Humira users

Is there any kind of assistance for the Humira? It cost me the same for every week as it did for every two. Just a thought. Maybe you can check.

Gi actually told me I would be better off if I got divorced and got fired from my job. He said if I was on Welfare, I would have EVERYTHING covered. I have to pay 25% of the cost. 2250/month for 2x a month, 4500/month for 4x. So, 1140 for the month at 4x, minus the 500 that Humira gives me. It is too much.

My insurance co must be shaking their heads as my scrips keep coming in.

Yeah, my insurance changes Jan. 1 to a 4 tier system. Of course, Humira is tier 4, so I pay 25% It totally sucks.

I think for UC you need that loading dose.for psoriasis the loading dose is 2 injections first time out . Why one?????

Well, 2 months since starting Humira.. 3 weeks since finishing pred and symptoms seem to be starting to reappear past two-three days! :-( Maintaining faith though! Back in hospital on Weds so Id say they will put me up to weekly injection. I'm off to NYC on Thurs - had to get Valium off the doc as Im terrified of flying! Its 8hour flight too!

How are you doing Lemonhead?

Lemonhead, I have been using Humira once every 2 weeks since september 2012
I had been on asacol and canasa leading up to using Humira. My UC was very bad (20-25 bm w/blood). My GI quit my Asacol and started me on 40mg prednisone and Imuran until the Humira came in. The prednisone didnt help me like it should and the UC was still winning after a month. After being on the Humira for 6-8 weeks, I slowly got better. My GI eventually took me off the Imuran and tapered my prednisone to 0 while I was on the Humira. I am currently just using the Humira every 2 weeks and feel fine. I have gained 30+ pounds since October 2012 and the urgency and frequency is gone. I feel like Humira is a miracle drug. Looking back to where I was last year, I was sick alot! I just hope everyone has the success I have enjoyed these past few months.

just got off the phone with my GI. CRP levels normal. Not sure why I am having so many issues still. Loose stool, urgency. Not sure if it is something I am eating???

ok, my symptoms seem to return 4-5 days before my next shot. He wants to put me on weekly injections but I can not afford it. I started on Wellbutrin on Friday, but have not seen any improvement at all in anything. My mood is still bad, my energy level stinks, and I actually think it may make my UC worse. I am going to give it a week and see what happens. Thanks for asking. How are you all doing?

I will be 7 weeks off pred in 2 days. Can't believe how fast the time has gone. At this stage, there is still no blood, sometimes I've noticed a tiny bit of mucous here and there. Not formed but semi-formed - still can look quite losoe and unformed. Urgency is still there. Going 2-3 times daily most days and sometimes only once a day. Still on the gastro tablets and Imuran. I notice when I eat 'junk' then I get worse. Trying to be good food-wise this week.

Last time I had my bloods taken I had just finished steroids so my levels were ok. Going to get them taken again in the next couple of weeks and see how they are. I also noticed my symptoms become more urgent 3-5 days before my Humira injection. Just did my 12th week shot last Weds! Hoping it keeps up - I'm really enjoying some normality for a change and my moonface has finally gone! I'm definitely not functioning 100% but I'm hoping I won't get any worse. New York was amazing and I think I appreciated it so much more being able to actually go on a holiday! Us U'C'ers take nothing for granted haha.

Doing OK. I was upped to one shot a week, but I have been taking them every 9 days instead of every week. The extra 2 days makes me feel better about it.....not sure why. Things are better, I still have good days and bad, but they are manageable. I am really looking forward to the Vedoluzimab to come out. I still constantly worry about getting every little bug that comes around (I have my first yeast infection in 20 years). I am also finding that the shots hurt a bit more every time I take one....but that just could be my head. Hope everyone else is seeing improvement.

Ps: How is this new Vedoluzimab administered?