colon healed

Awesome! I've read that cymbalta is being used off label for IBD with some success. Do you think that might have helped at all?

That's great news! Very happy for you! I, too, am interested in the Cymbalta link. I was recently started on Wellbutrin, which has been shown to have some link in improving UC.

I pray for the same result. I'm desperate!

Starting humira with starters pack, four shots, next tuesday.

WooHoo!!! May it continue for a loooooooooong time!

q

Thanks everyone. I did not know about the Cymbalta link. I will have to ask my doctor about that because I was about to be taken off of it because it conflicts with my migraines meds. I am also doing the Wellbutrin. I was going to switch to the SR but since I found out I am doing good I am going to stick with the regular. Geeker do you know that you are supposed to take the non slow release to get the UC benefits? You are supposed to take the one you take three times a day.

Excellent news! Long may it last! Are you on weekly Humira or fortnightly? They're thinking of increasing mine to weekly - been on it since Dec.

Conquer that is all the can figure. They said i might have had the shingles without a rash. Where the pain started it could be intercostal neuralgia. This time is has been over farther so I am not sure if it could still be that. However my GI said that my UC could have made the nerves in my abdomen become confused. But the pain had gone away mostly for almost two months then about a week and a half ago returned and gets worse each day. That is why we did the sigmoidoscopy. But we know for sure now it is not my UC because my colon is so well healed it looks almost normal. (Don't worry I know I still have the disease and will remain on all meds).

So the meds I use for the nerve pain are Lyrica, Cymbalta, a cream made of ketamine, gabapentin, and lidocaine. I am also on Topamax and amitriptyline for other reasons and my doctor says they may help too. It was strange because the pain came back when I would have a BM and I could feel the stool move through the area. But I have an appt on Wed with my PM and will try to get another set of nerve blocks.

Minners I am on Humira once a week. Thank you all for your kind posts. I appreciate you.