HealingWell
Search Close Search
☰

Gluten free doing nothing

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
1 23 4
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/25/2013 2:23 PM (GMT 0)
Gluten free did not help me - I know it helps some. I too feel comfortable with white bread and have started on cold pasta for resistant starch.
Posted 4/25/2013 2:32 PM (GMT 0)
"Most people, whatever they may think, are not actually gluten intolerant, let alone have coeliac disease."


so then what exactly was it that put and keeps me in remission ? cuz i'm really confused now ?
Posted 4/25/2013 2:55 PM (GMT 0)
Soystud, you could just be lucky man on the remission thing. I tried gluten free just in case it worked for me; no dice. This disease is so random, weird, and poorly understood that really anything can happen and it varies so much from person to person. Could be true that gluten-free is your holy grail to a long sustained remission and I hope it is. Could also be a coincidence that you went gluten-free while your uc entered a quiet period. Had you ever tried reintroducing gluten and seen your symptoms return just to make sure that it is your grail (not sure if you've ever said that before)? I ask because I certainly haven't heard of many here who've said gluten free allowed them to enter into remission. Sure, some have said gluten-free has helped some, and resolved a few minor issues or reduced symptoms a little -- I've seen some of those before. And anything, any of us can do to improve our symptoms, even a little bit is a worthy cause for sure.
Posted 4/25/2013 5:50 PM (GMT 0)
I hate to be that guy but I believe we are made up different types of chemicals, water, and blaa blaa blaa but when one of these is off balance our body reacts whether that reaction is percieved as neg or pos thats a whole other argument. Whats my point????

1. All diets of food restrictions work in one way or another. They do have implications on how you feel. "gluten free", Dairy free", or simple changes like no more diet pop...."Poison" in my opinion dump that garbage down the sink....works as a great drain cleaner....hahahah.

2. Not everyone is made up of the same as above so these diets dont work for everyone the same way.

3. I have run through just about eveyones advice. try this, dont eat that and have had some success. My BEST ADVICE is to try them all. Keep a food journal and a poop journal. This works. It will help you to determine what you are doing wrong for you body.....ie too much gluten.....no dairy.

I have been to specialists, dieticians, monks....last one was a joke....ha? And they all start off with the same statement food is the guilty party. We eat something our gut does not like and BAM pain, diarreha and all kinds of other problems. How do we fix this you ask????? Keep a journal and an open mind. Try everything once but really try it dont say after a week it does not work.

Enjoy life dont let this crappy disease stop you from anything you want to do. If anything make it a challenge for yourself to do things the hard way just to say you did......

 

Posted 4/25/2013 6:12 PM (GMT 0)
I went gluten free and thought it benefited my UC, but it didn't. I would say Green Smoothies benefited my IBS because it pulverizes the fruits and vegetables.

Gluten free has had so many other benefits that I stuck with it. But I no longer eat processed foods, have the green smoothies every day, don't eat soy, corn, alchol, peanuts, sugar, so who knows what works and doesn't.
Posted 4/25/2013 6:28 PM (GMT 0)

soystud said...
"Most people, whatever they may think, are not actually gluten intolerant, let alone have coeliac disease."


so then what exactly was it that put and keeps me in remission ? cuz i'm really confused now ?

*sigh* I knew somebody would say something like this. I have no idea what keeps you in remission. If your remission coinincided exactly with going gluten-free, not being on any other meds at the same time, making any other dietary changes, and so on, then congratulations: you are not amongst the "most" I was referring to. However, there is still no evidence that eliminating gluten benefits those who aren't coeliac. IBD might change the picture; I don't know enough about that. At any rate, if you have IBD, a gluten-free diet is worth a trial. If you don't have coeliac disease, IBD, IBS, or any other form of digestive disorder, cutting out gluten is not beneficial to your health.
Posted 4/25/2013 6:33 PM (GMT 0)
"How do we fix this you ask????? Keep a journal and an open mind. Try everything once but really try it dont say after a week it does not work. "

fixing the problem shouldn't involve all that - you're just treating the symptoms, the same as treating the problem with meds -

i'm truly not even sure what the word fix really means - if i fix a broken shaft on my quad, does that mean it won't ever break again ? well maybe if i don't ride it again - will something else break before that shaft if i continue riding my quad - maybe - who knows - all i know is fixing is about as permanent as wiping your butt - as long as you keep pooping, you'll keep a wipin' !

that's all i know (or think i do) for today -

Posted 4/26/2013 12:31 AM (GMT 0)
Going militantly gluten free helps me tremendously. Now that my body is free of gluten when someone accidently glutens me the results are real and unmistakable.

two articles and Ill leave it at that
simplyglutenfreemag.com/the-disobedient-gut/ I know this patient that was cured of lupus and IBS by this doctor's intelligence in knowing that food is what we and our immune systems are made of.

