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Ulcerative Colitis
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Posted 7/31/2013 9:12 PM (GMT 0)
I just joined this site, but am not new to this horrible disease. I have suffered for years and thought for a long time I was alone. I had no idea how many people are suffering out there too. I am at week 13 of another flare and my doctor is starting me on Remicade tomorrow. I am currently taking Lialda 3x day, 6mp 75mg, aciphex, rowasa, vit. B-12 shots, vit D, multivitamin with iron, atenolol, wellbutrin, and am tapering down on prednisone (leaves me shaking like a leaf, wired, and can't sleep). I was on a low fiber diet from Mayo clinic for years. Helped some of the time. I went gluten free 3 weeks ago and am not having to run to the bathroom 6 times a day. Still bleeding, unfortunately. Blood test 3 weeks ago showed I was anemic from all this blood loss, so now I have a new iron supplement added daily. I am nervous, scared, hopeful and excited about getting my first dose of Remicade tomorrow. Hoping I just sleep thru the whole thing. Benadryl puts me out:-)

Post Edited By Moderator (Madcat25) : 7/31/2013 3:27:37 PM (GMT-6)

Posted 7/31/2013 9:26 PM (GMT 0)
Welcome Purple Artist! Good luck with the Remicade tomorrow. I will be starting that myself soon, so I know it can make you a little nervous. Hope you are one of the ones that it really helps. :)
Posted 7/31/2013 9:26 PM (GMT 0)
Welcome to Healingwell. The Remi worked for me, hope it works for you!
Posted 7/31/2013 9:45 PM (GMT 0)
Thanks for the well wishes. Dealing with a lot of out side stress this week isn't helping things. My uncle died yesterday from pancreatic cancer. He didn't go to the doctor when he first started feeling sick, so when he finally had to, it was too late to help him. My mom, (his sister) is having barium tests done as I type because of black tar diarrhea for a week and she won't tell anyone else in the family. So I'm dealing with those things on top of "normal" life stuff. I am the only one in my family with UC and no one (except my awesome husband) gets it!
Posted 7/31/2013 9:54 PM (GMT 0)
I am so sorry that you are dealing with so much stress and hardship right now. Do whatever you can to relax and quiet your mind, as I am sure you know, stress can worsen your symptoms. My family is just now starting to "get it". So I certainly know how that feels. I think it's hard to understand without having been there, or living with someone who has been. I remember in the beginning my doctor told me that my life was going to be seriously altered. At that time, I couldn't really understand exactly how true that was myself. Sending well wishes to you and your Mom.... sympathy for the loss of your uncle. Be well :)
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