Droped to 20 on pred and symptoms returing?

I have been eating home made without sugar as well as regular baked beans with sugar

I went back up to 20 mg and have an appointment with GI next week. We will see how it goes. Meanwhile I'll ramp up the beans and add in some enemas the next few days.

I was thinking about giving uceris a shot to help me finish this taper. Wonder if it is possible to take Uceris while finishing a Pred taper? Been doing the enemas for the last couple of days and switched to a low residue diet since I got plenty of blood and urgency. Still only going 5 to 6 times a day though so at least I can go to work ok. I tried Uceris alone a while back with no results

aguywithuc said...

scum1 said...
Taper is going easier and my symptoms are not getting worse with this drop. Pretty much staying the same(so far). Loose and skinny stools show me I still have swelling but no blood or mucus or real urgency. Frequency is not bad either. I been awake since 4 am and have not been to the bathroom yet. Got some gas but then again I been loading up on the Baked beans. I really am hoping my next Remicade on the 29th will fix whats left to fix. Will have to wait and see.

Yes I missed a day of Navy beans and ate downtown at restaurants, did fine but back on the vitamin A chili with Navy Beans and dropped to 5mg prednisone.

Just cannot seem to stop eating some junk food like cherry coke and apple fritters but it seems to not matter. The low pred does cause fatigue so taking Yohimbine-HCI to counteract that and sleeping deeply. Nice thing is the first half of this pred cycle I would awaken middle of night with urgency.

No urgency at 5mg. No blood, solid stools thanks to :

Navy beans
Vitamin A
Raw Adrenals

Vitamin A chili?

freddyj said...

aguywithuc said...

scum1 said...
Taper is going easier and my symptoms are not getting worse with this drop. Pretty much staying the same(so far). Loose and skinny stools show me I still have swelling but no blood or mucus or real urgency. Frequency is not bad either. I been awake since 4 am and have not been to the bathroom yet. Got some gas but then again I been loading up on the Baked beans. I really am hoping my next Remicade on the 29th will fix whats left to fix. Will have to wait and see.

Yes I missed a day of Navy beans and ate downtown at restaurants, did fine but back on the vitamin A chili with Navy Beans and dropped to 5mg prednisone.

Just cannot seem to stop eating some junk food like cherry coke and apple fritters but it seems to not matter. The low pred does cause fatigue so taking Yohimbine-HCI to counteract that and sleeping deeply. Nice thing is the first half of this pred cycle I would awaken middle of night with urgency.

No urgency at 5mg. No blood, solid stools thanks to :

Navy beans
Vitamin A
Raw Adrenals

Vitamin A chili?

Yes I posted a lot about it.

Scientists Uncover Protective Influence of Vitamin A against Inflammatory Bowel Disease

"Scientists at Trinity College Dublin have made novel discoveries around the protective influence of Vitamin A against the damaging immune responses that lead to inflammatory bowel disease. "

So grass fed beef, chili ( high in vitamin A ), choppped/steamed broccoli,spinach,cabbage plus RS diet Navy beans.

One week zero prednisone after starting at 70mg. Doing fantastic had perfect poop yesterday. I did have to stop oregano oil and stop choco coconut macaroons. Things went right back to normal after I kicked them out. Shared a liter of cherry coke with my daughter yesterday, lots of cheat foods ok if your healed up.

Ok been on pred since may. So GI said stay on the 20 mg pred(no boost!), worried about cdiff so we know its antibiotic time :( doing a Prometheus test to check Remicade antibodies. Refill enemas, if Remicade test comes back good will upping Remicade dose. If things are not good then on to some research meds in a few weeks. Still have to discuss those.

scum1 said...

aguywithuc said...

scum1 said...
So going to the GI in a few hours. Thing have progressed from bad to worse. Lots of blood and some fever at the moment. Wife is already freaking because she thinks I'll be back on a high dose of Pred which makes me a bit crazy.

What did you say your transit time was ?

