are as below.

Perenial Area : Normal

Digital Exam : Normal

Rectum: Normal

Sigmoid colon: Has Pseudopolyposis and nodularity suggesting dysplasia / Mitosis for 15 cms.

Transvers / Ascending / Cecum / Ileum : Normal

GI is suggesting that we go for colectomy because of pseudopolypoids and he is saying it will become cancerous in two years.

I expect feedback from other members. Thx in advance.

On Asacol 2400 mg

Post Edited (Indi_74) : 12/13/2012 12:14:01 AM (GMT-7)

Sure will do that as well

If I had a biopsy report come back with dysplasia, I imagine I'd have surgery ASAP. It's not something with which I'd want to take a "wait and see" approach.

With UC, I wouldn't do a partial colectomy. It just doesn't make sense to me.

Indi,

Welcome to the forum.

Sorry about your wife's recent results.

I definitely agree with probiotic about getting a high level Mayo or Cleveland Clinic type second opinion.

I would recommend you look into LDN, low dose naltrexone. It has a good track record of putting people in remission with UC and Crohns, but in addition has been used with all stages of cancers with success, and has also been shown to prevent cancer. Let me know if you need all the links, and i will post them for you. BTW, don't expect your doctor to tell you about it, because they don't generally see it as a viable drug because its' not one big pharma makes money on. But you can get this prescribed generally through an open minded GP or a holistic type doctor.

I think ItsAlwaysSomething also had dysplasia initially, and her doc wanted to do surgery, but she didn't want to, and looked at certain alternatives (slippery elm powder, L-Glutamine, LDN, plus others), and now after 2 follow up colonoscopies has no signs or dysplasia... perhaps the moderators could put you in touch directly?

My best advice to you would be to look at all your options, do lots of research, get some second opinions, and even third one if you need to. Just because 1 doctor says surgery, doesn't necessarily mean that's a final decision. You need more medical input, IMO.

Let me know how we can help you.

 

Hmm, mayo or cleveland clinic (or some american or british facility of equal repute) may even have branched out to Dubai now... It wouldnt surprise me at all. However, their mothership facilities are best of course, and one would have to fly there- in which case, they would want you there for a full work week and they would put you through a battery of colonoscpy, CT scan- the works. You'd stay in an adjacent hotel. Note that while advanced on conventional medicine, those places are still blinded to alternative and complementary medicine adjunct (or alternative altogether) therapies, so I second InSoFla's advice to also seek out an integrative type doc open to such therapies as a second track to pursue as well. Anyway, that's great news that it's now negative for dysplasia.

Post Edited (Probiotic) : 12/14/2012 8:54:44 AM (GMT-7)