Humira users

lemonhead you had a formed stool already??? This is marvelous! wow

I feel like I have a cold :( I'm tired all day and I feel that tightness in my chest. I have a doctors appointment at 1:15 today to have a look. I want to be checked for mono. I've been so tired lately.

Yep, solid and hard to get out. Just went again before lunch. Urgency wasn't too bad, formed, but still really thin. I have also been really tired....I think it is part trying to fight this disease and part that the weather is so cold and nasty out. That it gets dark at 5:30 and it is just a bit depressing!

linda, what kind of iron are you getting? the infusions are pretty easy- just make sure your nurse isn't a total moron. i had a nurse one time that set up the drip machine wrong and my entire infusion went into me in 15 minutes.

4 hours? that is totally weird. iron infusions are typically only 1 hr long. i know blood transfusions are 4 hours though.

yeah, might as well be safe than sorry. i had a bad reaction at my last one so it's definitely possible.

as for it helping my energy, that would be a no. i usually called them my placebo infusions haha i had 14 total and the highest my iron ever got to was 25. i don't think they are very effective.

Insurance denied my Humira!! They won't even consider it without an appeal which could take several days to weeks....time that I don't have!! I've been told to call and see if they will cover Remicade under the Medical part of my plan, not prescription....but I'm not holding my breath. Afraid I'll end up in the hospital very soon....so scared and frustrated!!

I agree with lemonhead. You have to appeal!

Why would they cover remicade over Humira ? Humira is cheaper and you don't need an infusion center for it to be administered. Doesn't make sense to me!

Hope get some relief ! Good luck.

i finally figured out why it's been taking me forever to get humira (started the process 12/10). apparently, i have two accounts with the walgreens pharmacy. i knew something weird was going on when i spoke with them on the phone last week. the rep asked me if i had dealt with them before and i told them yes, when i was on remicade. she said that wasn't in my file and i told her it should be since i had 5 infusions. well, she said not to worry about it. this week on the phone, i mentioned that i had been denied for the humira insurance and the lady said she'd get back to me as of why.

so this is what's been happening. when i first started with walgreens pharmacy in aug 2011 for my remicade, they had been been spelling my name "joanne schupp." i had corrected them repeatedly but i guess they never changed it. when insurance sent out my approval for humira to the pharmacy, a new account was created with "joanna schupp." well, for the past month, each time i'd be on the phone with them, some information would go into the "joanne" account and half the info would go into the "joanna" account. i always wondered why i kept repeating all the same info on the phone ALL the time but i figured they were just airheads and disorganized. turns out, my $5 copay was denied for "joanne" because that person doesn't exist but it was approved for "joanna." also, all my walgreens and humira mail has been going to my dad's house where i have never lived. i have told them my address i don't know how many times and my dad and i don't talk often so i never know what comes in the mail.


anyway, my mom called and straightened everything out so i should HOPEFULLY get my pens today at MY address. if not, then, i give up.

Dont give up joanna, I think this will really help you!

I started on Dec. 18th with my loading dose on January 1st I did two more shots, but I think one only took the second spilled out everywhere. On this Tuesday I take another shot. I do feel a difference, not so inflammed and less bleeding in the last few days. It was a rough two weeks after my loading dose, I'm not going to lie. I said to myself, you can forget this, I'm not doing any more shots. I was bleeding so bad! I was sick with the flu it felt like. I didn't change of shower for three days and I'm a two day shower kind of person. I like to soak my butt because I poo so much.

The day before my second round of shots on December 31st, I started to feel better. Right now I'm achy, feel like I got a little bit of tightness in my chest, like my body is fighting something. HOWEVER, I'm not running to the bathroom as much, less diarreah and bloody mix and my gut spasms are way down!

I will give it the three months they suggest, I heard so many great things about it!

I'm on NO meds now whatsoever for my UC. I tried asacol the other day for two days, had a splitting headache and urgency and nervousness that I remember I had when I was on all that stuff before. So I said forget it. My doc didn't say to get on it, but I was trying to help the bleeding. I'm going to stick to rectal meds if I need them.
I've got to do my shot right this Tuesday! No goof ups on my part. I will push that pen firmly into my gut, take the f-in wasp sting and be done with it!

YEAH!!!I saw you on fb banangirl, you have no fricken fat girl! If you feel better will you add more fatty foods into you diet do you think? I wish you didn't have to wait so long, but you have to I know. I have no patience! But at least you have the pens! I can't wait until you start!!!!