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My first UC anniversary

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Ulcerative Colitis
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Posted 10/20/2013 8:45 AM (GMT 0)
Last year Oct 20th was the day I was diagnosed as UC. Since then I flared on May'13(due to country change) and now again flaring - yes continuous tiny blood spots and huge mucus discharge for the last 6 days.
Was wondering is there a relation between the first diagnosis date and flare on the ~same date of the consecutive years?
Posted 10/20/2013 12:26 PM (GMT 0)
No. Just coincidence.
Posted 10/20/2013 1:00 PM (GMT 0)
just luck ;-)
Posted 10/20/2013 1:05 PM (GMT 0)
I'm rapidly approaching my 13 anniversary, and I've never seen a correlation.
Posted 10/20/2013 3:33 PM (GMT 0)
coincidence...one can compare till the end of time.

I suggest you try different probiotics for sure....

I hope you start to feel better soon,
q
Posted 10/20/2013 3:54 PM (GMT 0)
quincy, can you suggest which probiotics I can try please? I'm heavily bloated as well. I could just eat lunch and that too not completely. One cup of rice + lentils + one serving sauteed veg(mostly bottle gourd, ridge gourd) with olive oil. I tried spinach sauteed with little oil oil but I think it irritated my gut.

After my lunch, my stomach is like rock till 10 in the night and the gas gets trapped in the sigmoid, which keeps on rumbling and is not coming out. Previously also I had this trapped gas problem but that will usually be in the morning but later on it gets expelled.

So due to this bloating, I could hardly eat any dinner. I could just eat one avocado for my dinner. That is it. It appears that the rectum and sigmoid are inflamed.

I don't have dairy and dairy products. For breakfast I just eat one avocado, banana. I eat only biological veg and fruits, rice, lentils.

I really don't know how to bang this disease to my feet. Anybody think I could make any changes to the diet?

I stopped Mutaflor as well because it doesn't seem to help me rather it caused me more gas.

I still have nightly 4g Salofalk enema and 4g Pentasa granules.

My GI thinks I need to worry only when I have diarrhea and he keeps telling me calprotectin is a sensitive test which will reveal even a mild inflammation but I wanted to see on my own eyes how my gut looks like.
Posted 10/21/2013 2:32 AM (GMT 0)
Sarav,
If you have bloating, eliminate rice and lentils for a while.Substitute with cooked and seasoned pumpkin/butternut squash soup.Once you attain remission, slowly you can add rice/lentils back. Keep in mind the easiest to digest lentil is the masoor daal and that too you have to soak overnight and drain it before cooking.I hope you might have heard about Specific carbohydrate diet. If not check into it.

Best wishes...
Posted 10/21/2013 12:23 PM (GMT 0)
Often fruits can make us worse, especially if you overdo them.
Posted 10/21/2013 1:50 PM (GMT 0)
Bloom93, I take masoor daal exactly what you have said - soak it over night and drain it and fill it with fresh water. I feel like pull the colon out and slap it 'Stop rumbling, stop rumbling' bloody hell....
I feel terrible...

@garylouisville, I just take well ripe banana and well ripe avocado. Both are organic. I'm trying to find papaya but I couldn't find in Netherlands. Strange country!

I don't eat apple, but I'll have to try cooked one with skin off.
Posted 10/21/2013 4:47 PM (GMT 0)
I saw a recurrence when I began getting flares at certain points in the year.... but it just turned to be times when final exams were coming up. Otherwise coincidence.
Posted 10/21/2013 6:26 PM (GMT 0)
Sarav: I discovered that I have a histamine intolerance. ManyUC'rs are low on the digestive enzyme DAO, which helps eliminate excess dietary histamines. Some foods, such a ripe fruits, are high in histamines so if you have a histamine intolerance this can cause your UC symptoms to be much worse if you ingest more histamines than you have DAO. Some people think that just eating healthy and organic is good. That is not always the case. In my case eating too many fibers, fruits, raw veggies, and nuts are actually bad and cause my UC to be much worse. Believe it or not it is better for me to eat a burger and fries than it is to eat too much of the previously mentioned foods. I don't know if this is the case with you or not but just don't automatically assume that eating ripe fruits isn't making you worse.
Posted 10/21/2013 7:01 PM (GMT 0)
garylouisville, That is much much interesting. What is that test? How did you get yourself tested?
Posted 10/21/2013 7:41 PM (GMT 0)
I don't think there is a test. I diagnosed myself. It wasn't hard. I discovered several different "unrelated" things I was ingesting that made me violently worse within a fairly short time. These foods (and other things) were such a wide variety I couldn't believe there could be anything in common to all of them. But, I spent a couple of days searching for something all of these different things had in common. Finally I discovered that they were all high in histamines and if you google ulcerative colitis and high histamine foods you will find thousands of hits. You can buy the digestive enzyme DAO, which I get through Swanson, and take it shortly before eating high histamine foods and I was totally amazed that I could now eat these very same foods that made my UC violently bad before. There are also low histamine diets you can follow to just avoid the foods, drinks, etc that are high in histamines. It's all kind of a trial and error thing to discover if you have a histamine intolerance or not. I'm not saying that you or anyone else does. You have to experiment for yourself but it is proven that UC'rs are low on the digestive enzyme DAO. Too many people are too concerned about eating healthy to help their UC and it never occurs to them that some of these "healthy" foods can actually be making you worse.
Posted 10/21/2013 8:52 PM (GMT 0)
"Too many people are too concerned about eating healthy to help their UC and it never occurs to them that some of these "healthy" foods can actually be making you worse"


eating healthy doesn't make you sick - having a digestive system that is out of whack does -
Posted 10/21/2013 9:18 PM (GMT 0)
This much bloating sounds like SIBO to me. I would speak with your GI and discontinue the probiotics for now (even "the right" probiotic will usually only exacerbate SIBO symptoms until it's treated)
Posted 10/22/2013 10:50 AM (GMT 0)
Thank you all. I have a telephonic appointment tomorrow, let me see what my GI says.
He seems to be more relaxed and he wanted me too.
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