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Rowasa burning/warm sensation

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Ulcerative Colitis
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Posted 7/10/2013 12:19 AM (GMT 0)
Hello, I was diagnosed with UC around 3 years ago. This was after years of being misdiagnosed with IBS for years. I have been in remission for around 2.5 years and was first taking Asacol and now I am on Lialda. A few weeks ago I began to have a flare up. My doctor recommended Rowasa enemas. I started it last night and ended up waking up at 1am with burning pain in my abdominal area... it finally went away (after 30min) and I was able to fall back asleep... Has this happened to anyone else? Any advice? Does it get better?

Post Edited (reubensandwich) : 7/9/2013 9:44:53 PM (GMT-6)

Posted 7/10/2013 1:41 AM (GMT 0)
Is it a cramp like feeling? If so, try squeezing the air out of the bottle before inserting. This might help with any discomfort. I've had a wide variety of sensations when I was on Rowasa, but I can't say if it was burning pain or not. But I've had the cramping.
Posted 7/10/2013 2:37 AM (GMT 0)
Thanks Sherry.

It was a strange feeling and hard to describe. That could possibly be because I was so exhausted when it woke me up in the middle of the night. It felt like a warm cramping pain. I will try and let more air out of the bottle and see if that helps.

Do you also get really tired when you are having a flair up? I am exhausted ... I feel like I haven't slept in weeks....

Hoping to have a better night of sleep tonight :)
Posted 7/10/2013 11:16 AM (GMT 0)
Oh yeah most definitely. When I'm flaring there are some days I can barely get off the couch! Have you had your blood tested recently to make sure your not anemic?
Posted 7/10/2013 6:23 PM (GMT 0)
Yes I get it fairly often...it's normal with having a heavy amount of liquid in the intestine...as well, spasming in the gut causes that feeling.

I don't know if it's the extra air in the bottle...but worth a try to squeeze it out. Please don't let it lead you to thinking you shouldn't stick with the enemas. They're going to become your very best friend!!!

Welcome to the forum.

q

Posted 7/11/2013 12:15 AM (GMT 0)
Thanks! I tried squeezing the air out last night and was able to sleep through the full night without much pain. I am sooooo tired today. Did get some bloodwork done and it doesn't look like I am anemic... planning to speak with my doc via phone tomorrow. Thanks for all the support. I am glad I found this forum.
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