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Muscle/skeletal pain and Remicade?

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Ulcerative Colitis
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Posted 2/13/2013 2:04 AM (GMT 0)
If you had a ton of muscle/skeletal pain, would you even consider Remicade?
Posted 2/13/2013 2:31 AM (GMT 0)
Muscular-skeletal pain from what source at present?
Posted 2/13/2013 3:15 AM (GMT 0)
I don't know. More pain than a 41 year old should have. Also constant muscle twitching for like 4 years. No neuro has an answer.
Posted 2/13/2013 3:44 AM (GMT 0)
So any or all meds that you are on have been ruled out? i gather remi is used for some arthritis (?) but joint pain is a very common sude effect of the drug too - it was for me. The good news is that if you get that side effect, it should fade away after you stop, so theriskof trying it is not high IMO.
Posted 2/13/2013 12:28 PM (GMT 0)
I only opted to try Remicade because the pain in my spine was getting worse, and it was getting more painful to do just about anything.  So far, so good, but the effect seems to be waning.

As for the twitching, my GI has her patients on vitamin D plus calcium as a matter of course.  My calcium was getting high.  It never went over the top range, but the neuro said even high normal can cause problems.  Once I stopped the calcium, almost all of the twitching went away.

Posted 2/13/2013 2:13 PM (GMT 0)
This might sound obvious, but has any dr xrayed your back? The reason I asked is because like you, I have a ton of back and hip pain. I seen a neuro, a rheumy, pain management dr and of course my primary but not one single dr did an X-ray. I had many scans tho. So I decided to see a chiropractor. He took X-rays and he discovered I have twisted vertebrae in my lower and upper spine and my hips are misaligned. I saw him for a while and he got me to a point where my back doesn't bother me as much. I still have to be careful the way I bend over because it can cause my hips to "spasm".

But I've been on Remi over a year and it doesn't bother my back or joints. I do however have Peripheral arthritis so when the Remi starts to wear off, my other joints start aching (Peripheral arthritis is an arthritis that is non-damaging and the joint inflammation matches the inflammation in my colon).
Posted 2/13/2013 5:00 PM (GMT 0)
yes. I have been on remicade for 2 1/2 years for UC. i have severe symptomatic arthritis... extremely painful... within 24 hours of my remicade infusion the arthritis pain is gone... I am on a 5-week cycle bc at 5 weeks the arthritis pain starts to return.
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