Humira users

Thought I'd chime in here. There does not seem to be a whole lot of Humira users (on the UC side of things) on HW. My GI was much higher on Humira than Remicade, but perhaps he wants to keep the Remicade in the arsenal if Humira fails me.

Anyway, I just did my first single shot (week 4) yesterday. Other than a minor minor sore throat the day after the shot, no side effects seem to be present. I was coming out of a very bad flare (12-15 times a day, lots of blood and pain). I'm still on 25 mg of Pred, but I honestly believe the Pred does little to nothing as my UC is mostly steroid refractory. At this point, I'm going once a day with good form (still can't shake the mucus though). Hopefully to pull into full remission in the next 2-4 weeks.

9x400mg Asacol
Humira
6 x VSL #3
2500 mg Fish Oil
1 Critical Care Probiotic
25 mg Prednisone (tapering)
1 SfRowasa Every Other Night

Lemonhead, have you ever been able to obtain remission? Have you come close with Humira?

I'm pretty similar to you Lemonhead! On a good day ill go once a day. Most days I'm between 1-3 bms. Still mainly loose now at this stage though. I've been bad since last night all of a sudden so I'm hoping I just caught a bug and its not a flare! Andy that sounds really positive. I'm on Humira since Dec 13th. Hoping its working so far!

Humira Update: woke up this morning delighted with myself - 12 week mark off steroids (which is a major milestone for me) and no bad symptoms! Went to my GI appointment NS my blood results from yest show everything normal - bones, iron, B12, liver, no inflammation etc.

However, i had been a bit crampy all day. I literally got home and went to the toilet for a kind of pretend bm and there was b!! :-( I had just had my week 18 shot of Humira three hours previous to this. So my thinking (hoping) is - maybe it is Hems or else the spicy dinner I had yest and the gluten (bread) I've had the past two-three days or maybe it's because the Humira was out of my system after the 14 days?! I'm also due my period which seems to make me worse. It's just there has been no b at all and now this has given me a fright! Hoping my next bm will be better! Going to be extra strict with diet for next few days!

I'm hoping that is the main cause! Obviously there must be some inflammation still there. Hopefully the Humira shot I did today will kick in! How are you doing now?

Mine have gotten less and less formed. I'm still 1-2 bms a day but yesterday was 3-4. Are you still finding your symptoms begin to show a couple days before your Humira shot? Back to no gluten now - I had gotten sloppy the past few days. I'm anxious because usually when I see any B then it spirals from there! Counting on the Humira!

Feeling ok today, just crampy. It's 1.40pm here and no bms so far today so that's good! Yes I'm the same, sloppy and disintegrated and just plain weird looking! Been very good with my diet so far today -staying gluten-free. I really feel better without gluten! I'll see after next bm what it looks like! Hopefully there'll be no blood and that will be a good sign!

Hey, sorry you are not feeling well. I have been OK. I take the shots every week now, but have also been trying that amino acid therapy on another thread. So, I don't know which is doing the most good. Can you talk to your doctor about moving to once a week shots? That really helped me. I was seeing symptoms again at about 10 days. My doctor explained that there isn't enough med to only take it every 2 weeks, that almost everyone has to go on once a week shots. Hope you feel better!!

Minners-there is a thread on here (10 pages) You will find info there. If you want more, shoot me an e-mail and I will tell you about my experience.

I just switched to weekly injections as of last week. The IBD specialist said that I didn't see improvements that I could adjust to double doses every 2 weeks instead of single weekly injections.

The Humira hasn't really worked for me at all. It usually wears off in 3-4 days before I start bleeding again with urgency and frequency increasing.

After upping my dosage last week the bloating and pain in my abdomen went away for a few days but it has returned today. Ugh. I'm trying to make it to October before I go for surgery, that is my goal.

Andy, I was thinking I wouldn't have to take Asacol on Himira. Bummer. $wise
You give me hope, however! Go Andy!

So the once a week 40mg dosage is not working for me (I had a spare 40mg pen at home and used it a week early per my IBD specialists instructions), so the new plan is to switch to 80mgs every other week to see if that works.

I am going to have to fight with my insurance company to get it approved since this is not a standard UC dosage. In the mean-time my IBD specialist is giving me (2) sample humira pens until I get the insurance approved. Very happy that I am getting some Humira samples because I don't think I could survive staying out of the hospital with this brutal flare without it.

He also wrote me a script for Uceris once a day and that seems to be working the last couple of days.

So i'm new to the site and started taking Humaria in June 2013. Finally off the prednisone but just recently had a flare up. I have read that a lot of you are taking Humaria weekly compared to bi-weekly. Has this helped a lot of you? Also, what supplements are you taking in conjunction to the Humaria and other meds you are on? I heard Omega 3 is a good one to take and I am actually going to pick some up on the way home today with some multi vitamins.

A quick break down of myself and how I found out about UC. My mother has it and was diagnosed around the same age, i'm 29 / Male. Last year, 2012, i was having sever pain in my abdomen and having frequent loose, bloody BMs. Me being stubborn, I did not see a doctor right away. The doctor said that it was pretty bad but did not extend so far up that surgery is needed....at this time. He started me on Asacol HD with 6x 800mg pills a day (3 times a day.) This seemed to work a little after being diagnosed and I felt like a million bucks. I had a few flare up since last June/July when I was diagnosed but all have been brought back under control with the prednisone i was on, which i started Dec 23, 2012. I would get flare ups every time i tried to taper off but I am finally off with Humaria.

I just want to see what everyone else does and uses. Why do a lot of you go Gluten free? I think i may need to eliminate popcorn when possible and avoid high fiber foods.