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If I get into remission, I promise to...

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Posted 1/30/2013 2:35 AM (GMT 0)
- Never eat fried foods or sugary junk again.
- Always get enough sleep.
- Not let myself get super stressed out.
- Never miss another dose of my meds.

Anyone else make deals like this when they're feeling miserable?
smhair what are some of yours? Help me take my mind off this unbearable cramping that wont allow me to sleep. Have I done enough complaining tonight? yeah

Post Edited (Sara14) : 3/12/2014 1:55:57 PM (GMT-6)

Posted 1/30/2013 2:59 AM (GMT 0)
Haha - I do this pretty much 100% word for word...

I also promise myself I will no longer go out "looking sick" - i.e. not caring about my appearance. I tend to slack in the dress nice department when flaring as I'm more concerned about how I'm going to make it out the darn door - let alone the drive to wherever I am trying to get to.

- I will always keep my home clean and organized. I slack in this department when I'm flaring.
- I will exercise every day. Without exception.

More than anything I promise myself I'm going to "start over" as soon as I begin to feel better. Over the years I've lost count of how many Today is the first day of the new me days...

:)

Feel better soon!
Posted 1/30/2013 3:10 AM (GMT 0)
LOL. Ive done the same thing...numerous times!! Glad Im not the only one. And thanks. :)
Posted 1/30/2013 3:18 AM (GMT 0)
Does anyone actually keep these promises? I doubt it, as soon as I start feeling better I let some of them go with the excuse that I'm feeling better I deserve a treat... lol

Good luck with your promises
Posted 1/30/2013 3:31 AM (GMT 0)
Haha - me too!! But this time it's going to be different... ;)
Posted 1/30/2013 3:53 AM (GMT 0)
haha mark. i always look like a homeless person. it's kind of depressing. most of my clothes are just too baggy right now and i keep saying- oh i'll be wearing them again in no time and it's been like a year! my style is leggings and a bathrobe even though i am always shopping online.

i promise to fart as much as possible, go running a lot, go to the park, volunteer somewhere. i really miss volunteering. i used to be a hospital volunteer for 4 years and it was so fun. granted, i probably wouldn't pick the hospital at this moment since i HATE being in them.
Posted 1/30/2013 4:29 AM (GMT 0)
I do this too. Mostly when flaring but I have been having trouble with my changing of lifestyle in regard to diet. I need to lose weight and I keep saying I'll start when I feel better. I should not start today because my body might not get enough nutrients. I am too sick to exercise today ill start when I am better. But right now it feels like it will never be better.

Post Edited (Teddtlove) : 1/29/2013 9:59:08 PM (GMT-7)

Posted 1/30/2013 4:38 AM (GMT 0)
I try not to make promises other than take my medicine at all times.

I've learned that sometimes it doesn't matter what you do, flares are always inevitable.
Posted 1/30/2013 4:58 AM (GMT 0)
I can't tell you how many times I've said I would never drink alcohol again. Unrelated to UC sadly.
Posted 1/30/2013 5:10 AM (GMT 0)
I've never made any promises as mentioned. I use my meds and have learned to recognise symptoms that determine flare (no matter how subtle) so that I increase rectal meds, or lack thereof that determines cessation of symptoms continually so that I start the tapering to maintenance.

q
Posted 1/30/2013 5:27 AM (GMT 0)
bananagirl

That made me laugh seriously hard as I'm rockin the bathrobe look right now! (It's my last remaining piece)

Also I'm enduring another prednisone ummm... sleeplessness, jittery, wide awake night.

Actually, the last "the new me day" i went through which was recent, I woke up, spent the day throwing anything homeless style/excessively baggy out - which was essentially everything and went shopping to replace everything with new, very dressy clothes. Then had everything tailored to perfectly fit the new skinny me.... I should add this whole project was entirely prednisone induced!

Funny thing is - The other day I went to the hospital for some tests (shirt, tie, overcoat etc) as now that's all I actually have to wear - and when a nurse came to the desk in the waiting area to look for something as the receptionist had stepped away, she asked if she could "assist" me with anything! I said to her, I'm here for my appointment and she said ohhhh, I'm sorry, you don't look like a patient! I was like Exactly! but she didn't get it... was totally funny to me though. Was something to smile about for the rest of the day.

Ugggg... I wonder what funky, fun project the prednisone will bring me this time around... I call it the Christmas Drug - cause every time I take it I always have one specific day when I start to come down off it and I wake up, look around at my place say to myself - what the heck kinda shinanigans went on here?
Posted 1/30/2013 8:00 AM (GMT 0)
Ahh yes. The lies that cone out when you think youre dying/not getting better. Guilty.
Posted 1/30/2013 12:46 PM (GMT 0)
Omg Mark that is too funny!! Thanks for the laughs. I also totally rock the bathrobe look when I'm not feeling well. Either that or pajama pants all day.
Posted 3/12/2014 7:57 PM (GMT 0)
Well, big surprise, I didn't keep any of my promises. I'm currently working on new ones. This time I'm REALLY never eating sugar or processed foods again or ever missing an enema. No excuses... When will I learn?
Posted 3/12/2014 8:03 PM (GMT 0)
My remission promise to myself is always to go out, enjoy myself and catch up on life that I've missed.

