Need medication ideas

I was using mesamelamine ennies and now i cant tolerate them. I take colizal but only 3 once a day because they give me wicked headache.

I think that plan gave me my latest issues.

I am still taking 3 a day but now I use steriod ennie nightly.

Should I revisit Apriso? I have some samples.

What butt meds can I safely take in conjunction with oral?

I am going to meet with doc this week.


Thank you so much!

Lialda and cortenema. I am currently tapering off the steroid enema. After 9 weeks of daily use.

Ooops just read sig! Disregard lialda question!

Any steroid of any kind is never suitable for a long term solution.

If you are unable to tolerate mesalamine you are going to have to switch treatment modalities to something systemic, like 6MP or methotrexate or a biologic.

Have you added probiotics and psyllium to your daily treatment plan?

The systemic meds all have potentially serious side effects, but they are different for each drug. Prednisone is probably the worst of the bunch, frankly, but it is cheap and effective and most people with inflammatory conditions take it in the beginning just to get their disease under some control. You shouldn't ever have to take it again - your goal should be to manage your disease so that you don't flare and need a quick fix from pred.

You can look up drug information online to see what the potential side effects are of different meds. Some of the info can be frightening, but the fact is that most of the terrible possibilities from things like 6MP are rare. The more common problems you can read about on this forum by searching the forum for the different drugs. Best of all, you should talk to your GI.

Sulfazine is an old arthritis med that is more commonly used now for people with IBD that also have joint pain. It breaks down in the gut to mesalamine and a
separate molecule that is thought to be effective in the joints. It works well for me and many others, but if you are intolerant of mesalamine it is not for you.

It has more side effects than straight mesalamine. One of the most troubling is supression of platelets. Mine have been below normal for a couple of years now, but everyone assures me I'm in no danger of excessive bleeding. Another common side effect is headache. I've become very fond of tylenol.

Hi Q! I am ok but feel there might be trouble brewing now that most of pred out of system. I think the infection is gone because no more cramps or d. But stool is softening daily and i seeing lots if mucos. That is new, havent see that in awhile.
Have a call into doc to see if i can just start the apriso and keep doing cortenema. This is only 2 week on those.
I am really lookind at supplements to but money IS an object and I dont want to start too many too soon.
How are you?

Personally, your initial goal shouldn't be to completely forsake meds, since you haven't yet tried the other options available...such as the apriso and Canasa...then use the steroid enemas for flaring and taper off to just using the Canasa again.

If you are able to use 5ASA meds again, then it's worth the trial before saying they're not good for you.

Sherry, who couldn't tolerate any other 5ASA orals is perfectly fine on the Apriso.

It's at least your last choice of oral 5ASA.

As far as adding alternative stuff...please do it slowly.

I'm doing great this week, last week my hemmie was a major PAIN, but I did add more Proctocedyl and a nightly enema for 4 nights...plus the topical Proctocedyl and all is good.  I should learn to deal quickly with that stuff, because I know better.  The cat's doing fine, I'm on a week off without being sick, so I'll be using this week to get back on track with some stuff.   I'm fully welcoming Sept...good riddance to the summer from hell.

q

Grape sized hemmies...uh, yeowwwwww! for sure I'll get on them right away, omg.

When will you be seeing the doc...for your scope? or an appt before that?

Yeah, it's possible it's the Colazal, and since you're on a way low dosage, you might as well try your options at this point. You'll at least know if the Apriso will agree with you.

Kiera sends hisses to your furbabies..;-).....yes, they are high maintenance.  I think mine is in her line of credit since she's probably used her nine lives already..ha.
q

See doc on friday and havent sched scope but will in next couple weeks. I think my disease has progressed but who knows! Kind of afraid of scope cause everyone here say it exaserbates issue but guess it already bad so doesnt matter. :-(

DMC2011 said...
Are there side effects to 6mp like from prednisone? I will not ever take that again.

Whoa, 6mp and pred are two completely separate and unrelated medications. I've been on 6mp since Jan 2013 and had no side effects from 6mp. 6mp knocks your immune system down a couple of pegs, so you have less inflammation. It helped pull me out of a nasty uc flareup. I haven't been sick since taking 6mp, survived cold and flu season without catching anything. I'd recommend trying it. Just be aware that 6mp requires regular bloodwork.

Insofar, I plan to ask about LDN on Friday.

Lol sorry! ;-)