Fecal transplant thoughts?

I have tried it and will probably try it again at a future date. Once you get past the "ick" factor, it was not that big of a deal. I did not notice any improvement, but I only tried it a few times. If I did it again, I would try it for a longer period of time. Part of me says to. not worry about it since I am in remission while the other part says that now might be a good time since I can hold the enema longer and it might be a better environment for the bacteria to grow.

Thanks for the feedback....

Jax: Yes, I heard it is best to do it when you're as healthy as possible. That's why I'm waiting a little while until I get out of this really bad phase. I hope it works for you next time.

bananagirl: Good to know. I think my insurance would cover the procedure with a doc's help, which would be great and make me feel a little less gross about it.

I am about to see a doctor who would do it for me, but they said I need to be in remission first and they do it via colonoscopy so it will reach further. anyway i'll keep you posted about the progress

Hve you had food sensitivity testing done yet? It is highly recommended for those with any type of gastro disease. I am refereing specifically to IgE and IgG testing. They test your immediate sensitivity and the other delayed sensitivity to foods and allergens. It may be worth doing. I am waiting on my results to come back from my recent delayed sensitivity testing and am excited to see what it finds. I had the immediate one done and it identified shellfish and as bad for me.

Hope this helps.

HillHunter, did you find this thread about FT? There is a ton of information and Dr Briggs gave a very detailed explanation of his process on page 4 on the thread.

https://www.healingwell.com/community/default.aspx?f=38&m=2541306

I'm getting more and more convinced that I should give it a try. I'm actually feeling great right now...I started SCD a little over a month ago and have had 1 or 2 normal bms with no blood for the last 10 days. I'm started eating raw fruits and veggies this week and having no issues. I am on Remicade, but my last infusion was 8.5 weeks ago (I was scheduled to go last Friday but the hospital asked me if I could come this week instead, so I am going tomorrow). I don't think the Remi is what is making me feel good right now since I flared for a couple of weeks since my last infusion.

Since SCD seems to help me, I feel like I am a good candidate for FT. I'm not quite ready to try it myself though it seems like it is very difficult to find a doctor willing to do it for UC right now. A very, very sweet friend of mine who is a nurse offered to prep the bags for me, but I'd just feel like a wimp (and she lives several hours away) to make her do that. It is nice to have such a good friend though!

If anyone knows of a doctor in the US (preferably the Mid-Atlantic or Northeast) who will do it for UC, I would definitely want to talk to him/her!

For reasons that no one understands, fecal microbiota transplant works for some with UC and not others. For more info and some success stories check out thepowerofpoop.com

Update: I'm starting the FMT this Friday or Monday at my home. My 16yo brother will be my donor (gotta love him) and my dad will help prep the enema bottles/blend and whatnot (gotta love him even more). They want this to work for me so much, they're willing to do anything. My job will be simply to continue with the diet my doctor is recommending and to do the infusions/hold them.

Also, my dad asked me to research maybe some quick tips for how to prep...anything that has worked or hasn't for you all? I've gotten a lot from other threads and google, but I told him I'd ask once more, just in case. So far some good stuff I've found:
1) Make sure there are no chunks :/
2) Imodium if I can't hold it.
3) Gloves!!!
If you have any other tips from experience, I'd love to hear! If not, maybe just send me good vibes. Praying that this works! Take care.

When I had CDiff my doctor volunteered the option of having FT done, and I got the feeling he would've even been willing to try it for my UC. But, I got too sick too fast and never got the chance to give it a shot...hopefully you DO get to try it and it works very well for you.

On a side note....I know that surgery is an absolute last ditch option for you, but, you really don't want the first time you talk to a surgeon to be once you've gotten to an "emergency" situation. Meeting with someone, finding out if you trust them, discussing your options, etc...will make things MUCH easier and less stressful should that dreaded emergency ever arise. Just something to think about.

hillhunter, definitely make TWO enema bottles for when you are ready. this is just in case you expel the first bottle too fast so you have another one for back up. that way, you don't have to get up and make a whole new one.

Ha, yes soystud, anyone with UC will agree with that.

Thanks everyone for the responses...some great tips!

UCwhat, thank you. I agree and actually did go see a surgeon a couple weeks ago for the reasons you talked about. He was completely awful and made the process seem way scarier than I even thought. Plus, he never once said it would improve my life at all. Just confirmed my choice to try anything and everything before surgery.

Exactly--I think I'll take out my colon myself before I go back to that guy. Ha.

hi everyone
had a really strange happening that turned out to be a real blessing in disguise. while in france on vacation had a small intestin blockage. cause vomiting and watery diarrhea for 2 days on flight home to sioux city,ia.
got home went to er they misdiagnosed me the first time ther. went back day and a half later and the took xray and saw the small intestine blockage. got put on iv immedeately and was on for two days before operation. operation was very succeful but stil on iv for 2 more days. all in all 7 days with nothing but iv's not everyany water. anyway came out of hospital and had diarrhea for 1st day. went on prednisone 40mg 1st day and diarrhea stopped imediately!!! stayed on prendison 30 mg for next 3 days but went on the scd diet. no sugar, dairy,flour, rice or anything white. ulcerative colitis stopped to 4 stools a day then 3 stools and now i think i am completely cleared of any colits. the reasone my colitis has cleared i am sure is because gut was completey cleared of any bad bacteria and also the gut had time to heal the former inflamation that i had, also the special scd diet played a hugh role in helping everything clear up. this is the first time in 8 to 9 years that i have been bact to normal. hope this helps some of you out there

james manning registered pharmacist in iowa email [email protected]