Going gluten free has cured me of joint pain, fatigue, D, urgency, bloody stool and my inflammatory markers are non existant other then by stool test which shows mild colitis. This is huge considering I signed myself out AMA from a hospital where they told me I would die if I didnt let them operate on me and take a large part of my colon.. and maybe more..

well.blogs.nytimes.com/2013/02/04/gluten-free-whether-you-need-it-or-not/
of note, the austrailian study and obryan's 30%
www.ncbi.nlm.nih.gov/pubmed/21224837
Posted 4/26/2013 12:56 AM (GMT 0)
to say that food doesn't cause __________, is interesting in the sense that, what IS food really ?

100 years ago you could know what you were eating - today ? what the hell is it that we are eating ? i'm guessing a large percentage of the food most americans eat (s.a.d. dude), comes from the Monsanto ****'s - cows, pigs, chickens, etc. are raised in factories - our food comes from boxes and cans and bags and mcdeadly's - *** -

to say that food doesn't cause uc, autism, obesity, whatever, is ridiculous in my way of thinking -
Posted 4/26/2013 1:40 AM (GMT 0)
It took a good month for me to recognize any changes with the GF diet. But I didn't just go GF. I cut the gluten, the sugar and the dairy. And I also try my hardest to just eat fresh foods. It was hard but I can tell you that I physically feel incredibly better than I used to. And when I eat something with gluten in it, my stomach blows up (in more ways than one...but moreso I look pregnant!).
I don't think I'll ever go back to carelessly eating gluten again. I have become used to it now (been doing it for 8 months) and I can't say it's ever hurt me.

So no gluten for me (allergen). No sugar (feeds the yeast in our bodies and in turn feeds the inflammation). And no dairy (why do we drink it anyway? We are the only species that drinks another animal's milk after infancy....weird!)

(my signature is not up to date! I currently take 16 Pentasa a day, I'm down to 4 mg of pred.)
Posted 4/26/2013 1:42 AM (GMT 0)
I had gone gluten free before I had a diagnosis of UC. The doctors had told me for a long time I has IBS. At my doctor's advice I went back on gluten so I could get tested for celiac so I would know how strict I needed to be with it. Well, after a week and a half of slowly introducing gluten I went into my current flare that has now lasted nine months. Even though I removed gluten when my symptoms started I can not get back to how I was feeling which was wonderful! I guess the good in it all is that with this current flare I finally got the correct diagnosis of UC. I am a believer that gluten can have a major impact for some. Also, I didn't realize before I went gluten free what a major impact it had until I did try to add it back.
Posted 4/26/2013 5:13 PM (GMT 0)
If you're in a moderate to severe flare, it's going to be hard to tell if any dietary modifications are helping or not. Any natural treatment methods are going to take a LONG time to show results compared to at least some meds. I'd also suggest folks with IBD require more than JUST dietary modifications to get positive results. You also have to remove possible pathogens/toxins, repair damaged intestinal mucosa and reduce inflammation, restore healthy bacteria and often replace missing digestive enzymes. This "Four R" approach is pretty well known in alternative medicine circles. You can read more about it here: christensencenter.com/GutFeelings.html. The book Optimal Digestion is also an excellent resource.
Posted 4/26/2013 7:20 PM (GMT 0)
Although there is supposedly no relationship between celiac disease and UC, we do know that there is often a genetic component to both. I'm the only one in my family with UC and my niece (my sister's daughter) is the only one with celiac disease (tracing back through her dad's line as well). I suspect that these intestinal issues are more closely related than we think or that there's a continuum of gluten sensitivity (note that I think I'm sensitive and she knows that she's intolerant).

