Amino Acid Therapy Week 3 & 4 Results

Hi all, I do feel like my asacol and amino acids are not getting along in my body. I can say this is because if I miss a day dose of my asacol my gut isn't in bloated when I add it back in I get bad bloating, belching, gas, yellow/orange diarreah. I wonder if this can be true?

ON a positive note, the days I didn't take my asacol, I felt really good and positive and actually wanted to run outside! I could only run a little bit, but it's a start. I haven't ran in 7 years but for some reason I got this "spark" the last couple days in the afternoon after my 4pm dose.

HI sammies, Humira was terrible for me, are you sure it's not side effects from the Humira? I then tried Uceris and that was bad for me too. Have you every tried antibiotics for your flare? Gosh, I hope you would be feeling better by now. Oh also, I bad down my supplements per Doctors. I only doing 6 pills a day, three in the am and three in the pm. Maybe back down your dose next time when you start up.

I was worried about the tired feeling, but I haven't had that, Thank goodness because it seems like I've been hibernating all year LOL!

I'll keep posting. I want to see what my urine test comes back like next week. I will do it on Friday and ship out.

I hope you feel better real soon!

Hey lemon-so are you flaring currently? And you haven't seen any effects at all, negative or positive, correct?

Levi-
I wouldn't say I was in a full blown flare when I started this....thanks to Humira. But I would say still having too many BM's and very loose stool, urgency and nausea. I still have urgency, nausea, but my bm's seem more formed. That is about the only change I see right now. I have had about 5 days of complete nausea lately. I think that is hormonal at this point though. I hope it passes in the next couple days, because it is quite miserable.

I tried to post this morning, but it didn't make it.
Talked to Dr. Stein today. My urine sample came back today and my levels are low---still in level 1. My new dosage is
2 Neuroreplete 2x a day
2 cysreplete 3x a day
1 D5 Mucana 2x a day
The D5 Mucana was what Mark had such an issue with, so I am super nervous to take it. I told Dr. Stein this and he told me to quit being so negative and to be positive and that he knows what he is doing and he is not flying in the dark on this. I asked him if I get the big D would he change something without the urine sample (I just don't have time for that). He said to call him. I am just wondering if for the 5 minutes I chatted with him if I am going to be charged 75 bucks? He was kinda mad that I didn't call and update him on my progress. Funny, I did e-mail him with questions, and got nothing in return and there really is no change for me.
Miracles-I am wondering if you and I will eventually end up on the same dose? Seems like we do everything else the same!!

Hi Lemonhead and Faithmac,

Ya know I feels there's a shift going on in my body because around 4pm I can walk my dog around our loop 2 miles and I actually feel like running, the urge and energy is there, but fear steps and I don't. I wait to run while my bf is on the golf cart next to me ...just in case an accident occurs.

Today no bm so far really, just gas and little diarreah. I had a very fiberous piece of bread last night so maybe this is helping this morning.

Also on a good note, I've read so much on amino acids it has to be beneficial for us and everyone in my opinion. I'm working out more so it's probably helping with my muscles.

I don't nap at all now during the day at all! I sent out my urine test last night. I'm on only 6 pills a day, 3 in the am and 3 in afternoon, I started out really slow after the first day I detoxed like mad.

Faithmac when they overcharged me, I actually said "Is Dr. Stein taking advantage of people who are sick" I was so in your face about it because I've worked with NP that said they could "cure" so I wasn't holding back. He called me and the sincerity was there and the confidence I loved that came from him. He wasn't cocky, so I am going to stick with this for a while because I do see other improvements mental, energy. I'm hoping my butt is chasing up soon.

30 bathroom trips in 3 hours?

I hope it starts working for you. We are all just tring to grasp on to something that will work that's not heavy duty meds. The only thing that has worked for me is Humira. I guess I'll be sticking with that until something better comes. Good luck:)

Miracles... sorry to respond late to my question, but I'm sorry to hear of your circumstances. My flare like that drove me to Remicade. I don't think people realize how serious UC can be until something like that hits.

I find it's best with the disease to just take things day by day when things like that happen. You'll find a way to get improvements coming your way. I feel your pain though, and hope things turn around quickly for you.

Lemonhead--I'm very curious about your nausea and malaise. Seems similar to want happened for me. Hope yours passes.

As for me, I'm still off the protocol. It took four days but the malaise and listlessness left me. It was as if I lost a week somewhere! I had lost 10 lbs and they are almost back--I have my appetite back. The heartburn is pretty much gone and I have just a bit of the stuck feeling left in my esophagus.

Talked to a biologist who really wonders if there was some sort of issue for me regarding the interaction of the amino acids and Humira. I still have my skin rash. And my edema is back. I really want to start up the protocol again but will wait until the end of the onto and my CTMRE.

I was never told to take them with food - I just find that when I do, especially the CysReplete I don't get heartburn and so on. If I take them on an empty stomach they tend to bother me.

I noticed I had trouble sleeping past 7am as well. Which made it difficult during the whole "super crazy tired" phase or whatever it was. I think maybe OM is right, and that perhaps it takes some time to adjust to the 5HTP amounts or something. I will say that I sleep great now. A full 8 hours and I wake up looking forward to the day, which is a new thing for me.

In some ways I think I've been having trouble adjusting to being somewhat normal again. Hard to explain but when you're sick for so long you seem to get into certain habits and thoughts. Especially taking off for the day or social events and such. I still find myself hesitant in some ways.

I made the new dosage change four days ago, and things seem pretty good, but still not perfect - or asymptomatic. I still seem to react to highly processed foods and wheat. But don't have much issue with this anymore, as I for some reason I still don't crave them, or sugar anymore. Even walking around the grocery store, I look at them, but have no real desire to buy/eat them... It's very strange. I'm going to finish off the rest of the week SCD/Paleo type thing and see how I feel. I can say that I'm putting on a bit of weight now, all my pants stay up without a belt and I think my A#s got bigger, cause it doesn't hurt so much to sit on a hard surface, haha. When I came down with this disease I lost a ton of weight and when I used to sit down on a hard surface for a long time it really hurt. Not so much anymore. So this is cool.

I really, really want to "click". I'll have to see what my next test comes back as. I take the urine sample tomorrow at 4pm so I'll know in a few days.

Seems to me this sure isn't the easiest treatment to go through - and I'm starting to understand it a loooooong process with some big ups and downs, but I'm happy now. No meds and other than the occasional short lived reaction to what I think is a "food reaction" every now and then I'm pretty darn good.

No meds needed being the most important to me...

Another rough day for me. Wednesday is urine test, hope I can hold out that long.