I did search this before posting just wondering how everyone else is doing????
1. Tried immuran....lead to high biliruben levels chop that one
2. Tried predisone and its scary how well it works I feel like superman, no pain, im not lathargic, and my bathroom sprinting seems to subside. But I know long term it is not a good drug to be on.
3. Remicade worked well for 6-8 months now Im bleeding again, and really run down all the time. Chop that one
4. Started Humira Fri not seeing any results yet. Still really tired, weak like, cant make a firm fist. And im still geting up 2-3 time a night to run to bathroom.
All this time I have been watching my diet, gluten free, no dairy, and all the other list of "fad" miracle cures.
Feeling like its surgery time.