In any event, I think the one thing we can all agree on is that UC is different for everyone and requires a lot of personal experimentation and fact finding missions. I'm never going to be someone who says that something that works for someone else can't possibly work for them. It may not work for me, but I'm willing to believe people when they say they've found relief through specific diets.
Posted 4/26/2013 8:45 PM (GMT 0)
hey 47, thanks for the support - i was almost thinking that i was gonna have to give up my grain free remission and try something different :-0
Posted 5/1/2013 1:26 PM (GMT 0)
It's test day. I have been gluten-free since April 7th, and today I am reintroducing gluten to see if I have any adverse reaction (testing for non-celiac-gluten issues). I had a big coffee cake muffin with my breakfast, and I got a couple dunkin donuts on the way to work this morning and they were both wonderful (oh how I missed my gluten). Certainly no immediate reaction, or any reaction hours later. I'll see if there is anything by tomorrow morning's bm. I didn't notice any benefit from going gluten-free, and I am not expecting any reaction from reintroducing it either... we'll see.

Also of note. I had a flexible-endoscope just days before going gluten-free and another scope yesterday. My GI said no noticeable difference. Beyond going gluten-free during that time, I also increased my dosage of 6mp (the reason for the recheck) so next stop remi.
Posted 5/1/2013 1:31 PM (GMT 0)
oh happy day if gluten is not an issue for you !!
Posted 5/1/2013 1:45 PM (GMT 0)
Well, I have to concur, gluten free does absolutely nothing, I am well over a year off it now. If it actually does something, it's something that I cannot tell.

However, having said that, I still continue being gluten free because I don't know any other path to take.
Posted 5/1/2013 1:50 PM (GMT 0)
You know what is strange in all of this disease bullcrap saga. You read a book like SCD telling you how good you feel off this and off that. W.T.F, I felt great before this disease, I never felt hungry, never skinny, had energy.

You go on this SCD diet, which is like the Atkins diet, you feel a lack of energy, limited food choices, loss of weight, generally feeling poor. Part of it has to be attributed to the fact that I do have this disease, but part of it is because of the diet.

Dispite the disease, with the normal diet, there was energy, and some weight of course, not at the same level as before being sick, but still.

I am not here to bullcrap you, I am telling it how I perceive it. The reason I still follow the diet is because I am out of options and I do not know what else to do.

Posted 5/1/2013 1:55 PM (GMT 0)
Somedude of your diet mods don't help you then why do you adhere to them? I'd rather be sick and eating pizza with a cold beer then sick and only allowed to choose from a limited list of meal options. Yeah I understand there is nothing else to adhere to, but why take the enjoyment out of food?
Posted 5/1/2013 1:59 PM (GMT 0)
"Somedude of your diet mods don't help you then why do you adhere to them? I'd rather be sick and eating pizza with a cold beer then sick and only allowed to choose from a limited list of meal options. Yeah I understand there is nothing else to adhere to, but why take the enjoyment out of food?"

Yeah, I agree 100%. I just want to validate myself that if I end up on the surgery table, I tried all I could within my limits, not with a chocolate bar in my hand and saying "shiiiit don't work, son".
Posted 5/1/2013 2:00 PM (GMT 0)
ya, dude, i seriously do admire you for your perseverance, but man, why torture yourself - if it aint workin, give it the boot -

and if it is an issue, you'll know it pretty quick -
Posted 5/1/2013 2:12 PM (GMT 0)
Im a grinder. A grinder in video games is a dude that does repetitive tasks in monotonous environments while gaining little rewards a bit at a time.

I apply the same principle here...I'm going to grind and grind and grind until I break or as it were in games, burn out.

Are you 100% in remission soystud, do you see results right away on the diet?
Posted 5/1/2013 2:54 PM (GMT 0)
if you'd follow along dude, you'd know that i don't use that r word :-) too much pressure - i get up every day and get about my binness - sometimes i feel awesome, sometimes not so much -

i have no diet per se - i have an avoidance - i stay away from stuff that doesn't work for me - i eat/drink/take everything else -
Posted 5/1/2013 3:01 PM (GMT 0)
Some dude, are you eating dairy?
Posted 5/1/2013 3:10 PM (GMT 0)
he is dairy free last i heard -
✚ New Topic ✚ Reply
1234