Just figured out what you meant by transit time. Hard to say since mainly passing blood. I do seem to have a real movement like once a day though so I'd say a good 6 hours from when I eat to when something meaningful actually comes out.

So until the transit time normalizes > 24 hours the navy beans will not work. They have to ferment into SCFA butyrate which I learned when I tried too late to jump back onto RS diet. After a week of pred and slowing agents I was back on RS and never bled again.

Transit slowing agents: ask the Dr. for vicodin/percocet when my catscan showed pan colitis they gave me vicodin on request, they only give it for pain, wont give it for its side effects which I seek.
Other slowing agents:
- Mebeverine
- Librax
- Immodium
- Pepto bismal ( very surprising, I was mostly blood but started pepto and at hospital shocked that what I produced for them was much more normal, pepto bismal helps which is surprising )
- slow digesting solid food
- psyllium seed powder ( gentle and smooth unlike husk )

Also to stop the bleeding and increase your iron try wheat grass. Studies showed it reduced bleeding and is also known to fix anemia which it did for me, now I eat more beef and am not bleeding so no problem dont need it.

aguywithuc said...

freddyj said...

aguywithuc said...

scum1 said...
Taper is going easier and my symptoms are not getting worse with this drop. Pretty much staying the same(so far). Loose and skinny stools show me I still have swelling but no blood or mucus or real urgency. Frequency is not bad either. I been awake since 4 am and have not been to the bathroom yet. Got some gas but then again I been loading up on the Baked beans. I really am hoping my next Remicade on the 29th will fix whats left to fix. Will have to wait and see.

Yes I missed a day of Navy beans and ate downtown at restaurants, did fine but back on the vitamin A chili with Navy Beans and dropped to 5mg prednisone.

Just cannot seem to stop eating some junk food like cherry coke and apple fritters but it seems to not matter. The low pred does cause fatigue so taking Yohimbine-HCI to counteract that and sleeping deeply. Nice thing is the first half of this pred cycle I would awaken middle of night with urgency.

No urgency at 5mg. No blood, solid stools thanks to :

Navy beans
Vitamin A
Raw Adrenals

Vitamin A chili?

Yes I posted a lot about it.

Scientists Uncover Protective Influence of Vitamin A against Inflammatory Bowel Disease

"Scientists at Trinity College Dublin have made novel discoveries around the protective influence of Vitamin A against the damaging immune responses that lead to inflammatory bowel disease. "

So grass fed beef, chili ( high in vitamin A ), choppped/steamed broccoli,spinach,cabbage plus RS diet Navy beans.

One week zero prednisone after starting at 70mg. Doing fantastic had perfect poop yesterday. I did have to stop oregano oil and stop choco coconut macaroons. Things went right back to normal after I kicked them out. Shared a liter of cherry coke with my daughter yesterday, lots of cheat foods ok if your healed up.

Guess Ill have t look for those posts... Is it a special kind or are you saying chili is just generally high in A?

And scum..

Uceris doest not work exactly like prednisone, it does not cause adrenal insufficiency like pred does, so finishing with that wont negate the need to taper pred. Id still say its a good thing to try before pred, but it didnt work for me.

Good news I guess? GI called and said drop the Cipro but increase the Flagyl to 14 days because of an infection. Maybe that is the problem after all. Fingers crossed

freddyj said...

Guess Ill have t look for those posts... Is it a special kind or are you saying chili is just generally high in A?

Chili Peppers are high in vitamin A. Chili packs are high in Vitamin A. I use lowreys.

So grass fed beef, chili ( high in vitamin A ), choppped/steamed broccoli,spinach,cabbage plus RS diet Navy beans. Cheddar is high in vitamin A and where it gets its color from. Tonight we had swiss over the top, no veggies, but chicken chunks and more cheese with chips - great nachos.

Just did a bunch of bloodwork, everything is chill.

my fault if you did....I didn't check back the 5 pages.

feel better soon!

q