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Ulcerative Colitis
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Posted 9/5/2013 6:30 AM (GMT 0)
My first suggestion....split the dosage of Apriso. Two at night, two in the morning...see how that goes.

Iffy on the Imodium, but maybe a half dosage?

only two sleeps till Friday!
q
Posted 9/5/2013 12:39 PM (GMT 0)
Two Sleeps! That is how I used to explain when things would happen to my kid! ;-)

What a night. I had D, so the Imodium helped. I got up early to see what might happen today. '

I have to work, but I fear D! So... I am waiting to see what is going to shape up or not. Ugh.

I will split the Apriso today.

Would like to try to off the cortemema too. I bet my doctor is going to suggest Uceris.

I think that because on the phone last week he wanted me to come in and get a "different" med like pred but with difference side effects. I found that it was probably Uceris.

Q, I am thinking the 5ASAS are not working for me, but I am not willing to throw in the towel until my life changes so much that it interferes with my job.

But I am so willing to give this Apriso and a Canasa combo a try. Just don't know how long I can deal with D and headaches too.

Ugh double Ugh. Ugh Ugh!!!!!
Posted 9/5/2013 7:21 PM (GMT 0)
It's a difficult situation that you're in. Try not to take too much of the Imodium.

How much fibre are you taking now?

It's possible that the Uceris can help you...but it's not a med that's for maintenance I don't think. If it helps and it can be maintained with the Apriso, that could be a good thing.

The Canasa might be a positive for you...or not...

Your scope will tell all, however...

Looking forward to your update tomorrow.

q
Posted 9/5/2013 9:04 PM (GMT 0)
Hi q. Been low residue so no fiber. Maybe i need some to bulk up.
Having hard time again today! It sure comes and goes! Not traveling to far fm pot.

If i ever get in remission again i will be so careful! This is when i start making deals with the devil right?


:-)
Posted 9/5/2013 9:05 PM (GMT 0)
If fiber what should i add?
Posted 9/5/2013 9:16 PM (GMT 0)
Maybe metamucil?
Posted 9/6/2013 11:04 AM (GMT 0)
if fiber - acacia fiber imo

your headaches and d as a result of the apriso sounds like an intolerance to me

Posted 9/6/2013 6:31 PM (GMT 0)
Since today is your appointment, I'm going to hold off to post until you report back :-)

No deals with the devil....it takes control out of your hands and you just become an observer.
q
Posted 9/6/2013 9:56 PM (GMT 0)
D has subsided but headaches going strong at night! See you in a bit!
Posted 9/6/2013 9:57 PM (GMT 0)
Shoot and lower back pain! :-(. Does it ever stop? But that might be because I have not been able to walk as much as I used to for exercise.
Posted 9/6/2013 11:26 PM (GMT 0)
I am here waiting for somekind of ultra sound on my kidneys I think. I am to stay on apriso and cortenema. He gave me some samples of vsl #3. I asked about sulfite free rowasa. He didnt know about it. He said that correnema really low dose so can stay on awhile.

Because i have other health issues I cannot ever take biologics. That is completelt off the table for me.

He said he would give me LDN if this apriso combo doesnt work.

6mp would also be an option.

More later. I just hope the headaches subside.
Posted 9/6/2013 11:34 PM (GMT 0)
DMC,

He said he would give me LDN if this apriso combo doesnt work.

I guess you'll need to be patient...

Although the apriso combo would have nothing to do with LDN.

Posted 9/7/2013 1:04 AM (GMT 0)
He basically was just trying to make me happy. I asked him if I could take LDN if this combo doesn't work.

I was worried about kidneys because of back pain, but quick look showed nothing weird.

So for now I stay on Apriso path and hope the headaches go away. They only at night!
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