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Apriso & vaccination for 5 yrs old.

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Ulcerative Colitis
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Posted 10/1/2013 2:17 AM (GMT 0)
My daughter just turn 5 and it's time to get her 5 yrs old vaccinations.  I heard while taking apriso, mesalamine, you shouldn't get chicken pox vaccination. I called her pedi-GI, but only was able to talk to his nurse.

Is it ok to get chicken pox?  How about MMR?  She is due both booster shots.

Posted 10/1/2013 2:19 AM (GMT 0)
I have heard the same thing so I would definitely double check. Maybe even call a pharmacist.
Posted 10/1/2013 2:26 AM (GMT 0)
colonoscopy 2010, diagnosed with ulcerative colitis at age 2.
meds: apriso 0.375g 4 times a day, glutamine, colostrum, whey protein with almond milk, omega 3, liquid multivitamin, vsl #3,
diet: was on gluten free, then sugar trigger flare up in may 2013.  On very limited rice & veggie & salmon.
Posted 10/1/2013 3:26 AM (GMT 0)
I doubt there's a prohibition for a 5-ASA, since they don't suppress immunity at all. For imuron, 6-MP or a biological live vaccines such as chicken pox are prohibited.

However, after checking the CDC web site, it does say ASA (aspirin) shouldn't be taken for six weeks after receiving the vaccine. I don't know if 5-ASA's are chemically close enough to require the same precaution.

For sure your local health department should be able to answer this question for you. They are the ones who give doctors and pharmacists information, so you might as well go right to the source.
Posted 10/1/2013 4:41 AM (GMT 0)
I sure hope 5asa are not related to NSAIDs!

By the way I am sorry to hear about your little girl!
Posted 10/1/2013 8:44 PM (GMT 0)
Thank you so much for all the info. I will check with local Health department. I called pedi-GI again and the nurse told me he confirmed it's ok to get all vaccinations... We are spreading out one per week, then mmr and chicken pox a month a part as pediatrician recommended. She gets 4 + flushot this year. I really hope she won't have any issue. She had very little growth over last year with 2 long flare ups. :(
Posted 10/1/2013 9:10 PM (GMT 0)

DMC2011 said...
I sure hope 5asa are not related to NSAIDs!

Well yes they are. Fortunately there are not that similar.

NSAIDS are not steroidal anti-inflammatory. Aspirin, and 5-asa (all in salicylic acid family) are not steroids are are anti-inflammatroies.

There are some molecular similarities.
Posted 10/1/2013 9:12 PM (GMT 0)
Oh! I thought nsaids bad for UC. So confusing.
Posted 10/1/2013 11:57 PM (GMT 0)
I just want to say that it really sucks for a 2 or 5 year old to have UC. I have 8 and 6 year olds and live in fear that they may someday come down with this.
Posted 10/2/2013 1:11 AM (GMT 0)
@garylouisville It really sucks... Most of time, I am not even sure what to pack for her preschool. Every meal is struggle since she can't tell me much how she feels with each meal / food. Birthday party is not much fun any more since she can't have anything at the party. I really hope we can find something for her so she can control better for her life... Now I worry about my little one...she just turn 3. I pray she won't have it...
Posted 10/2/2013 2:08 PM (GMT 0)
Dear CJCGIRL,
Really sorry to hear this. You are not alone, i know how u feel. Our daughter was diagnosed with UC just b4 the age of two. She was growing very well before that but her growth came to a halt during her flare which lasted over 6 months. By gods grace she has been in remission for just over six months now but the worry is constant. Prior to her flare she received all vaccinations, but after that we have refused to give her any. So she has not had her MMR and we don't intend to give her until she is 5 at least. She is currently on a lactose free, low fructose diet. It seems to work well for her. We also give her an amino acid formula called comidagen that does not seem to cause any issues and has l-glutamine. That said the worry is constant. We also have a younget one, who is just turning one now. I pray that your daughter gets better.
Posted 10/4/2013 2:42 AM (GMT 0)
@ourstorywithibd, thank you for sharing your story. It's been such a long battle for last 10 month with her flare up and sad thing is its just a beginning. I am following 'starting CCHerbal today' topic on this forum. It's very interesting and I am trying to figure out if I can use this for my little girl. Anything I find out, I will let you know. Wish you the best too. I always worry about my other little one too. She just turn 3. She seems doing ok so far... Oh, stay away from sugar... She was doing just fine on gluten free diet with apriso then sugar in gluten free cupcake at birthday party push started ths flare up since. It seems Val #3 helps her.
Posted 10/4/2013 3:08 AM (GMT 0)
Dear cjcgirl,

Thank you so much for responding. We had some mucus yesterday and needless to say are very worried. Have upped her sulfasalazine, and pray that she will stabilise.  

Yes we are keeping away from sugars, but we do give our daughter glucose mixed in her amino acid formula which is otherwise unpalatable.

I am afraid I don't have much to offer in terms of what can get your daughter out of her flare... but I should say that for us, diet was a central part. Mentioned earlier no lactose and low fructose.

Pumpkin in general was always good. Basmati rice mixed with mung lentils, a drop of olive oil, and a little turmeric (very well cooked together and made into a porriedge) have proven to be a godsend for us... Pumpkin seeds seem to be ok... And as the flare recedes some well boiled vegetables.

wishing you all the very best...

 

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