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Ulcerative Colitis
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Posted 10/4/2013 11:50 AM (GMT 0)
I know I have been on here these past 8 months... complaining and steadily deterioating. Last week, I stopped taking/using all mesalamine as I was convinvced that it was making me worse and I have seen significant improvement.

My frequency has dropped from 8-10 down to about 3-4 times a day. My pain level has gone from an 8 in August/September to about a 3. I am able to eat and have finally stopped losing weight, may have even added a lb or 2 this week.

And this morning was the first time in about 6 months that anything was even remotely formed/solid!

I am still seeing blood and mucous, but am hoping that the remicade will clear that up.

Even if this doesn't last... I can't say how thankful I am to have some relief no matter how long/short it lasts.

But I do want to thank everyone on here for listening and your continued support!!!!

Posted 10/4/2013 12:17 PM (GMT 0)
I do hope the positive improvement continues :) I'm crossing my fingers for you!
Posted 10/4/2013 12:59 PM (GMT 0)
WOOOOOO! That's great news! keep that momentum going.
Posted 10/4/2013 1:14 PM (GMT 0)
Awesome news! How long have you been on the Remicade?
Posted 10/4/2013 2:14 PM (GMT 0)
That's great news. Maybe you were intolerant to mesalamine.
Posted 10/4/2013 3:25 PM (GMT 0)
I definitely think I developed an intollerance or at least an intollerance to the quantity.  The canasa I used one day last week nearly burnt a hole in my rectum. So... my GI thought we would go without all of it, since it wasn't helping anyway, and then maybe someday come back to it.

I had my 1st remi infusion on 9/3, my 2nd on 9/17, and my third will be 10/15.

As of now, I am down to 5mg of Prednisone, and still doing the hydrocortisone enemas. Haven't had to take a hyoscyamine since stoping the lialda/canasa/rowasa.

Posted 10/4/2013 3:34 PM (GMT 0)
Glad stopping has helped you. Sometimes you don't know until you try. Hope the remi does the job for you. :) Keep us posted.
Posted 10/4/2013 6:58 PM (GMT 0)
I have always been a believer that anyone who uses these dangerous meds had darn well better get remission out of the deal. What's the point if you take the risks with these meds and then you have to turn around and take other things (like the 5ASA's) as well? Hopefully this will keep you going down the path toward remisssion and the only thing you will need is Remicade. Ride the wave for as long as you can until it stops working but don't ever stop it until it quits working.
Posted 10/4/2013 7:08 PM (GMT 0)
Some are intolerant to the meds or whatever else is in them. Best to try to see if they're an offender.

Hope the remi works for you...
q
Posted 10/5/2013 2:35 AM (GMT 0)
Being able to sleep is perhaps the greatest thing that has happened. I made it the full night last night which is the first time I haven't gotten up (multiple times). Today my energy level was so much better. I ate some good protein, carbs, and didn't throw up or feel like I was going to. Like I said before... maybe it won't last, but I am feeling encouraged right now which really helps my overall mood. These last couple months have really put me in the dumps, physically and mentally. Again, thank you so much to everyone for listening and the well wishes!
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