inflixmab

Hi Dan,

Sorry to hear you ended up in the hospital. It's scary when your body doesn't cooperate and you get the doctors throwring around options you can't digest yet.

Infliximab is remicade and there re a bunch of people who are using that. It sounds like you've been battling this or awhile? Why don't you give some information , like what your diagnosis is and what you've tried.

There's a few here who've had surgery too and their only regret was that they dint have it sooner.

I hope you're omfortable enough that you can get some rest. I was just in for eight days and I just tried to rest and not worry about what I didn't have control over...like what's going on at home etc. the doctor started the testing to see if I was a candidate for infliximab but I ended up on imuran . Many here have pointed out that even though these drugs have so many scary side effects listed, they're safer than doing a lot of our daily activities. It's certainly not a great option to be home with blood and out of on troll diarrhea.

I hope you're feeling better and start recovering over this flare.

Good luck

What country are you in? I'm sorry you are in such a bad spot right now but it sounds to me like you need to educate yourself more about this disease instead of just doing whatever the doctors say. There are nontraditional things which help or even put you into remission such as probiotics, natural supplements and diet changes. What put you into remissions before, and did you keep up with treatments even while in remission?

Remicade helped me achieve remission after a 18 month flare.
My GI took me through doubling my Lialda, Hurmia and finally 6MP. Ended up in the hospital for 5 days after not reacting well with 6MP.
My GI recommended Remicade and it has worked very well for me. Was able to get off Prednisone after being on it for almost the whole 18 months.
There is a loading phase with Remicade, so don't expect things to improve right away. Usually take up to 5 infusions before symptoms improve. I saw improvements after 3 infusions.

Wasn't thrilled with the fact of having to resort to bioliogics to achieve remission, but that's what it took, so I'm going with it.

Since the list of medications to try is growing much shorter this might be a good time to meet with a few surgeons just in case things go south.
Find someone that wins your trust and can answer all your questions. jpouch.org is a great place to start looking for approved surgeons in your area.

Really hope Remicade works as well for you as it did for me.