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Bridge between mesalamines and the heavy drugs

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Ulcerative Colitis
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Posted 4/5/2013 4:27 PM (GMT 0)
I have a GI appointment on Monday. I'm on prednisone 40mg and mezavant 4.8g. Still flaring. I'm thinking about trying LDN or fecal transplant therapy. I want to exhaust all alternatives before thinking imuran and the other heavy hitting drugs. What else is there to try?
Posted 4/5/2013 4:37 PM (GMT 0)
Have to ask...rectal meds? Also Uceris. Than the complimentary probiotics and metamucil etc....
B
Posted 4/5/2013 4:39 PM (GMT 0)
Rectal meds I stopped for a bit because I was waking up due to prednisone. Uceris is not available in Canada I think. I tried Entocort enemas which didn't help that much. I read this http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3202252/ Ayurvedic medicine helped some people... The more 'novel' treatment the less people are studied, it sucks...
Posted 4/5/2013 5:19 PM (GMT 0)
The list of things you can try is almost endless but here's a small sampling (not suggesting any particular value, but for your sampling):
- diets: Gluten free, SCD, paleo, FODMAPS
- acupuncture & herbs
- herbs including turmeric extract, boswellia, slippery elm, the list goes on and on- some or all may hurt rather than help as is the case typically for me
- retarded release phosphatidycholine (only available from germany, can be ordered but requires rx)
- topical DMSO
- high quality probiotics such as benebiotics, VSL3, VSL3DS, mutaflor (non pathogenic e coli strain that may or may not still be abailable in Canada for much longer) etc; soil based bacteria probiotics such as primal defense; etc
- worm therapies: TSO (pig whipworm eggs) from ovamed, or human whipworms from one of two providers, as well as human hookworm ditto

I have tried all this stuff and more but I am still losing my colon shortly. However, since you tolerate a 5ASA things are not that gloomy for you and these things could pit uou over the top. At the very least I'd try dietary trial and error and good quality probiotics trial and error, one at a time though.
Posted 4/5/2013 7:07 PM (GMT 0)
Here's my list of alternatives that I would consider trying before moving on to heavier drugs (currently on immune suppressers so I'm talking about moving from those to biologics.) Some of these I've researched extensively and others just looked at briefly after seeing a good anecdotal study or case report and just added it to my notes for future reference. This is just copy and paste so forgive formatting issues: LDN Helminths Fecal Transplant Stem cell trials Antibiotics (triple therapy) Intravenous Immune Globulin IVIG therapy   SSi (Qu Biologics) (Crohn's disease) TPN LDA Immunotherapy Serotonin and dopamine/amino acid therapy      Adacolumn   www.adacolumn.net/en/default.asp   I am currently doing DMSO topically and have responded well to it.  Edit: If DMSO fails me right now my next stops would be first LDN and then helminths with amino acid therapy rapidly rising in my estimation based on Canada Mark's updates. Just my take on alternatives, of course.
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