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Cut out half my Apriso dose on my own

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Ulcerative Colitis
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Posted 5/23/2013 6:06 PM (GMT 0)
For three years I have been diagnosed with UC. And for those three years I have either been on Asacol or Apriso. Two pills in the morning, two at night. Currently have been on Apriso for about 2 and 1/2 of the three years.

After adding failing with a taper trial of prednisone, my GI put me on 6MP. It made me terribly depressed, sleepy and grogy, didnt do much help, and has now ruined my wonderful relationship. I stopped going to my GI and tomorrow have an appointment with a hollistic doctor.

I started taking the 6mp at night to see if I could "sleep off" the bad vibes it was giving me so to speak, and still taking two apriso at night and two in the morning. Even with the meds I still have double digit BMs a day, mostly mucus and diahreea.

about three weeks ago on a Monday I forgot to take my morning Apriso. During the day I had maybe 3 Bms. Then a week later I did it again and felt fine. For the last two weeks I have stopped taking my morning Apriso, still taking two pills at night and 6mp against my will for now. Since I stopped taking the morning pill, I have cut my daily bowel movements to more than half of what they were! My urges to run to the toilet are almost gone, and the mucus is almost completely non exsistant.

Wondering if I should stop the pills entirely? How can you go into remission when the "medicine" your supposed to be taking causes it too?
Posted 5/23/2013 6:12 PM (GMT 0)
maybe more to do with interaction between the pills and the 6mp then? Glad its helping you.
Posted 5/23/2013 6:17 PM (GMT 0)
Boy do I wish I had an answer for that one. Before being diagnosed I was only having 2-3 BM's per day but they were all blood and diarrhea. Not good. Since being diagnosed and on Asacol by blood is almost completely gone and I have formed stools almost always. Unfortunately I have 8-12 BM's per day. I strongly believe the Asacol is giving me increased BM's but I'm afraid to stop because I may very easily go back to blood and diarrhea again and I don't want that. There's also the chance that after stopping the Asacol that if I get worse then it might not work again if I resume. Tough choice. I have decided though not to do either prednisone, biologics, or immunemodulators such as 6MP.
Posted 5/23/2013 6:30 PM (GMT 0)
Mud10, to me it sounds like you are making some really bad decisions that could have some very negative consequences for the course of your uc. First, you stopped seeing your GI (if you don't like a particular GI then find another GI). Second, you are reducing your medication without a GI's consent (a GI can tell you whether it is safe to do so based on your current level of active disease, inflammation, and symptoms). Some people decide on their own to quit or reduce their medication because they 'feel better' or whatever. Sure it might work fine for a little while but it will eventually catch up with you. In a lot of cases, you end up in the middle of a uc flare up which can be a pretty miserable thing that takes months, and months to combat, and will likely required stronger medication than you were on before in order to beat.

Yeah none of us like seeing GIs regularly, and taking all of this medication but there is no choice. As uc is a chronic disease that you have the rest of your life, and the meds and drs are just a necessary evil.

Also, I think a hollistic doctor is a waste of time and money.
Posted 5/23/2013 6:35 PM (GMT 0)
Some people are intolerant to mesalamine. But it works for many more.
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