New here

Hello everyone! I am new here but I actually read through here all the time. I have been battling with UC since December of 2012, it came to me as my 25th birthday gift, Yay! But its all not all bad, I feel that there is hope to recovering from this naturally. I have read multiple books, and learned so much about eating healthy, and developed a better relationship with god, and all these things that never would've happened without it. At the very least if I don't over come this the way I want to, implicating my new found knowledge into my sons life will hopefully prevent him from ever developing any health problems like this.

My extensive research and the various books I have read have lead me to my current plan in countering this illness. I am on a very careful and restrictive diet. I take a plethora of supplements. And, I am currently in the process of acquiring probiotic strain: Escherichia coli (E. coli) strain Nissle 1917 (Mutaflor) <-- it is a special strain with countless positive trials and studies in the treatment of UC but our lovely FDA has it on lock down, similar to raw milk. Apparently these beneficial things are too potentially "dangerous" for us, where as cigarettes, alcohol, gluten, sugar, aspartame, GMO's, and other things are not. I guess that's why Fecal Transplants are near impossible to obtain in the US as well, too "dangerous." I could go on all day..

Anyways, I have 4 days left on Prednisone (round 2), and hopefully with my diet and supplements I will be able to minimize the refractory effects of the drug leaving my system and be on my way to a healthy recovery. Otherwise, I will be back in the hospital for the 3rd time and probably end up on something like 6mp which just sounds amazing.. possibility of lymphoma, kidney failure, birth defects, etc.... yeahhhh I'll pass unless its life or death.

Are you opposed to trying rectal meds?

Post Edited (Labyrinth) : 6/8/2013 11:43:40 PM (GMT-6)

How do I remove it? Sorry I didn't know that, just thought I could help some one. No i'm not opposed, in fact I'd be willing to do absolutely anything, they just don't work for me. And I'm allergic to mesalamine.

I wouldn't say I have it all figured out, not yet, but I am doing my best. We will see the outcome when I come off prednisone completely. When/If I discover a definitive healthy solution, I plan to share it with everybody. Right now my primary game plan to combat the refractory effects of prednisone is a strict anti-inflammatory diet, possibly even and elemental diet combined with plenty of dha and epa omega 3's and a long list of supplements and herbs.

I have looked into LDN briefly, it seems to have a lot less serious side effects than any of the traditional immune system modulators. But how difficult is it to get a doctor to prescribe it to you?

InSoFla, I read your story from the link. Extremely similar to mine. Mesalamines are actually what put me in the hospital this last time. And we follow almost the exact same diet and similar supplementation plan! But I did learn of a few things from you that I am going to look into, thank you!

Arocko,

My pleasure.

Interesting that our stories are so similar.

Let  me know how else I can help you.