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in the hospital with c.diff

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Ulcerative Colitis
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Posted 2/8/2013 9:51 PM (GMT 0)
So sorry :( Hope you feel better soon.
Posted 2/8/2013 9:55 PM (GMT 0)
Hey Johanna,
Hang in there... I'm sending you tons of healing vibes. So sorry you are going through all this.
Feel better xo
Posted 2/8/2013 10:23 PM (GMT 0)
So sorry that Humira went so bad for you.
Posted 2/8/2013 10:58 PM (GMT 0)
So sorry, Joanna. :(

I hope you atleast have yummy liquids and the hospital has good cable channels.

Get better soon!
Posted 2/8/2013 11:24 PM (GMT 0)
UGH Joanna I am so sorry you're going through this!! If it helps at all, please don't stress out about Flagyl worsening your UC -- it actually helped my symptoms significantly, even though I'm one of those who believes my flare came on from overuse of antibiotics in the first place.

Hope you get some relief soon, will be sending good vibes your way
Posted 2/9/2013 12:38 AM (GMT 0)
I just saw this and I am saying prayers for you!
Hang in there!

Look at every single thing they are sticking your IV! I got very sick the last time I was in the hospital because they were substituting drugs in the same family that was ordered. Unfortunately, this made my crohns disease freak out and I didn't realize why I was spiraling out of control until it was too late. This taught me a valuable lesson to pay special attention and accept NO drug substitutes, even if they are in the same drug family! Also, beware of the "liquids" they are bringing. The broth packets are full of trash. If someone can bring you homemade organic chicken broth made with the bones boiled to release all the healing marrow, that would be a good liquid for you.

Lots of gentle hugs and prayers!!
Posted 2/9/2013 1:51 AM (GMT 0)
also, the doctor has had me on all clear liquids and the snack lady just brought me pork chops with biscuits and gravy. oh hospitals.

I'm sorry, I chuckled a bit at that. Sounds so utterly typical of my hospital.

On another note, I've never heard of Humira causing c.diff, if it was me, I'd query the docs about that one. I suppose 7 docs wouldn't be wrong, but...

Really dumb question, but I presume a false positive wouldn't be possible? What's happening to you right now sounds fairly similar to what happened to me a month after I began Remicade: ending up in hospital with high fevers, pain, and foul-smelling diarrhoea. But I tested negative for c.diff, so I dunno. At any rate, I do hope you get well soon, bananagirl.
Posted 2/9/2013 2:33 AM (GMT 0)
Wish you well.
Posted 2/9/2013 4:36 AM (GMT 0)
OMG> I got worse immediatley after my Humira shot 2.5 weeks ago. Diarrhea & cramping- got put on Flagyl - helped for 2 days. Now I'm also on COrtenemas twice a day & I am so swollen that I could barely get the tip inserted tonight,. Sure hope I don't follow your path - took my 2nd shot 12 hours ago......great.....

So sorry to hear of this all for you & will keep you in my prayers.
Posted 2/9/2013 5:44 PM (GMT 0)
hey everyone!! i'm so happy i have all of you "with" me on this. i wish i could reply to everyone but i'm really out of it and my hands can only type so much with the iv/constant bloodwork.

well today has been better. my fever is gone and my pain is lessening. it seems the vancomycin is doing a better job than the flagyl. i've been getting lots of bloodwork and my hemoglobin is hanging out around 9 at the moment which isn't too bad.

my mom's been bringing me chicken bone broth all week and i never want to drink it again. same with juice. i've overdosed on them and i used to love them! i'll just consider them sick foods now.

the doctor came in today and said his team doesn't want me to go home until they see drastic improvement with the diarrhea. they just said it would be pointless to send me home because i'd be dehydrated so quickly. i'm still going on average once an hour so i hope this gets under control soon. my butthole is VERY sore. it's crazy how your body still produces poop out of no actual food.

the doctors have ordered me psyllium fiber laxatives. the nurses give them to me with all my meds but i never take them. they said it's to bulk but psyllium always increases my bowel movements with UC so i'd prefer for my BM's to go in the opposite direction.
Posted 2/9/2013 8:42 PM (GMT 0)
You should take the psyllium...it will also help flush out the c.diff
q
Posted 2/9/2013 9:39 PM (GMT 0)
Holy moly Joanna! I was talking to a friend and she said she was taking Humira for arthritis and it did the same thing to her colon (perferating it or something like that) and I hope you will call the manufacturing when you are up and moving, stable and well to tell this medication is F-up! I did! My colon won't stop moving and I swear my D is MUCH worse since stopping it! My doc wanted me to continue taking it too! Yeah they wouldn't take this Shi! if they ask to, I bet.

I hope you will get better and better and better! That's were a medication can cause C-Diff and it's not an antibiotic.

Prayers and positive thoughts to you!
HUGS for you!!!!
Linda
Posted 2/10/2013 1:15 AM (GMT 0)
Glad you had better day :)

As much as a hospital stay stinks better to be there and getting meds and keeping hydrated.

I know...after I was in hospital last year I never wanted to see a cup of broth or juice ever again.

