HealingWell
Search Close Search
☰

Diet

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
12
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/18/2013 4:07 PM (GMT 0)
Have any of you tried the Paleo Diet? And if so, do you see a difference?
Posted 5/18/2013 5:10 PM (GMT 0)
try the search function - there are a ton of paleo posts -
Posted 5/18/2013 6:43 PM (GMT 0)
tons of info on it here....and recently.
q
Posted 5/18/2013 10:13 PM (GMT 0)
I was diagnosed with UC 2011. My symptoms were horrendous. I tried the
Specific Carbohydrate Diet. In the beginning I had monthly flare ups but I didn't give up. I added primrose oil caps because my menstrual cycle would trigger flare ups every month and that has seemed to prevent them. I make my yogurt for the probiotics & take fish oil caps (anti inflammatory-omega 3 fatty acids). I took vsl3 too for a few months & once under control switched to Jarrow BC a lil less expensive. Stopped bleeding & was able to stop Canasa. Thank God BC it made my hair fall. Just started weaning Lialdax4 to 3/day.

Post Edited (Divinemercy) : 5/18/2013 4:38:08 PM (GMT-6)

Posted 5/19/2013 2:55 AM (GMT 0)
Yes, I did a diet very similar to the Paleo, except I was also able to eat plain organic yogurt. My symptoms drastically reduced within a month, and I continued on a modified diet for another few months. I also took natural antifungal supplements and probiotics. I had suspected my UC symptoms were caused/exascerbated by fungus, so experimented with the Paleo-type diet since it is actually an antifungal diet. It eliminates grains and sugars, both of which contain mycotoxins (fungal poisons) and/or feed fungus.That was 7 years ago and am still symptom-free today. I have since gone gluten-free and feel better b/c of it, but wonder since wheat is contaminated with mycotoxins, if that may be the reason I feel better by not eating it, rather than the gluten.

Are you thinking of trying the diet? Nothing to lose by trying. 'If you do what you've always done, you'll always get what you've always gotten', is my motto.
Posted 5/23/2013 6:32 PM (GMT 0)
I am going to try the SCD. If there are any great tips to shopping and just getting started I would love it. I am going to shop this weekend and start slow. I guess buying the book will be my first purchase, but there is a lot of good info online.

Are you in the SCD diet? What is your favorite recipe?
Posted 5/24/2013 6:39 AM (GMT 0)
kim123, I also think fungal infections play a big role in my disease. I am always fighting a fungal infection on my rear end among other less obvious symptoms. My GI thinks the candida is in my gut and esophagus as well. Anyway, I have recently started the SCD diet to help control this and have added probiotics. You mention "natural antifungal supplements" - what are these exactly? and do you have any other advice for getting rid of fungus? I believe I have had candida overgrowth for at least a year. I have always eaten yogurt and avoided sugars. For two months now I have avoided grains and have been wheat free for a year but have yet to notice any improvement.
Posted 5/24/2013 7:08 PM (GMT 0)
There is a manager I work with who is on the Paelo. She has crohns and is not on any meds. I have done a strict low carb diet for ages and a program which I paid a lot of money for to rid, bacteria’s and fungus. Stopped all pain on the right side and left and it seems that there are a lot of symptoms which have disappeared but my rectum did not heal. Don’t know why and I feel I have tried everything for that bit of me but it won’t heal. I am glad I tried it but I don’t really know what to do with the rectum except for meds.

Haven’t had any bleeding since being in the hospital and I am hoping it stays. I am now on 15mg of pred
Posted 5/25/2013 2:28 AM (GMT 0)
Malgal - I think fungal infections are side effects of Remicade. Vicious cycle, isn't it. I also took olive leaf extract and rotated monthly with caprylic acid. You may need a stronger antifungal prescription, but not sure of the interactions with your other meds. Corn is highly mycotoxic as well as wheat. Are you including this in your elimination of grains?
Posted 5/25/2013 12:38 PM (GMT 0)
Yes, PALEO is great and anti-inflammatory too.

And you know most diseases originate from inflammation.

Malgal, and DivineMercy,

Welcome to the forum.

Besides diet modification as in Paleo, there are other simple things you can do which can greatly help: probiotics, slippery elm powder, l-glutamine, and if you don't want the big guns, LDN, low dose naltrexone which put me in remission.

If you are interested, there are things IMO that you can control, which will have a direct impact on your disease, the symptoms you experience and their severity.

