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Posted 12/21/2012 3:10 AM (GMT 0)
My body is on a rebellion. I woke up two mornings ago with a blister on my eyeball. Who the heck gets blisters on their eyeballs!!! I can't believe this. shakehead

I've also been having trouble with my leg. It feels like I did about a million stairs. Just the one. (I guess I will be thankful it's not both) Anyways, turns out my IT band is inflamed! Great day.

Sadly my D is increasing, as is the urgency. I've started with night time ones too but then weirdly I had three poops with form yesterday and the odd one with no blood. (I'm hoping that my recent start of VSL#3 is helping)

We are in the midst of a big storm here in Northern Ontario, and I pooped my pants mid way through snowblowing the driveway. I couldn't run with my sore IT band. What's the saying...when it rains, it pours?

I'm also fighting a cold and some pretty nasty headaches. I just want to sleep all the time. I'm pushing along because I've got my kids coming home! My youngest daughter arrived yesterday. smilewinkgrin

Is this the nightmare(s) that comes with using prednisone? (rather the discontinuation of) I'm down to one this week.

Thanks for listening. I'm off to bed.
Posted 12/21/2012 10:30 AM (GMT 0)
I hope you're sleeping well. I'm sorry you're feeling so miserable. Have you seen a doctor? Get better soon.
Posted 12/21/2012 12:47 PM (GMT 0)
IT band?

This "blister" is on your actual eye or your eyelid? If it's on your eyelid, it might be a stye but if it's on your actual eye, you should have that checked out by the eye doc.
Posted 12/21/2012 3:10 PM (GMT 0)
ugh, you sound miserable. If it is on the eyelid, you can try really hot compresses. If it is a sty, that will help. I hope you feel better. Can you call your doc and get your pred upped at least to get you through the holidays?
Posted 12/21/2012 3:26 PM (GMT 0)
So sorry you aren't feeling well.
I strained my IT-band last summer. Took a few weeks to get back to normal.
Make sure you stretch it really good twice a day.
Posted 12/21/2012 6:44 PM (GMT 0)
The blister is on my eyeball. I went to the eye doctor about it and he asked me if my UC was flaring at the moment. To which I said, yes. He said this type of stuff is not uncommon with inflammatory diseases. I have drops to put in every two hours and an ointment to put in overnight. It's already tons better today.

The IT band is the ileo tibeal band. It runs on the side of the upper leg down to below the knee. I broke my kneecap pretty badly about five years ago and I suppose it would be vulnerable to get inflamed. It's still bad timing. Jay, did you do ultrasound or anything besides stretching? I really can't put a lot of weight on this leg and definitely no stairs. I will stretch as per your reminder, thanks.

I was up four times during the night, the slow walking caused me to have accidents, so that is miserable.

Anyways, I'm glad I could post this here, and not to make you guys all miserable. It sure helps to have others who know what it's about, to tell. Thanks for the comments.
Posted 12/21/2012 6:50 PM (GMT 0)
No, I didn't have an ultrasound, just went to see my physical therapist from when I broke my ankle. He gave me some stretches to do, and I looked some up on youtube.
I wore a band on my knee for a few weeks when I was able to run again. The wrap helped to keep my IT band stationary and not rub on my knee joint.

Massaging it in a perpendicular direction was a bit painful, but helped to break down the scar tissue.
Posted 12/22/2012 12:29 AM (GMT 0)
Lodi,

Sorry to hear about all the issues you are now going through.

Sounds like your immune system is "depressed", and you badly need a boost to it.

How about considering LDN, which would modulate your immune system, make it stronger, and probably help a whole bunch of your symptoms? What do you think?

For right now, I would also recommend you double up on the VSL.

I hope you feel better soon. :-)

Posted 12/22/2012 1:22 AM (GMT 0)
I'm so sorry that you're feeling miserable. Maybe things will improve with your kids arriving.

I think the others have given some great advice.

My best wishes for a Healthier Holiday Season! :-)
Posted 12/22/2012 5:02 AM (GMT 0)
Thanks again for the responses.

InSoFla, I made a valiant attempt to get LDN prescribed but I never succeeded. I also heard of a contact on YahooGroups who supposedly could help a persone source some. I never heard from them and I never tried again. I don't have all the information anymore either. I'm in Canada, so if anyone knows of a direction...? BTW, I'm trying Miracle Whey Protein Powder again and it doesn't seem to be making things worse.

The VSL, I'm just starting, so my plan is to get to four sachets a day. I was 'warned' not to start too fast.

It does help to have your near and dear ones around. I'm really lucky. Everyone is home now and safe! My son and his wife want us all to go to their house for dinner tomorrow and I don't think I'm going. I'm having too many accidents and their only bathroom is upstairs. Is it OK to take immodium? and what does it do? Stop the D, or just give you a couple minutes warning?

Jay, I meant ultrasound treatments to reduce inflammation. It's something that physiotherapists do.

tonight my eye is still improving, the IT problem is still pretty bad. I went to 16 BMs today compared to 18 yesterday. One 'accident' today compared to 5 yesterday. Less blood today for sure so hopefully things are improving with the VSL.
Posted 12/23/2012 12:05 AM (GMT 0)
Lodi,

Sorry you couldn't get script for LDN.

Email me and I'll tell you how to get it.

On the VSL, yes it's best to go slow.

If the Immodium helps you, definitely take it until you can get things under better control.

Enjoy your family, and the Holiday!

And I hope you'll be feeling better soon.

Posted 12/23/2012 1:55 AM (GMT 0)
You really have had the miseries. I understand how things go, my GI said Immodium was good for traveling since I also have accidents. The prescription drugs that help that have not worked for me and the immodium does.


What is LDN?
Posted 12/23/2012 12:29 PM (GMT 0)
Linda, LDN is low dose naltrexone.

Dr. Jill Smith of Penn State, did 2 studies showing a high percentage of those with Crohns go into remission due to LDN. LDN is drug that's been around since the 80's, and is cheap (around $30. per month), has virtually no side effects. Problem is doctors don't like to prescribe it, so you generally need a holistic doctor to do so.

It works for both UC and Crohns patients.

If you're interested, you can go to this link and  find out about it: 

I was able to control my UC into remission through various supplements, probiotics, diet modification, and LDN , low dose naltrexone.

For more info on the protocol which has put me into remission, please go to this link: https://www.healingwell.com/community/default.aspx?f=38&m=1666318 , and look at the 11th post.

I hope you feel better and let us know how we can help you.

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