SCD and solid stool

I've been on SCD for just over a month now.  I am on Uceris but discontinued it 4 days ago to see if the new diet made any difference.  I haven't had a BM in over 3 days.  Finally did a little while ago and it was solid and almost looked like the good ol' days!  I almost cried I was so exited. 

I've had UC for over 18 months and this is the first solid one for sure.  I had been on Uceris since late March BTW and it looked nothing like this. 

What does that mean? "limited rectal inflammation"? Isn't that the point? Just wondering.

Regarding diet: Yes, that's exactly what I'm doing with the SCD as my Dr is nice but the drugs she is giving me are not cures and not doing anything but covering up the symptoms. She said I'm supposed to go on Remicade in a month or two and that scares the **** out of me.  I would rather eat well and maybe find remission, than eat what I want and be on an autoimmune suppressive drug that presents other problems. I have no other options at this point.  Fecal Transplant is next if this fails. 

Q the jerk store called...

Seriously are you even qualified to be on here naysaying everyone who is using non-prescribed means to help themselves feel better as though you are the expert?

I've read many of your posts in my relatively short time on here and I've noticed that while you seem knowledgeable about the many drugs people take, you have a hugely negative outlook on ANYONE trying to help themselves get better on their own.

In my initial comment I say I have felt better than I have at ANY time suffering with this in the past 18 months and you disregard the fact it could be linked to a healthy diet?

It's not like I'm the first one on here to make this claim regarding diet. I'm sure hundreds have done so - has it never occurred to you to try alternative methods yourself? Is it easier to simply take prescribed meds than do the work required for a wholesome diet? Meanwhile, nothing changes health-wise...

I'm sure many Dr.'s discredited the entire Fecal Transplant situation too until people on here took matters into their own hands and cured themselves. What about them? Are they fools too for grabbing their kids diaper and sticking up their bum? Now they come on here to share their stories and encourage others. Thank god for these kind of reports. They help others stay positive and give people hope that need it.

I would never be so presumptuous as to assume that a UC cure could never be possible nor am I at the point of giving up - claiming there is no cure (esp. if one's background is in cosmetology)when I have no medical science background.

People come on this forum to share stories, find out about new treatment ideas and ultimately get better so they can move on with their lives. Not hang on for years taking the same old drugs and finding little benefit and growing increasingly bitter as time passes.

Adventure, let me back up your words.

Q, not sure about the details of all that stuff your taking and it's not my business. I would not be surprized if your meds were affecting your attitude ( believe me I was there in a fog for many... years).

For most of us we are on this site partly because of what we ate or drank, that means every thing that we put in our body over the years.     SCD was a base line for me. As well know, we are what we eat.

Sorry Q, we are here to help our selves and others. Meds. have a place & time for our illness and it does not need to be for life.

, Adventureuc said...
Q the jerk store called...

Seriously are you even qualified to be on here naysaying everyone who is using non-prescribed means to help themselves feel better as though you are the expert?

I've read many of your posts in my relatively short time on here and I've noticed that while you seem knowledgeable about the many drugs people take, you have a hugely negative outlook on ANYONE trying to help themselves get better on their own.

In my initial comment I say I have felt better than I have at ANY time suffering with this in the past 18 months and you disregard the fact it could be linked to a healthy diet?

It's not like I'm the first one on here to make this claim regarding diet. I'm sure hundreds have done so - has it never occurred to you to try alternative methods yourself? Is it easier to simply take prescribed meds than do the work required for a wholesome diet? Meanwhile, nothing changes health-wise...

I'm sure many Dr.'s discredited the entire Fecal Transplant situation too until people on here took matters into their own hands and cured themselves. What about them? Are they fools too for grabbing their kids diaper and sticking up their bum? Now they come on here to share their stories and encourage others. Thank god for these kind of reports. They help others stay positive and give people hope that need it.

I would never be so presumptuous as to assume that a UC cure could never be possible nor am I at the point of giving up - claiming there is no cure (esp. if one's background is in cosmetology)when I have no medical science background.

People come on this forum to share stories, find out about new treatment ideas and ultimately get better so they can move on with their lives. Not hang on for years taking the same old drugs and finding little benefit and growing increasingly bitter as time passes.

I found that going gluten free solidified my stool within a couple of weeks. SCD is a gluten free diet. I am not sure that being gluten free did anything for my inflammation, but after a year of being GF I had my first clear scope. I am also taking all of my meds and have no plans to stop.

I am not sure that I would say "SCD is a healthy diet." Of course SCD is a healthy diet, but it is not the only healthy diet out there and just "eating healthy" is not what SCD is about. It is a grain-free diet. I think that is where the "magic" is.

Yay good to hear scd is helping 😊💜 And kudos for sticking to it so far because it is hard!! Hope you keep feeling good 😊

I think if I had the choice of healthy body/not so healthy colon vs sick body/sick colon, i'd take the first any day -

keep after it B-girl -

Post Edited (soystud) : 8/4/2013 5:29:00 PM (GMT-6)

bananagirl, have you tried raw goat milk kefir? My integrative doctor actually recommended it to me over raw milk.

chrissysoul,soystud - thanks for the support! good to hear when your trying to get better

bananagirl, after all that you have been through maybe you need a little break from the exhaustive food counting and regimented diet.
SCD can get old and I've only been doing it a month! On a normal day I'm ok with it but
my little girl turned 1 Friday and we bought her some bakery cupcakes to celebrate Those are probably one of my favorite things to eat. It was almost painful to watch the kids eat them - they looked so good. I just have to keep reminding myself since SCD seems to be helping, I need to keep with it.

Are you still hospitalized? I hope all is well.

adventure, i'd have to say icing is my favorite food in the world. just the pure sugar stuff at the grocery store bakery. it's better than any fancy bakery. and congrats on your daughter's first birthday!! I hope it was a fun day for you guys.

stealth, I got the culture from "cultures for health" website. I haven't tried store bought before. I like making my own though. it's really easy and takes less than 10 minutes a day to maintain.

so zuke - when was the last med you took ?

awesome that you are doing so well -

 

I gave up enemas for diet to control my rectal inflammation, and it just improved me slightly. Going back to enemas and keeping up the diet was the best thing. I eat so much healthier since getting UC but I don't think it relieves symptoms. And yes, there is no cure.

In defense of Q, she may have an attitude, but she knows what she's talking about and she really cares about helping people. I can remember being in dire straights late at night and her being there to help.

She may be blunt and I don't always listen to her, but eventually I come around to see her side of things.