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I Love my flagyl and Cipro Combo right now! Diarreah all gone!

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Ulcerative Colitis
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Posted 2/21/2013 6:52 PM (GMT 0)
yeah, mine is on the right side, too.

i'm pretty worn out. just have zero energy. most of my problems are from my anemia and i haven't been taking my iron for a few weeks because i read that iron feeds c diff bacteria and makes it grow.

as for my butt- i'm going 3-5x a day since i started the vanco but i do have bleeding some days and cramping with bm's. very little bloating which is good. i have some new probiotics coming my way so i'll be trying those soon. it's called prescript assist and it's for people who have been on antibiotics. you should look them up. i know you're on some now, but i'll let you know how i do on these ones.
Posted 2/22/2013 4:32 PM (GMT 0)
therearemiracles,

This is a very new theory on disease and I sent you to the cpn page already but... have you read there more? I know its all alot of mumbo jumbo.. but please dont forget about that page.

If I had a lab test that found cpn in my blood, I would Stay on them! It may be years and hun, im sorry to say it is going to get worse before it gets better. They die hard. You need to work up to flagyl.

Talk to your doc about Pulsing the Flagyl and staying on others.. tell your doctor to research the Stratton Protocol for CPN... you know you have it so you should treat it right especially if you have had pnuemonia before so you have a chronic disease state.

I really think this will help so many people.

I was so anti antibiotic because every time I go on them horrible things happen.. But finally eurekaed that they werent persay, "causing" the reactions as much as being a catalyst for what is actually lurking in my body. Now, you need the right type of antibiotics in the right sequence to kill everything and to repopulate with the good stuff and support your immune system and detox pathways in the meantime. It may take years.. but its really worth looking into the Combined Antibiotic Protocol and a really really good array of tests to treat any coinfections.

Im so glad you have a doc that found cpn in your blood via lab test. You are so lucky to be one of the ones they have to take seriously.
Posted 2/22/2013 5:23 PM (GMT 0)
Hi Pathogenkiller,

I did the combo therapy before, it didn't help much. I've done a lot a ton rather of antibiotics for my lyme's disease. I just finished flagyl and cipro and I'll see how I'm doing a week. My GI said I maybe a type that needs antibiotics every month, flagyl one month then cipro the next. It's very frustrating.

Who would I see about getting retested for CPN, my GI or regular family doctor or my lyme's doctor?
Posted 2/22/2013 9:18 PM (GMT 0)
But the treatment for chronic Chlamydia Pneumonia is 1 year of combined antibiotic therapy minimum to hit all aspects of the disease. It has 3 forms it takes in the body and you need different antibiotics at different times to hit all stages. Some people are on antibiotics for years. Again, it has to be the right ones in the right order.. if you hit them out of order you risk growing resistant bugs. Try to get ONE provider, not your GP, GI.. Lymes.. your lyme doc will prob be most likely to listen to Stratton's protocol and put the pieces together. See what his plan would be.. the GI is right that it needs long term antibiotics but I dont know that that would be a good cycle for this bug. I think GIs and antibiotics are dangerous. You may have other bugs like lymes complicating the picture but the beauty of stratton's protocol is how wide ranging it is hitting the coinfections.

Whoever caught it last time is who Id go back to.. with information from Dr Stratton at Vanderbuilt's protocol. Here is your best test http://chronicfatigue.stanford.edu/infections/chlamydia-tests.html it cost 365 out of pocket, but since you have had a cpn infection before I cannot see how your insurance could deny following up on that. You need to do it when you are flaring though.. so if they have taken you off the antibiotics, before you do any more think about getting those tests run right before so your load is as high as possible and they can detect it.

The thing about cpn is once you have a chronic form you can *sometimes* catch it on the tests.. but not many people have any ideas of how to treat this thing long term. even if you had antibiotics a week on a week off all year it would still be wrong at getting you better. Stratton, Powell and Wheldon are the best options.

Goodluck feeling better. I know how frustrating this all is.

Post Edited (PathogenKiller) : 2/22/2013 2:23:09 PM (GMT-7)

Posted 2/22/2013 10:26 PM (GMT 0)
I'm always thrilled to read when someone has good luck with a treatment. I hope it continues to work for you.

TAKE YOUR PROBIOTIC!!!!

I would like to raise just a small red flag about cipro. I took cipro for three days about a dozen years ago, and stopped after three days because the quick lab urine test that showed I had a bladder infection came back negative from the "real" lab a couple of days later.

about a month later, man was I sick. Long story short, it ended up that I had clostridium difficile. Ever since then, I've blamed the cipro, and you couldn't MAKE me take a cipro pill again. I had a devil of a time getting rid of the c-diff, with a couple of courses of flagyl and prednisone, and finally the big gun, vancomycin, knocked it on its posterior and outta here (pun intended).

I'm sure you know, if you've done any research (and how can a C-diff patient NOT do research) that your gut is full of bacteria (flora), and that flora keeps things in check. Some people carry c-diff in their gut and it causes them no problems because they are kept in check by the "good" bacteria. Well, the antibiotic kills all the "good" bacteria, and the c-diff (which is a spore and harder to kill) proliferates and produces the toxin that attacks the lining of your gut. Something like that anyway. It's been a dozen years since I had it.

I do believe that I had underlying, mostly asymptomatic UC or proctitis before that (very, very mild, very, very sporadic blood, mother had UC and had colon removed), but since that outbreak of c-diff, I've been diagnosed with UC and have to treat daily for UC. I've had probably five or six pretty good flares (yes, I've had to throw my underwear away in the grocery store bathroom and/or wear a pad -- ugh!), but fortunately, my disease is very well controlled these days with asacol and azathioprine. I feel so fortunate.

Good luck with your treatment.

Post Edited (MitzMN) : 2/22/2013 3:29:49 PM (GMT-7)

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