Life is not fun at the moment

So this morning i woke up after not heading to work yesterday and sleeping most of the day away. Only think i could eat was a yogurt and a quart of wonton soup later that night. I went to bed early hoping sleep is what my body needs to help fight this flare up. I sometimes wake up 2-3 times a night to relieve my bowels but last night i didn't. I didn't even have to really go in the morning so I felt that taking the day off really helped. I headed to work after eating a small breakfast because my sugar was on the lower side. Work is about and hour and a half away for me which is unbearable when you get an urge. I thought i was in the clear until about 4/5 of the way to work. I got a very sudden urge to move my bowels and had to pull to the side of the road. I sadly wasn't abel to make it to an area that was secluded fast enough (so embarrassing) I had to buy new pants and decided that i would put it behind me and move on with my day. It happened again right before pulling in my company and at this point I had to call out.

In the past I have never called out of work, even with a cold i just pushed through my day. I feel embarrassed these days even talking about it but how do you guys cope. Do you tell your company your health issues? Also, I was told this week I can move to 1 shot of Humaria a week instead of bi-weekly. My shot is supposed to be for tomorrow but can i take it a day early? I just want relief and for my life to be somewhat back to normal.

I think it is a lot easier not having breakfast on work days. That's why I do. Basically I don't have much food from snacks at night until lunch the next day. It's my routine and I'm used to it. Does Humira work at all? I mean, are you getting one good week anyway at least? If not then I don't see where moving it up to weekly is going to help that much.

I took my loading dose on June 1st. I wasn't having an issue until i returned home from our camping trip which was July 8th. That week (july 8th) it hit me. I just saw that a lot of people taking Humaria on this forum take it weekly so i asked my Dr what he thought and told him I had a flare up at the moment. He said to take it weekly and I see him next Friday.

I like the baby wipe and bag idea. Might be something I need to adopt. I usually don't eat breakfast either but because i woke up and my sugar was 39, i had to eat something and just a half a cup of juice wasn't going to cut it.

I work as a consultant doing engineering work. I'm currently working with an pharmaceutical company that wants us there physically to bill hours to them. Some companies in the past have made it easy because we were able to work from home on reports and tuff that didn't require us to collect data or something. I might need to explain my situation if this continues, it will be very embarrassing but if it shows some in sight to what i deal with and the reasoning behind me not being able to show up physically at times, it might need to happen. I just hope that the Humaria kicks in for the long term soon. Since Remicade is in the same family and the fact that you have to sit in the office to take it multiple days a week, not sure if it will help. We will see though. Thanks for the advice and support everyone!

Sorry to hear about your morning. Long drives and sitting in traffic always worries me as well.

Yikes, that's a loooooooooong way for you to drive to work.
You're not doing well at this point, I don't see that you would have to wait a day for your shot. How upsetting to have an accident when you were so close to work. The butt rules when it's not doing well...darned near impossible to control it.

I would suggest you use rectal meds to deal with the rectal inflammation and hopefully help you with the urgency..use them at night and they might just get you through the time between shots.

Since you are diabetic, you obviously cannot miss any meals. Skipping them could be a detriment, but choices and time to eat might help with your bms during this time.
It's subjective as to what to eat/drink...what do you normally eat in the mornings?

Are you on any probiotics and/or fibre supplements? Sometimes antispasmodics can help with urgency.

Since you were on holiday camping, are you noticing anything more wonky about your bms...such as the odour, etc? Maybe you picked up something? If you don't improve after your shot, consider stool testing.

I encourage you to try the rectal meds...either mesalamine or steroid or both....

Feel better soon!
q

lemonhead said...
I carry ziplock bags and baby wipes. If I get an urge, I go in my car. I got over the embarrassment a long time ago. Better to poop in a bag in the car then have an accident. Even take it with me to my kids sporting events. I keep a towel in the car to cover myself too. Sometimes I prefer to go in the car rather than in a port a potty. I put the ziplock in a supermarket plastic bag and trow it away when I have a chance. I am on Humira too, and I would wait to take it as scheduled. You just took your loading dose, right? Give it a couple weeks before you give up on it.

I really admire your adaptability.

please ask for the mesalamine enemas as well. Small price to pay for a huge return should they help you.

q