I particularly like to eat out when I'm in remission. No point paying for food only to end up running straight to the toilet when I've flared up.
Posted 3/12/2014 8:06 PM (GMT 0)
I promise to keep all the stressful, crazy people I know at a distance so their drama doesn't pull me down! Too bad 98% of them are family. Te good news is they live on the other side of the country!

Oh, and I will do better about treats. I'm good with avoiding sugar, but every now and then I can't help it!

Stef
Posted 3/12/2014 8:15 PM (GMT 0)
I made a promise to myself to exercise a lot more and keep my stress levels down. Limit junk food and processed foods as much as possible. I can make a delicious home made meal and know all the ingredients that go into it.

I also want to stop worrying about my weight and gain at least 10lbs. That's always been a big problem with me, obsessed with becoming overweight, even though my weight has always been too low. Now that I've lost weight when flaring I look like skin and bones, I can't stand looking at myself in the mirror. So hard to keep on weight when flaring. =(
Posted 3/12/2014 8:28 PM (GMT 0)

Stef said...
I promise to keep all the stressful, crazy people I know at a distance so their drama doesn't pull me down! Too bad 98% of them are family. Te good news is they live on the other side of the country!

This, exactly. Well, except for the fact that we all live in the same neighborhood and work at the same small business. shocked

Two of the three (my dad most of all) are knee jerk reactionaries, bombastic, loud, constantly apoplectic, jumping to conclusions, etc.

I've managed the last four years to become very zen-like (I guess that's the term) and can basically retreat into an 'inner castle' when they're freaking about something be it work or personal. Sometimes it's almost comical something happens that affect us both equally and they're like drunken monkeys and I'm thinking OK let's think about this, chill out guys.

Sometimes I think they think I'm lazy or not busy at work, so I'll purposely close my eyes, rub my hand hard over my face and hair and sigh heavily once or twice just so we'll be on the same level emotionally, haha. Even doing that for pretend can kind of stress you out.

But I promise all the things y'all have said with not stressing out easily being number one.

Post Edited (Levi) : 3/12/2014 2:31:33 PM (GMT-6)

Posted 3/12/2014 10:10 PM (GMT 0)
What I promised myself is I would do all the things impossible to do while flaring. The biggest one I haven't kept is go to France lol. I have travelled a LOT more (7,000 miles by van) and taken long walks on the beach and in the woods.

Agree with the sentiment to stay away from stressful people, I quit playing tennis with a group of mean biddies (can't call 'em grrrls).

Eating things that caused problems before is so much more appreciated by me. I scream for ice cream!

I'm still planning on France but not this year or next. My sig. other is not a long distance travel lover so that is the hold-back not UC. Always good to have at least one unrealized dream. :-)
Posted 3/12/2014 11:25 PM (GMT 0)
I've not stopped traveling or working or teaching my weekend class. I mostly do what I want or need to do. Obviously not at 100%, but I've slowly learned to adjust to my reduced energy levels.

I would do anything - anything - if remission were possible.

I'll finally have to give in and let this lay me up when I have my surgeries. (But I'm secretly planning to slip a trip to PA in the last week before I go back to work between surgeries. Shhhh. :) )
Posted 3/12/2014 11:43 PM (GMT 0)
I promised I would leave my job and go back to school when I got better (I'll consider my condition now within the terms of 'remission' for purposes of the thread)... and I am currently doing just that :) But I think that's easier to stick to than never eating sugary things again!
Posted 3/12/2014 11:49 PM (GMT 0)
You all are so strong, so brave. I admire the heck out of you all.
Posted 3/13/2014 12:21 AM (GMT 0)
I promised on J-pouch.org many years ago that if I ever went into remission they would
be the first to know, you guys will be second.
Lets see something like 28 years and some months so far since last remission.
Old Mike
Posted 3/13/2014 12:23 AM (GMT 0)
How do you live with this Old Mike?
Posted 3/13/2014 12:39 AM (GMT 0)
I almost start promising myself things.
But then I don't.

I don't promise I won't mess up.

I suppose I usually promise that if I can get into remission that I will always take my pills exactly as I should. Since early in my disease I ran out of Lialda and that made everything worse.
So that's a lesson learned the hard way.

But I don't promise anything food wise. Cuz so far, food hasnt seemed to affect my flare/uc at all.

How about if I can get into remission... I PROMISE to make it worth it. I will volunteer and donate and work my butt off to advocate for myself, my fellow UC sufferers... and everyone with IBD!!
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