Posted 1/18/2013 10:39 AM (GMT 0)
After a good five months of suffering with mono, or mono-like symptoms, I will be approaching my GI doctor next week to at the very least delay Remicade. The week after my last infusion my mono-ish symptoms came back terribly... and I had been feeling better every day up to the infusion.
I'm going to ask...
-Can we find out if the Remi is just allowing mono to stick around, or am I experiencing antibodies to Remi?
-I will not have my next Remi infusion. Minimum for me will be a 4 week extension without it.
-I want to try LDN. I think my body would react favorably based on intuition and knowing my body.
-Can I go back on Pentasa? (the only mesalamine to make a difference for me)
-How important would a drug like Cymbalta be for me, in terms of keeping a flare away? (My IBS issues went away to a great extent while on Cymbalta, but I've just recently tapered off due to sexual side-effects).
I figure my option is to be off Remi, on Pentasa, trying LDN... and have Humira as my back-up. Risky? Yes and no. I've missed more work from this mono-type problem in the last few months than I've ever missed in the same amount of time from UC.
Anything else you can think of to better handle this situation, or ideas to try??? Thank you.