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Article: 50 Shades of Gluten (Intolerance)

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Posted 4/4/2013 1:04 PM (GMT 0)
50 Shades of Gluten (Intolerance)
The mainstream view of gluten intolerance has been relatively black or white: Either you have celiac disease (CD), in which case even a small amount of gluten will send you running to the bathroom in three seconds flat, or you don't, and you can chug down beer and bagels without fear. This "all-or-nothing" view has led to some doctors telling patients that suspect they're sensitive to gluten but test negative for CD that they're simply imagining an affliction that doesn't exist. It turns out those doctors are wrong.

Here's the crucial thing to understand: Celiac disease is characterized by an immune response to a specific epitope of gliadin (alpha-gliadin) and a specific type of transglutaminase (tTG-2). But we now know that people can (and do) react to several other components of wheat and gluten -- including other epitopes of gliadin (beta, gamma, omega), glutenin, WGA and deamidated gliadin -- as well as other types of transglutaminase, including type 3 (primarily found in the skin) and type 6 (primarily found in the brain).

This is a huge problem because conventional lab testing for CD and of gluten intolerance only screens for antibodies to alpha-gliadin and transglutaminase-2. If you're reacting to any other fractions of the wheat protein (e.g., beta-gliadin, gamma-gliadin or omega-gliadin), or any other types of transglutaminase (e.g., type 3 or type 6), you'll test negative for CD and gluten intolerance no matter how severely you're reacting to wheat.
Posted 4/4/2013 2:34 PM (GMT 0)
good stuff i - thanks for sharing :-)

i wish more people would just toss the grains instead of adding more meds -

Posted 4/4/2013 2:48 PM (GMT 0)
I am already glueten and dairy free as well as corn free. The article is very interesting. I may have to go the next step and try grain free. I have put it off because I rely on rice and oats so much, but may need to give it a try for a few weeks. I didn't want to believe gluten was an issue, but realized it was when I tried to put it back into my diet. I have now been in a flare for 8 months. I think gluten is what triggered it :(
Posted 4/4/2013 3:01 PM (GMT 0)
Yes, I tested negative on the celiac test but years later eliminated gluten, stopped bleeding and began moving into remission for the first time in 12 years due to diet modification.

I wish x10 that I had eliminated gluten earlier. I tried many different diet mods over those years, some were gluten-free, but had no positive results. What I found out (when I became successful with diet much later) is that gluten was just one food of many my gut objected to. It was very hard to determine that my gut disliked gluten because it seemed to quiet my stomach down. In actuality gluten shut my gut down to immobility and caused bleeding. But I could not trace that to gluten until it finally worked.

I don't blame people who have tried diet mod. and gotten no results. That was me...until I had no other (to me) acceptable Rx med choices and finally diet mod. started working.

My diet does not fit into any label, so many intolerances. The big ones for me to eliminate were gluten, all other grains, starches and dairy. Certain shellfish and other foods also cause IBS reactions. Paleo comes closest to how I eat now.

Desperation will sometimes work. Juice (veggie) diets, intermittent fasting, spinach, enemas. I say throw the book at your UC as long as you're getting enough nutrition. I love food so it wasn't easy to modify my diet, but frankly I had no other acceptable choices left.

No doctor ever gave me any support for diet mod. so you've gotta be a strong-minded person to go it on your own. Good luck to those who try.
Posted 4/4/2013 3:13 PM (GMT 0)
Thought for a moment I read 50 shades of poop... ahah
Posted 4/4/2013 3:22 PM (GMT 0)
try a veggie juice diet for a few days - you will definitely see a bunch of different shades !
Posted 4/4/2013 3:25 PM (GMT 0)
yup, gluten was not enough for me - i was eating a lot of mexican for a while - rice and corn ! i got whacked big time - NO MORE !
Posted 4/4/2013 3:47 PM (GMT 0)
I did the Cyrex blood test that was mentioned in this article.  It showed that I not only react to gluten, but also dairy and an assortment of other grains, but (interestingly) not rice, corn, or quinoa.

I'm always interested in read stuff about gluten because about half the people in my family react to it in various ways.

 

Posted 4/4/2013 4:07 PM (GMT 0)
Zucchini, how expensive was the Cyrex blood test and did your insurance cover it? I tend to think my insurance would not as they are real picky on which of even the local labs I take my samples to. Nevermind some lab in another state...
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