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The blood and mucus have stopped but still have D

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Ulcerative Colitis
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Posted 7/27/2013 7:33 PM (GMT 0)
When that happens, that usually means that remission is on the way, right? I am tapering off of Pred and on Humira (2nd loading shot completed).
Posted 7/27/2013 7:41 PM (GMT 0)
It means your symptoms are improving. Remission..I don't use that term as my holy grail.

It's the process you're going through now that you need to recognise and note that you are improving! You're also tapering off pred, so you may have a few ups and downs. Hopefully the Humira will make it an easier.

q
Posted 7/27/2013 8:13 PM (GMT 0)
Yeah. In my book there are three things: getting better, getting worse, or the same ole same ole. Other than that I don't think you can put much stock in anything.
Posted 7/27/2013 9:15 PM (GMT 0)
ya, I kinda agree with gary -

that R word bugs the crrapp outa me - sorry, it just does - like he said, i'm feeling better, i'm feeling worse, or i'm good -

for me it's more about what I can DO, not how I feel -

so........ I hope you indeed are getting better :-)

Posted 7/29/2013 12:26 PM (GMT 0)
My symptoms are so weird anymore. I am still averaging 20 times a day with very little to no blood or mucus just poop. The poop tends to be on the dark side but doesn't look black which would concern me. The worse part is that I have the worse D from bedtime (9pm) until 1am most nights and then again from 6am until 9am. I am sleeping so little and hardly eating. I think I've lost 14lbs in the past 10 weeks due to lack of eating and the D.

I am going to call my doc today to see if he will prescribe Immuran again. I was on it before and it helped. I'm hoping that combining it with Humira will get me over this. 10 weeks into a flare sucks.
Posted 7/29/2013 1:18 PM (GMT 0)
I find when I am going about 20x's a day that an anti-spasm medicine helps me out tremendously, it helps relax my colon and sphincter. I take Levbid twice a day.
Posted 7/29/2013 1:38 PM (GMT 0)
I'm kind of surprised you are tapering pred if your still going that many times a day. The no blood or mucous is a good thing of course but I wouldn't be tapering yet if I was still going that many times a day. How long have you been on pred and how much are you taking now?
Posted 7/29/2013 2:03 PM (GMT 0)
I have been on Pred since July 1st. I think I need to increase my dosage.
Posted 7/29/2013 3:11 PM (GMT 0)
What dosage did you start out at? And what are you at now?
Posted 7/29/2013 3:17 PM (GMT 0)
I was in the hospital for 3 days getting IV steroids from july 6-9th. Since then was on 40 for the first week and was supposed to be down to 10 right now. I'm actually on 20 and just took an extra 10 on my own right now. I also have humira (finished loading and doing 3rd shot next week).

Was supposed to take lialda which I had a bad reaction to, rowasa also bad reaction, and taking Canasa which is ok.
Posted 7/29/2013 3:54 PM (GMT 0)
Hmm 40 for only a week seems kinda short to me. Especially as you just finished your loading dose. What was your bad reaction to lialda and rowasa?
Posted 7/29/2013 3:58 PM (GMT 0)
Lialda gave me flu like symptoms and Rowasa gave me awful D
Posted 7/29/2013 4:29 PM (GMT 0)
Ok well Canasa is made up of the same stuff. Maybe it too is making you need to go so many times a day. Just a thought even though I still think the pred taper may be too quick.
Posted 7/29/2013 4:59 PM (GMT 0)
Going to stick with the Pred, up it to 30mg on my own, and hope the humira kicks in.
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