Do you have anything to soothe your bum? Cream, anything? Once you get home you can take some long warm baths.
Posted 2/10/2013 4:04 PM (GMT 0)
I'm glad you're on the mend :p

As horrible as it is staying in hospital, I think the docs are doing the right thing keeping you in. I feel your butthole pain, oh dear god do I feel it. In lieu of a European-style bidet, I have found a squeezy bottle filled with warm water to be the next best thing. It is unfortunately far from perfect since it doesn't wash away all the poop and so you still have to do some tentative dabbing with toilet paper.

You should probably try the psyllium as Quincy suggested, but admittedly I don't know much about it. Flushing out the c.diff sounds like a good thing, though.
Posted 2/10/2013 4:37 PM (GMT 0)
I was so glad to read your latest post! It is good to read you are feeling a bit better today:)

You have brought back memories of my last experience with uncontrolled diarrhea while I in the hospital. I ended up in metabolic acidosis due to the frequent bathroom trips. I never want to see another bag of potassium or Magnesium again :P

I will keep praying so you can get out of there and get home to your own bed soon!
Posted 2/10/2013 8:46 PM (GMT 0)
your thoughts and prayers are really doing the trick!

i got another xray done today and the ileus is all gone. the vanco is working thankfully. i'm still bleeding, but my bm's are done a lot. the last few days they were between 17-25x a day and so far i've only gone 3x. most of the pain is gone but i'm still having some cramping. doctors think i can go home by tuesday so i'm hoping for the best!!!

my gastro here said i can stop the flagyl and just go with the vanco but i told him i'd rather stick to both just to make sure the c diff is DEAD. i do not even wanna risk that nasty bugger coming back. my mom ordered me some sacro b probiotics that are coming in the mail.

i'm very sleepy though since most of you know it's impossible to sleep when people are coming in the room at all hours of the day.

my mom's been staying with me throughout the day and i had a visit from my dad. he keeps saying i'm starving myself and i'm anorexic (hello- i'm on an all liquid diet!) and is bringing food to my room forcing it in my face. he's being really psycho and immature but i'm so used to his nonsense.
Posted 2/11/2013 12:56 AM (GMT 0)
Jo, I'm glad you're getting better! I hope you can stay on that road.

Try putting a towel on your eyes/around your ears, it might help with your sleeping. I had to do that when I was in the hospital as a kid.


Hope you heal up great, dear. :)
Posted 2/11/2013 12:59 AM (GMT 0)
I have been following your story here. I am glad you are feeling better. I was so worried about you. Just know that I am thinking about you and I am so glad you are on the mend. Get out of there fast!! Feel better and I will look forward to when you can eat real food.
Posted 2/11/2013 1:08 AM (GMT 0)
Glad your doing so much better. Hope you get to go home soon!
Posted 2/11/2013 2:13 PM (GMT 0)
Hi Joanna,

Please keep us posted! I hope you get to go home tomorrow!
Linda
Posted 2/11/2013 8:04 PM (GMT 0)
got to go home today!

my hemoglobin levels were 9.9 this morning which is the highest they've been since i was diagnosed with UC. i'm thrilled even though it's still pretty low. i hope they stay up but i'm worried since i'm still bleeding a lot.

my doctor took me off flagyl and is keeping me on vanco. my insurance is covering it thankfully since it can be expensive.

my sacro b probiotics haven't come yet but i'm waiting for them!! i need to make some yogurt when i get the energy. i don't really have any food in the house since i haven't eaten here since last tuesday (almost a week). i'm still pretty weak just from not sleeping and obviously pooping/bleeding so much so i'll need to make some big meals to last me a few days.

it feels good to be out of here. my hands and arms have marks all over them and my right elbow is super swollen. there's a big ball of scar tissue on the inside of my elbow from it being the repeated source of bloodwork/ivs. it's very hard to bend and i wonder if scar tissue goes away on its own or just stays there. it's not comfortable.

i'm retaining a bit of water from all the iv fluids which is good since that means i'm not having as much diarrhea. it's most justly loose stool now so i'm VERY used to that.

Posted 2/11/2013 8:17 PM (GMT 0)
yeah! Enjoy some restful and peaceful sleep!
Posted 2/11/2013 8:33 PM (GMT 0)
glad you made it home and that your insurance is covering the vanco! Before my UC diagnosis my PCP thought I had C Diff and really wanted to put me on vanco but the insurance company refused (I didn't have c. diff anyway so I guess it was a moot point).

A heating pad can help with the scar tissue from IVs/blood draws, I have a little lump of it on my hand from where they put THREE IVs in the same hand during my surgery (***). It'll go away on its own too over time but I think the heating pad speeds up the process
Posted 2/11/2013 9:52 PM (GMT 0)
Welcome home!
Posted 2/11/2013 11:35 PM (GMT 0)
Glad you are home!

Good idea on the heating pad. A super warm washcloth on the spot will help too. I always get huge lumps on my hands after IVs. My elbow veins are shot so they have to use my hand which I hate!

Enjoy sleeping in your bed!!!!
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