I was able to control my UC into remission through various supplements, probiotics, diet modification, and LDN , low dose naltrexone.

For more info on the protocol which has put me into remission, please go to this link: https://www.healingwell.com/community/default.aspx?f=38&m=1666318 , and look at the 11th post.

I hope you feel better and let us know how we can help you.

Posted 5/25/2013 2:31 PM (GMT 0)
Insofar, I love your story. I am dairy free, I am going wheat and suger free as much as I can. I found some paleo bread at whole foods for toast and other products that help. Do you eat nondairy yogurts or the scd type?
Posted 5/25/2013 6:29 PM (GMT 0)
DMC,

I found that all yogurt, including SCD yogurt doesn't seem to agree with my gut. So I have no dairy at all, except for butter which is good for the colon.
Posted 5/25/2013 11:41 PM (GMT 0)
kim123 - I am not eating corn or wheat. I eat about 3-4 tablespoons of virgin coconut oil a day, and have been doing so for about 6 mo., which has caprylic acid. I have the fungal infection on my rear end, my esophagus, mouth, and probably my gut. My GI says I have a week to try and clear it up on my own and then she wants me to take prescription anti-fungals, which I really want to avoid as anti-biotics are what spurred my first flare. I will ask about olive leaf extract. I really don't like this side effect of Remicade, if indeed that's what it is. I am doing pretty well symptom-wise (except for liver issues, skin rashes, and fungal infections, all of which could be due to the Remicade) so I am starting to seriously consider coming off it. I just really don't know if it's what's keeping me in remission.
Posted 5/25/2013 11:49 PM (GMT 0)
Thank you insofar
Posted 5/26/2013 12:39 AM (GMT 0)
DMC, my pleasure - let me know if you have any other questions.
Posted 5/26/2013 2:43 AM (GMT 0)
Hmm.... antifungals are not the same as antibiotics. Does your doc want to try Nystatin or Diflucan? Sometimes one needs to bring in the big guns to get rid of the infection. At least your doctor is recognizing fungus is the issue. Most are only familiar with bacteria and antibiotics. Hope you feel better soon!
Posted 5/26/2013 4:51 AM (GMT 0)
"insofar"


as in " don't put the tip " from quincy's upcomimg book, " have you tried rectal meds yet ?"
Posted 5/26/2013 6:57 PM (GMT 0)
Very cute, soystud... You certainly keep me chuckling, lol
Posted 5/27/2013 1:33 AM (GMT 0)
Lol that is funny soy. :-)
I hate to jinx it but since thurs I have not had dairy, wheat or sugar and today I feel normal as I can. I am back to balsalazide and ennie but hoping to cut back! I have been in a flAre that wouldn't die so that is why I am exploring. Gonna give this a few more days. It's not completely SCD but I am close. Also I found some acid free coffee and I am using that but only 2cups per day and when that's empty no refills!
Posted 5/27/2013 12:35 PM (GMT 0)
DMC, it's good you're trying no wheat, sugar, etc... just don't forget that there are many hidden sources of gluten too.

Keep up the good work! :-)

Posted 5/27/2013 3:57 PM (GMT 0)
Thanks. Lots of stuff says gluten free so that helps. Have you tried Lara bars? Really dense but good carb like snack.
Posted 5/27/2013 6:25 PM (GMT 0)
No, I haven't tried Lara Bars.

The only bars I have on occasion, especially when I'm traveling so I can count on certain nutrition, is FitSmart Bar in chocolate flavour (http://renewlife.mshopper.net/item.jsp?id=135149762). I like it because it's gluten and soy free.

Posted 5/27/2013 9:22 PM (GMT 0)
Hmmmm chocolate is a trigger for me, at least for heartburn, maybe carob will be a solution and I can get mt chocolate fix that was! I will look at those bars. Check out the ingredients for Lara bars you will be amazed.
Posted 5/31/2013 4:42 AM (GMT 0)
Well, it has been a week today and I am still dairy, wheat and sugar free! I didn't think I could do it this long and (knock wood) I think it Is paying off. Last couple days flare under control, one BM a day, no blood or muc! Last night I skipped an ennie as a test cause before if I did that, next BM blood, no blood today!
I actually bought grass fed beef tonight as well . This cannot be bad for me, there is only whole good food!! I actually feel good and less sad about it all at the moment! Knock wood again!
Posted 5/31/2013 5:10 AM (GMT 0)
good job DM ! hope you have continued success -
✚ New Topic ✚ Reply
12